12-17-2007, 08:43 AM #1
- Join Date
- Oct 2007
Has anyone heard of Waterfull D-Mannose or just D-Mannose? A friend sent me a link to an article about it, and here is some info about it:
D-Mannose is a rare sugar that occurs in nature. The molecular structure is C6H12O6. There is often a small amount of it present in fruits like pineapple, and cranberry, and it is chemically combined with other ingredients in many foods like carrageen, and commonly used in food stabilisers. It is simple, natural, 100% safe, even for small children (it really is just a type of sugar, a natural glyconutrient), and has some unique characteristics that make it at least ten times more effective than cranberry (and some people say it is up to 50 times better) at dislodging the sticky E.coli bacteria from the kidneys, bladder, and urinary tract.
Waterfall D-Mannose is best quality 100% natural, pure, pharmaceutical grade, naturally bio-active D-Mannose, extracted from sweet forest timbers using photosynthesis - a clean process that uses light to create a charge on the ions of dissolved mannose that allow it to be collected from the many isomers present in the mix. This process extracts only pure bio-active D-Mannose from the ferment, with all the properties that make it an effective treatment for Bladder infections and UTIs.
I would love to hear if anyone has tried it or had success with it for IC, or at least in managing ongoing UTI's with IC.Karen
12-17-2007, 08:46 AM #2
Pretty sure Jill has posted about it...an article in her newsletter a year back. Good for infections yes. Hopefully not many of us were misdiagnosed and have an infection...but unfortunatly there are plenty dealing with both.
Sorry don't know anything specific about waterfull D-mannose but I know Jill warned that it is not cure for IC...but is good for infections.Faith, Hope, and Love,
I believe God is using me. He uses me for God. Things I gain from all my suffering are meant to help others. I hope I can help you too. Email me or start a chat if you like my help or anything. I CARE!Illnesses: IC,IBS, IBD, GERD, PFD, Epilepsy, Endo, Allergies, RLM,Rapid heart beat, low blood pressure,Gastritis,Gall stones,Tendonitis,migraines, Shingles, Prolapsed pouch,ext. fatigue (current problem) I have seen periods of remission and I have seen them end and return. At this time remission is over and working on getting it back! My hope story http://www.ic-network.com/patientstories/katrina.html
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12-17-2007, 08:54 AM #3
- Join Date
- Oct 2007
Thanks Katrina for clarifying that. And that is exactly what I meant too. I was looking for it's help with UTI's as all my labs always came back with positive cultures when I did get treated for them. My poor husband, I've said no to him for months now because I'm so afraid to get another infection after sex. That really seems to aggravate the IC, which I now have under control. I don't want to start all over again!Karen
01-03-2008, 06:39 PM #4dreamyGuest
Hey Karen10, I was just looking into this brand too. I have read it is very good for ecoli based infections. Its intresting to read about. It does help some people with cystitis too. I guess its just something that has to be tried to see if it helps. There is a specific protocol you have to follow for it to be the most effective though.
01-07-2008, 02:28 AM #5
I took that...
I took "D-Mannose with Cranactin" every day for 2 months after I got the first-time infection that caused my IC. It was recommended by a health food store. Anyway, I don't think it helped because my bladder just got worse and I eventually had the hemorrhages and mast cells. I'm sure now that I've been dealing with a viral infection... whereas I think the D-Mannose / Cranactin are better with bacterial infections. Something about the bacteria eating what's in the pills, then becoming slippery and more likely to come out in your urine. That's what they told me, anywayExposure to an unclean hot tub 2-17-07 FIRST UTI
(Got ringworm-like sores from it before)
(Someone else got what looked like 'eye herpes')
(My husband got an ear infection. We were all just sitting there!)
SYMPTOMS: Severe Urgency/Frequency for 18 months, food sensitivity, widespread nerve pains (random and everywhere), deep bladder pain that developed into flares at 4 months. Completely unreasonable diet sensitivity.
TESTS: Nothing showed in urine cultures, CT scan, Cystoscopy, Lumbar puncture, back and brain MRIs, EMG tests.
Hydrodistension Surgery/Biopsy showed minor glomerulations, inflammatory and mast cells, and a rare eosinophil. Blood tests show elevated ANA.
CONFUSED: My hands and feet started falling asleep. I got twitching nerves or muscles everywhere. I started having concentration and memory problems, vision problems, then fatigue and chronic migraines. Fibromyalgia diagnosed, SSDI disability at 4 years. IBS and esophagus spasms at 6 years.
MEDICATIONS: Marcaine/Heparin/Sodium Bicarb instills, Lyrica, Nortriptyline, Uribel. Paxil and Trazadone from before. Painkillers as needed. Supplements include CystoProtek, DH Aloe, Colostrum.
PREVIOUS CONDITIONS: Sudden onset of double vision, Paxil Discontinuation Syndrome
01-07-2008, 02:42 AM #6
i've taken d-mannose powder by NOW brands (pure, good quality and way less expensive than other brands!) since june of 06. works very well, i take about 1-2 tbs a day and before/after sex (well...that hasn't happened in a long time sigh). but i love it and encourage anyone to try it! i think d-ribose powder will be next for my fibro.(Added by ICNMgrJill on 5/19/08. I am sad to share that Verdicries (aka Tracy) lost her life in a tragic accident just a few days ago. We will miss her support, her encouragement, her sense of humor and, of course, the joy that she found as a mother and wife).
Tracy ~ 29 years old with Toxoplasmosis (from birth), Fibro/CFS (since age 13...ouch), severe IC, IBS-D, severe PFD (surgery made it even worse), vulvodynia, hiatal hernia, GERD, ulcers, severe gastritis, numbness/tingling in extremeties, pelvic nerve damage--mainly urethral, urinary retention, pelvic reconstruction 7.10.07 (fixed rectocele, rectal prolapse, lifted bladder, urethra, uterus, and repaired vaginal walls), Raynaud's, 2 severely herniated discs in neck and one in low back, anemia, PCOS, anxiety/depression/panic attacks (since forever). Still having major bowel problems (inability to empty rectum...any ideas?? ).
I'd like to be on House, MD as a medical mystery.
Married to Craig, a saint amongst men...who puts up with me and my eccentricities...
Connor & Mommy by the tree:
Connor with Santa...so happy!
I take: LIQUID Atarax, Flomax, Soma (yet again), acidophilus, Glucosamine/Chondroitin with MSM & collagen, d-mannose. MAJOR flare from Cystoprotek! Re-trying freeze dried aloe vera w/some decent results!
Tried and failed: Elavil, Ultram, Prosed DS, Benadryl, Bentyl, Valium, Ativan, Zanaflex, Librax, Sanctura (all caused retention among other things), bladder instills (owwwwww!), Elmiron (allergic-throat tightening). Failed Interstim-no feeling in sacral nerves...
I'm allergic to penicillan, sulfa, reglan, quinolones, clindamycin, and now LATEX!
01-07-2008, 05:54 AM #7
- Join Date
- Feb 2007
- I live in Chicago IL
I have been taking Dmannose for about 6 months or so, and I still got an infection ( ecoli bacteria), which dmannose is suppose to prevent. So I am not having that much faith in it anymore. It may work well for someone with a normal healthy bladder, but it may not work for an already imflammed or irritated IC bladder.
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