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01-29-2008, 06:26 AM #1ICN Member
- Join Date
- Jan 2006
- Location
- PA
- Posts
- 505
Anyone see any of the UPENN urogyn or uro
Im looking for experiences with these dr. Feel free to PM me.
Lyme disease diagnosed 11/05
vulvar vestibulitis diagnosed 2/06 -worst case she has ever seen..very bad.
IC diagnosed with hydro/cysto- may 17, 2006
Over growth of lactobicilli found 8/07 treating with doxy.
Was able to get my first internal exam evaluation for PFD....wohoo 1/18/07:woohoo:
8/22/07- was able to get my first speculum exam, with pap
Strep D found in bladder with United medical labs May 2006
2 strains of strep in stool culture 9/06
high Strep ASO titre found 10/06
NEW MED
Capsasin cream-once a day for 20min,
BUt wont lie it does burn
About to start valium supositories for PFD
Trigger point injections- oct 07
Current meds:
Neurontin- 100mg at night supposed to work up to 300mg if i can tolerate it
Zanaflex 2mg
IC and low oxalate diet, no sugar diet
Xanax for appointments to help relax me since they cause so much pain
Started PT 3/07, PT has really helped me in ways I never knew that it would
Meds ive tried
Lyrica
Klonopin
Singulair
Claritin
Pyridium
Soma- can barely tolerate half a pill
Atropine cream- didnt seem to work, although i found out I was applying the creams wrong
Estradiol cream
Urelle- caused worse bladder spasm and retention
Various antibiotics for lyme which caused yeast and made the IC and VV worse
waiting for the next chronic illness to pop up
"Did you know?
Every 15 seconds,
a person is
diagnosed with
interstitial cystitis."
Source: J. Dimitrakov, MD
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01-30-2008, 10:42 AM #2ICN Member
- Join Date
- Oct 2005
- Location
- East Lansing, MI
- Posts
- 26
Mich...Just wondering where you got that statistic from on the bottom of your signature =)...it seems so high!
Dx with IC sept. 2005
elmiron, pyridium, daily abx, detrol LA, instillations
~~I'm a Nursing senior at Michigan State University~~
Go Spartans!
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01-30-2008, 11:25 AM #3ICN Member
- Join Date
- Jul 2001
- Location
- USA
- Posts
- 691
No, but do know of a pain doc
No, I didn't see any of UPENN's uros, but it is a great hospital. There is a good female pain management doctor in the Rehab. & OT Dept. there though.
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11-20-2008, 03:43 AM #4ICN Member
- Join Date
- Oct 2008
- Location
- Scranton, PA
- Posts
- 84
Hi,
I personally had HORRIBLE experiences at UPenn, and would never even think about going back there. I saw Dr. Lily Arya and she completely missed that I have IC. I suggest going to Dr. Kristene Whitmore...she is in Philly, and is excellent!
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