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  1. #1
    IC Friend Mary-Ann's Avatar
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    Lightbulb UTI not going away with medication.

    Hey everyone

    It's been a while since I have posted here, all was going well for the past couple years, the ocassional little flare here and there but nothing much.
    And I believe its all due to Elmiron (i love that drug, even though it costs an arm and a leg. lol) Anyways Im here today because I have a UTI, I have been taking medication for 8 days now, 2 tabs a day, I have 2 days left to go and I was feeling like it was working until today. It seems like its coming back, I have that burning achy feeling all the time. I am taking sulfamethoxazole-trimethoprim (do you think they could make the name of the medication any longer?lol) I wanted to find out if anyone else here has taken that medication and if it worked for them , etc?
    I have taken lots of UTI meds and everytime they worked (this was years ago though so I am not sure what those ones were.)
    This is my first UTI in over a year, I was going strong for a nice while, hehe.

    So if anyone could post and let me know if they have ever had to switch meds while having a UTI b/c it wasn't working, etc, I would love to know. Z

    Thanks so much for your time,

    Mary-Ann
    ****Don't frown because you never know who is falling in love with your smile****

  2. #2
    ICN Member GriffsMommy's Avatar
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    I don't normally get UTI's so I can't speak about switching meds. I have heard others say though that even when the infection is gone they still are left with bladder pain and burning. It seems it takes longer for an IC bladder to recover from a UTI than a normal bladder. I hope you feel better soon.
    Christine



    I have been diagnoised for 6 1/2 years now. I have taken a long break from the ICN but really miss helping out my fellow IC patients and want to get back into posting.
    1st hydro 4/07 showed no visible signs of IC but tons of mast cells in all my biopsy samples which did prove IC.
    2nd hydro 4/13/09 showed dark purple glomerulations and I had a capacity of 450 cc's. This hydro proved that my IC had progressed.
    I have tried every oral medication as well as rescue instills and DMSO.

    I have been lucky enough to see Dr Hanno, the top IC specialist in PA who has told me due to the fact that I have not responded to any "standard" treatments that I have a severe, end stage case of IC with a horrible quality of life (didn't have to tell me that last part!)

    Proud wifey of Shane, mommy to Griffin, and step-mom to Logan and Gage
    Also proud mom to the best Bullmastiff on earth, Claus

  3. #3
    ICN Member cia's Avatar
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    The doc put my daughter on that stuff for a UTI. She ended up with really bad diarrhea. She got dehydrated and needed suppositories so that she would stop losing so much fluid. The doc switched her to Amoxicillian and she recovered from the infection. I have been dying with a flare since Jan 2nd. They just discovered an infection and put me on Cipro. Three doses and I am not seeing any difference yet. They haven't gotten the culture back from the lab, so I don't know if they will change my antibiotic then or not. It is my understanding that it can take up to six months for your bladder to fully recover from an infection. I'll keep my fingers crossed that you feel better long before that. Get well soon.
    I was born with one ureta not attached to it's kidney, I've been poked and prodded for so long. I never had "private" parts. I had constant infections and took low dose preventive antibiotics into my teens.

    DX with IC July 1993 after seeing 3 different Uro's and finally switching Primary care doctors and affiliated hospitals.


    I have 2 beautiful daughters, the oldest has been in heaven since she was 14 when she was hit by a car The youngest is 20 now. She has had one UTI. She went into complete panic that she would end up like me. Now she has some idea of what the pain is like. Poor kid has been forced to know where every bathroom in Disney World is.

  4. #4
    Support Leader dyno's Avatar
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    Sometimes they have to switch antibiotics if one isn't working. If they are not culturing your urine when you get a UTI, in the future you may want to ask them to do that. I hope you feel better soon.
    Jolene

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  5. #5
    ICN Member lisabar36's Avatar
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    Hi, a couple years ago I had a UTI, they gave me Levaquin, well it wasn't going away so they had to switch it, not all antobiotics work and if they cultured it they should be able to see what antibiotic should clear it up. You may want to call them and let them know its not working so they can change it to something else. Lisa
    Lisa
    Current meds:Elavil, Lortab as needed, Vivelle dot hormone patch 0.1mg, estrace cream, lidocaine ointment, pepcid
    Diagnosis: IC in 1999 , IBS, Pelvic floor dysfunction, vulvodynia, vestibulitis, chronic low back pain, scoliosis, hunners ulcers on bladder, hysterectomy 2/08, fibro 3/08, sciataca


    Me and my girls, my son, me and my wonderful fiance, and our puppy Miley (who loves to cuddle).

  6. #6
    ICN Member Want2BPainFree's Avatar
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    Did they culture? Because if they did not, and just went by the stick in your urine, it may not be an infection at all. I took a lot of antibiotics unnecessarily because of "UTIs" that I later learned weren't UTIs at all.

    I hope you get relief soon.
    Sonja

    Dx: Idiopathic Dilated Cardiomyopathy/Congestive Heart Failure-1997, Vulvar Vestibulitis-2006, IC-Feb 2007, Atrophic Vaginitis 08, Heavy Long and Painful Periods leading to Partial Hysterectomy-2007, Rectal Fissure-2007, Pelvic Floor Dysfuntion-2008, Post-Menopausal-2010

    Meds: Coreg, Elmiron, Elestrin, Est/Test Topical Gel, Valium Suppositories, Lyrica, Dyrenium to counteract edema from Lyrica, Pain Meds.

    IC Diet: Very diet sensitive, esp. to spices.

  7. #7
    Forum Manager ICNDonna's Avatar
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    Hopefully the infection is going away and you just have some residual irritation from it. Did they do a culture and sensitivity test to determine the best antibiotic to get rid of your specific "bug"?

    I would call the doctor if you're still not feeling better.

    Donna
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    I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

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  8. #8
    ICN Member mom_in_ma's Avatar
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    Most definitely have them culture your urine if you are still symptomatic after you're done with the antibiotics. I was just diagnoses with a UTI a couple of weeks ago and the sulfa-trimethoprom (Bactrim, I think) wouldn't have worked for this one. I was given Cipro, then a long term dose of amoxicillian. Yes, it was a whopper of an infection.
    mom_in_ma

  9. #9
    ICN Member cia's Avatar
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    My doc gave me another 14 Cipro yesterday. I have a hydro on the 28th, so he doesn't want to take any chances. My lab results aren't back yet, but I am starting to feel better (thank goodness) so the Cipro must be doing something.
    Sunday night I was up every half hour to pee, the on call doctor insisted that I go to the hospital at 8 on Monday morning to pee in a cup. Huge snowstorm, gotta love MA, I pee in the cup and the NP hands me a Cipro and a water before she even does a dip. I've been peeing in a cup on a regular basis since I was six years old. I remember my mother holding it up to the window to look for cloudiness. She's gone now, but I have such fond memories. When my daughter had her first UTI at 14 and I made her pee in a cup so that I could look at it, she looked at me like I had 4 heads. Sorry about the tangent. You guys really are the only ones to understand.
    I was born with one ureta not attached to it's kidney, I've been poked and prodded for so long. I never had "private" parts. I had constant infections and took low dose preventive antibiotics into my teens.

    DX with IC July 1993 after seeing 3 different Uro's and finally switching Primary care doctors and affiliated hospitals.


    I have 2 beautiful daughters, the oldest has been in heaven since she was 14 when she was hit by a car The youngest is 20 now. She has had one UTI. She went into complete panic that she would end up like me. Now she has some idea of what the pain is like. Poor kid has been forced to know where every bathroom in Disney World is.

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