hylauronic acid

**glassd18** · 01-06-2008, 08:03 AM

Has anyone tried this?

dreamy · 01-08-2008, 10:43 AM

I want to! It is supposed to help rebuild tissues. It is the main ingredient in Cystistat and that is a treatment option for IC.

**glassd18** · 01-08-2008, 03:10 PM

We can buy it here at the ICN shop. One of the girls who's getting Cystitat instills said that the hyalurinic Acid ( I spelled it wrong on the thread) supplements didn't do anything for her, but I suppose we are all different, and maybe it's worth a shot. I am really down these days as I'm sick with a cold and nothing is relieving my bladder pressure.

dreamy · 01-09-2008, 10:01 PM

Hey glassd18 I hope you feel better! Maybe it works better instilled in the bladder. I read somewhere on here that one lady said the HA supplement helped her. Maybe it just requires more since it takes longer to get the effects of it since its not instilled? I think its worth a try since it is supposed to help regenerate healthy tissues. I might try it.

**glassd18** · 01-10-2008, 05:17 AM

Hi Dreamy,

I ordered a bottle last night so I guess we'll just have to wait and see what happens. I flared from Cystoprotek, I flared from the Aloe Vera, and the Valerian Root in the Cysta Q kind of made me feel funny so I'm running out of options to coat my bladder. I am thinking about asking my uro to try Elmiron instills to see what happens. It is pretty expensive for the Cystistat, but to me would be 100% worth it if it helps. I just don't know how I'd pay for it since it's not covered here.

**hoping4acure** · 01-10-2008, 05:37 AM

I have been on it the Pure HA for a couple years now. I have been in "remission" I don't know if it it's due to that or not. My doctor told me when I was taking the natural supplements because elmiron upset me stomoach, that the hylauronic acid is the one thing that is good for your bladder. Everyone is different though.

Good luck

dreamy · 01-10-2008, 07:17 PM

I am going to try it too. I would try the Cystistat but I cant get any instills right now. Maybe I can try the instills when I am feeling better. I wonder when the US is going to approve Cystistat or make a version of this product. I have read that it has helped people with IC.

**sandymarie** · 01-10-2008, 11:36 PM

Where do you get the pure HA. I would like to find and try it. Where do you get your and how ecpensive is it.

JJ

**hoping4acure** · 01-11-2008, 01:27 AM

Sandymarie: I buy the Pure HA from this site, it's not that expensive. Check it out.

**glassd18** · 01-12-2008, 05:27 PM

I bought mine on another website. I still haven't received it yet, but it's coming from California so it could take a while since I'm in Indy. That's fantastic news hoping4acure. I hope you stay in remission. I'm one of those who's sensitive to everything it seems so I'm getting a little nervous to say the least. How many do you take per day?

**snowgirl** · 01-13-2008, 11:37 AM

glass,

You live in Indy? My brother and his wife live in Indy. I doctor at U of Michigan. Do you go to I-U or Methodist. I have met some urology residents in training at ann arbor who went back to indy to practice. DO you have good urology in Indy. My impression not knowing exacts was that you had pretty good health care in Indy with four major medical center. Good now if I ever decide to move to Indy when my md retires I can ask you what group to go to. Be Safe In INdy- things are not as safe there as they used to be. Well, is anywhere really.

I once met a medical student from I- U ER 4th year who was studying one month at our local level one trauma center. She told me she got mugged and beat up real bad one night by Methodist. I felt bad for her and gave her some connections in case she ever got into trouble and needed help. Vicky

**hoping4acure** · 01-16-2008, 06:22 AM

Originally Posted by glassd18

I bought mine on another website. I still haven't received it yet, but it's coming from California so it could take a while since I'm in Indy. That's fantastic news hoping4acure. I hope you stay in remission. I'm one of those who's sensitive to everything it seems so I'm getting a little nervous to say the least. How many do you take per day?

I take it once, sometimes twice a day.

**glassd18** · 01-16-2008, 07:21 AM

Thanks hoping4acure. I got mine a couple of days ago, and have started it, but I started flaring so I hope it's not that. I'm going to try and keep going no matter what to see if it makes a difference. I'm giving the whole bottle a try, and then if I don't see any difference or I get worse I'll quit. Something has got to give before I go nuts. I started journaling diligently today. I would think a journal kept for about a month should give my uro and I a good idea of what my triggers are. I'm sick and tired of the guess work.

**hoping4acure** · 01-16-2008, 07:49 AM

Originally Posted by glassd18

Thanks hoping4acure. I got mine a couple of days ago, and have started it, but I started flaring so I hope it's not that. I'm going to try and keep going no matter what to see if it makes a difference. I'm giving the whole bottle a try, and then if I don't see any difference or I get worse I'll quit. Something has got to give before I go nuts. I started journaling diligently today. I would think a journal kept for about a month should give my uro and I a good idea of what my triggers are. I'm sick and tired of the guess work.

Glass,

That is the smartest thing you can do. That's what I ended up doing and I think probably most of the people on this board have done. You think your going to remember what you ate and what you did, but it's hard. It's so much easier to write it all down. I ended up with 3 IC journals, still writing in the 3rd. I think it's important, and yes, I can let my URO know what's going on just by flipping a page

Good luck, and let us know how you are making out. If you want to talk off the boards, feel free to PM me OK