Thread: weight loss and IC
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12-18-2007, 06:31 PM #1
weight loss and IC
I am sitting here watching the biggest looser and getting depressed. I have lost about 30 pds. but have about 80 more that does not want to come off. I don't fill like I can do it. I joined a gym a month ago and have gone some but not as much as I thnik I should. My IC flarred up really bad. I had to have a hydrodistinson on Fril I don't know how long I should wait before I go back to the gym since my favorite spot there is the pool. I also am waiting on the results of an Echocardiogram. My pulse rate is over 100 most of the time. Hope to be back at least by the first part of January. Anyone got advice on how to loose weight with the IC diet and exercise without pain.
HELP !!!!!! Depression is trying to get the best of me.esophagus spasams
dyastalic disfuntion with stiffness of right heart valve
lymphedema of left leg and ankle
venous insufficensy
hypothyrodisim
IC
Pelvic Floor Disorder-having pelvic Physical Therapy
breast cancer 5 yrs remission
GERD
colitis
swollowing difficulties have throat stretched
Asthma
Anemia
Lots of medications more than 20 rx's
Lots of doctors
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12-19-2007, 12:56 AM #2ICN Member
- Join Date
- Oct 2007
- Location
- USA
- Posts
- 472
Dropping the sugar, adding more vegetables, less carbs and adding a soluble (not insoluble) fiber to my diet did the trick for me! I tend to yoyo but this has been the winning combo! I first experienced a reasonable weight loss and now have maintained a consistent weight for the past year. I also do as much cardio as I can tolerate twice a week and walk almost daily. Keep trying, you'll find what works for you!
Karen
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12-19-2007, 02:33 AM #3
You could try just plain walking every day, even if it's just for fifteen minutes. In my diabetes education class they suggested I wear a step counter so I can be sure I get enough activity every day.
DonnaHave you checked the ICN Shop?
http://www.icnsales.com for US & Canada
http://www.icnshop.com for all others
Patient Help: http://www.ic-network.com/patientlinks.html
Diet list: http://www.ic-network.com/diet/2009icdietlist.pdf
You'll find my story at: http://www.ic-network.com/patientstories/donna.html
I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
Anyone who says something is foolproof hasn't met a determined fool
.....My Meggie.....

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01-13-2008, 10:36 AM #4
The Elliptical trainers are really easy on your joints and don't seem to set off flares with me. I have done this twice now after starting back to working out since I haven't in over a year. The one I used on base at Wright-Patt is a Precor. I set the settings on Level 1, because elevation seems to hurt my pelvic area.
Stay away from abdominal crunches. I did 50 yesterday and that was BAD. We have been through four instillations, pain medication, muscle relaxers and almost considered the ER since the pain was SO bad last night. The UTI I have is contributing also, but I only found out about it last night when I dipped my urine. Anyway, luckily I have 16 500mg Levaquin tablets so I didn't have to go to the ER to get antibiotics.
Thank Goodness. Also, I am adding in light weights...no heavier than 5 lbs. for chest, arms and legs. No more ab work though until I determine if that is best for me or not.
Good Luck with finding the right Elliptical. When I taught aerobics before my onset of these medical problems, I learned that the Elliptical is like a "natural runner" and therefore does not cause so much weight (bad weight) on the joints.
Blessings!
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01-13-2008, 10:47 AM #5ICN Member
- Join Date
- Feb 2007
- Posts
- 321
Don't feel depressed, Big Red. How about yoga. I bought a beginner yoga tape and try to do a little more each day. I used to swim, but the chlorine aggravated my IC big time. Light weights are excellent, as muscle burns more calories!!!
Good luck, and just keep chugging along!
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01-13-2008, 12:47 PM #6
Big Red, you might be interested in my thread in this forum, on the ergometer.
Je vous souhaite de la joie, de la bonne santée, et tout ce qu'il y a de bon dans la vie.
Wishing you happiness and good health, and all the best out of life.
Peace, Carolyn
___________________________________________________
Laura (11), Susannah (12 1/2) and Maman (that's me!), North Wildwood NJ, September 2007
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01-13-2008, 03:48 PM #7
Weight watchers is by far the best weight loss program I have found.I lost about 52 pounds on it.It wasnt always easy but Im glad I stuck with it.As far as excersice I recommend walking and water aerobics. Its low impact but yet very affective.
~*Grinifer*~
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01-14-2008, 04:30 AM #8ICN Member
- Join Date
- May 2006
- Location
- Perris,ca
- Posts
- 192
Thank you for your replies. I have lost 6 pds since Jan1. My goal is to be down by 10 pds by Feb. 1st. My doc. just gave me the formula to figure out my heart rate since I was diagnosed with the starts of CHF. I know that this will help me. My daughter said the gym has also but a water aerobics class in it schedule. I got the check that out. Have a great day.
Interstitial Cystitis Stomach problems
diastolic dysfunction
vascular insufficency of left leg
pelvid floor disorder
hypothroidisim
asthma
bread cancer - 5yrsl. remission
swollowing difficulty
fatigue
lots of doctors
lots of med.
Keep your eyes on the Lord and he will direct your paths.
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01-15-2008, 07:09 AM #9
Good luck! I hope all turns out well for you. I have a lot of heart disease in my family and I know what you're going through. Please take care of yourself and don't let depression bring you down. I walk every day and try to eat a heart healthy diet. (lots of blueberries and strawberries) It it's red or purple, it's good for your heart! (well, healthy red and purple foods, too bad candy doesn't count!) Watch out for veges like potatoes, corn, and carrots. They are high in sugars which turn into fat. They also aggrivate my IC.
Take care! Good luck!
Diagnosed with IC August of 2007
RA
PTSD/Major Depressive Disorder
Asthma
Elmeron 300mgs Daily
Pain Meds and a Hot Pack
I refuse to be defined by the number of times I pee a day. But living with IC, I have been lucky enough to experience some of the worlds most disgusting bathrooms.
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01-15-2008, 07:38 AM #10
Walking was the best trick for me, just getting my metabolism up since I am over 40 has made a huge difference. I can swim too during the summer. We put a very low chlorine system in our pool so it doesn't bother me at all. We are converting to a salt water system not this summer but next. Last summer I would just get out there with a noodle and do exercises in the water too, plus it relaxed my muscles.
Sounds like you are doing great with your weight already though! Good job!
T83
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01-15-2008, 08:31 PM #11dreamyGuest
Im kind of confused. Do you all just workout even if you feel your bladders and have to hold pee in the whole time?
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01-16-2008, 02:28 AM #12
I, too, flare from exercise, but I have found ice packs to be quite soothing. I sit on one and put one on the front of my bladder when I get home from the gym.
However, your medical history concerns me regarding your CHF. I also suffer from this due to dilated cardiomyopathy, and I got to tell you, sister, they will want you to exercise, but you must know your limits. If you start feeling like you are drowning, you must stop. Not permanently, but stop right away and sit down.
I know from experience, that the best treatment for me for CHF has been reducing sodium intake. I never add salt to food, and I also do not eat processed food. This is the sodium killer. My doctor recommended that I never intake more than 1500 mg of sodium per day. Well, usually, I don't consume more than 1000 mg per day, and I've still had some days when I'm just so full of water.
Has your doctor limited your fluid intake?Sonja
Dx: Idiopathic Dilated Cardiomyopathy/Congestive Heart Failure-1997, Vulvar Vestibulitis-2006, IC-Feb 2007, Atrophic Vaginitis 08, Heavy Long and Painful Periods leading to Partial Hysterectomy-2007, Rectal Fissure-2007, Pelvic Floor Dysfuntion-2008, Post-Menopausal-2010
Meds: Coreg, Elmiron, Elestrin, Est/Test Topical Gel, Valium Suppositories, Lyrica, Dyrenium to counteract edema from Lyrica, Pain Meds.
IC Diet: Very diet sensitive, esp. to spices.
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01-21-2008, 01:39 PM #13
I second the elliptical. I do mine every day for an hour. Now if I could just stop stress eating I might be able to lose weight. We live under some pretty emotionally strenuous circumstances. Hopefully, someday we will be able to get out of the situation we are in. -Vicki
Blessings and Hope
Current Meds.
Elavil: 20 mgs at bedtime
Vivelle Dot: .075 changed every 72 hours
Lidocaine/Baclofen/Ketoprofen Suppository: 1 nightly
Current Supplements
Hydroeye: 2 pills AM & 2 pills PM
Diagnosed
1995: Endometriosis
1998: Interstitial Cystitis
2006: Bladder Endometriosis, Total Hysterectomy and Bowel Re-Section
2008: Removal of Ovarian Remnant and Endometrial Cyst That was Obstructing Ureter
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01-24-2008, 09:29 AM #14
My weight loss has come to a screeching halt and is stuck on 155. I am 5-feet tall and this is entirely too much for me to weigh...especially since we want to have a baby. I need to just lose down to 125 or 130. I have been doing elliptical exercise four times a week for about 30-40 minutes and dieting (mostly veggies)...cutting down carbs and doing everything I know and it just won't budge.
I also drink about 1-1 1/2 liters of water a day.
Ideas?
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01-24-2008, 10:17 AM #15ICN Member
- Join Date
- Oct 2007
- Location
- USA
- Posts
- 472
April -- have you had your thyroid checked out? What about yeast/candida? That's all I can think of! I hope you figure it out. It's frustrating. I finally started losing weight when I got my yeast problems under control. Good luck to ya!
Karen
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