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  1. 12-20-2007, 11:16 AM #1
    GriffsMommy
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    Private Messages

    Is anybody else getting an email saying they have a private message and then when you come onto the boards you don't actually have a new private message. I thought I was losing my mind at first but it's happened at least a half a dozen times. I don't know if it's something wrong with my stuff or some weird glitch with the new site.
    Christine



    I have been diagnoised for 2 1/2 years. I have tried every oral med as well as rescue instills and DMSO.
    1st hydro 4/07 which showed no visible signs of IC but I had tons of mast cells in all my biopsy samples which did prove IC.
    2nd hydro 4/13/09 showed dark purple glomerulations and I had a capacity of 450 cc's. I am still feeling the effects of the hydro two weeks later.
    This 2nd hydro proved that because no treatments have helped me that my IC has progressed

    Am being seen by Dr. Hanno's office in Philly

    None of my medicine or treatments are important anymore. One of our best IC sisters Barb has been taken from us too early. She was such a great friend to me, I feel like there is a part of my heart that will always be empty now that she is gone.

    Proud wifey of Shane, mommy of Griffin, and step-mom to Logan, Gage and Miranda
    Also proud new mommy to the best Bullmastiff puppy on earth


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  2. 12-20-2007, 11:27 AM #2
    Sally939
    Sally939 is offline
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    I have not. That would make me feel a bit crazy.
    Daily Meds:

    IC-Meds
    Ditropan XL 5 BID, Elavil 50 QD, Elmiron 200 BID, Hydroxine 50 BID. As Needed: Bacofen 20, Prosed DS, Hydrocodone/Apap.

    Other Meds
    Adderal 10 QD, Remmeron 37 QD (I take 1 1/2 of 25 mg)

    With the help of my doctor moving my meds around a bit by increasing this and decreasing that I have found a good combination of meds (for now and I pray a long time from now).
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  3. 12-20-2007, 12:13 PM #3
    mimimama
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    ICN Member mimimama's Avatar
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    yes! this has been happening to me too!
    Mimi~

    Currently battling:
    Migraines
    IC
    Panic attacks/Anxiety Disorder


    Current Treatments:
    Pain Meds and Anxiety Meds
    Gentle Physical Therapy
    Yoga
    Heating Pad~my best friend
    Lots of hot baths w/ Epsom Salts & Baking Soda
    Tens Unit
    Prayer
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  4. 12-20-2007, 01:59 PM #4
    GriffsMommy
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    Thank goodness Mimi, you have confirmed I am not totally losing my mind. I just had it happen again. I have no idea what's going on but at least I know it's not only me.
    Christine



    I have been diagnoised for 2 1/2 years. I have tried every oral med as well as rescue instills and DMSO.
    1st hydro 4/07 which showed no visible signs of IC but I had tons of mast cells in all my biopsy samples which did prove IC.
    2nd hydro 4/13/09 showed dark purple glomerulations and I had a capacity of 450 cc's. I am still feeling the effects of the hydro two weeks later.
    This 2nd hydro proved that because no treatments have helped me that my IC has progressed

    Am being seen by Dr. Hanno's office in Philly

    None of my medicine or treatments are important anymore. One of our best IC sisters Barb has been taken from us too early. She was such a great friend to me, I feel like there is a part of my heart that will always be empty now that she is gone.

    Proud wifey of Shane, mommy of Griffin, and step-mom to Logan, Gage and Miranda
    Also proud new mommy to the best Bullmastiff puppy on earth


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  5. 12-20-2007, 02:01 PM #5
    ICNDonna
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    It hasn't happened to me.

    Donna
    Have you checked the ICN Shop?
    http://www.icnsales.com for US & Canada
    http://www.icnshop.com for all others

    Patient Help: http://www.ic-network.com/patientlinks.html

    Diet list: http://www.ic-network.com/diet/2009icdietlist.pdf

    You'll find my story at: http://www.ic-network.com/patientstories/donna.html

    I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

    Anyone who says something is foolproof hasn't met a determined fool
    .....My Meggie.....
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  6. 12-20-2007, 05:40 PM #6
    tigger_gal
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    hhmwe have a ghost pmer
    'The will of God will never take you where the Grace of God will not protect you.'
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