Pain med sugestions

[Dora]

I have a call into my doctor to refill my prescription for the vicoprofin That really dosnt work unless I take 2 every 4 hours. I have noticed that alot of you take percocet and I was wondering of thats something I should ask him to try. I have tried all the different doses of vicodin and It works for 4 hours then nothing. I tried talwin and that was a joke after 2 days I was back to the old stand by Vicodin. I have a great Dr that wants to find something that works better for me. I get the refill or new prescription tomarrow so your sugestions would be great!
Thanks so much
Dora

[Claredale]

We can all say what works for us, but your doctor knows what meds you are on, so it wouldn't be safe or right for us to tell you what to ask for. What I always did was research the meds that I read about on here and then talk to my doctor. There are several different pain meds in the patient handbook that are listed on this site. That is a good place to start.

I hope that you find the pain med that works for your very soon!

Hugs,
Tracey

[Dora]

Thanks Tracy
My Dr always asks me how my pain meds are working and if I want to try something else , hes always ready to discuss it. The only pain meds I have had any experance with is the vicodin and vicoprofins except for the ER and I have no idea what they give me there. My Dr sugested the talwin and It did nothing but agravate it and me. Hes asked me about other pain meds before but I have been afraid to change even tho they dont work as well as they used to. I am in the process of reading the handbook for some ideas to throw at him in the morning. The percocet looks like one to try. I think at this point I will try just about anything. Honestly I am asking for sugestions so I can talk to him about it and seeing what is working for others gives me a starting point when he asks. I had no idea there was a hand book!!!!!! This is great and thanks for the advice Not only am I finding different medications but the ic information is wonderfull. I will say that this forum has been such a great sorce of info on a much more personal level. Its so over whelming to have this prognosis and its nice to talk to people who have this and understand. Its all still so new to me and I hardly ever know what to say or do. anyway thanks for listening and thanks for your help.

[BBB]

Dora,
The patient handbook by Dr. Moldwin explains the different types of narcotics for dealing with IC. Dr. Brookoff also has an article on this site about pain meds too!

I agree with everything Tracey said. It seems to me like Percoset is usually the next step after Vidodan. For what reason I don't know. It worked really well for me, however it made me the big "B". Too bad cuz it worked.

Please look under the handbook and articles and I think you will find helpful info. And, in my humble opinion please do ask him to try something different because if you aren't getting relief, your aren't getting relief.

You are fortunate to have a caring doc and you are right that now is the best time since it is refill time.
Good luck,
Betsy

[Michelle25]

I just wanted to say that its great that you have a great doctor that is willing to work with you. I'm on percoset at the moment due to having a laparscopy to look for Endometriosis,a couple weeks ago (luckily I don't have endo) but just to kinda give you a heads up - I believe it has codeine in it, and it might make you really nauseaus, at least it does with me, especially on an empty stomach, I find what works for me is to lightly snack while on it, most times I won't have to make a rush to the bathroom...

Just wanted to give you that as a tip if you've never taken it before, and I hope you find it helps.

Good Luck!

[ihurttoo]

I have taken Lortab and Vicoden in the past, and had the exact same problem as you are having with it. I am now on Percecet and have found it to work MUCH better!

One more thing you might want to research and discuss with him is B and O suppositories. (That stands for Belladonna and Opium.) Alot of ICers swear by them. They come in 2 strengths, 15A and 16A. (15A is the lesser strength.) These are a very old drug, and lots of Drs dont r/x them any more. But, several Drs still know about them. They are particularly useful for bladder conditions, b/c they are like a magic bullet that puts the medicine right on the pelvic floor, and it works much quicker than even a pill.

There's lots of great information about them in posts here, if you do a search on "B and O suppositories". Alot of other ICers are much more knowledgable about them than I am and have written about them in posts, and when you do the search you will find them.

Good luck at the Dr. tomorrow! I hope that you get your med switched and get something that helps you and brings you blessed relief!

Hugs,
Amy

[brandi28]

All my doctor will give me is ultram. It works good so far, but only been on it for a day.

brandi

[Claredale]

I hope that it will keep working. If it doen't be tough let your doctor know.

Hugs, Tracey

[Kiernan]

I am sorry for what you're going through. I think its great that you have a doctor that will communicate and discuss this issue of pain. I was diagnosed two years ago- and am still adjusting. I take vicodin for pain, valium for the spasms. I try to gauge pain- if its getting bad I start with one half- then take the other half- just so I am not taking too much. I also take 50mg of Amitriptyline at night which seems to help for pain. I don't know anyone that has IC except the people on this site. It has been a God send. Could someone tell me if they take pain med every day? I find that I may go several days- or a week, with no pain med, then it seems like I need it every day for a week- so frustrating. Good luck Dora

[hdb1982]

I take lortab 10mg 4 times a day. Just increased from 7.5mg 4 times per day. I have been on lortab for 1.5 years and percocet is my next step but I don't want to go there until I have to. So yes some of us must take pain meds daily to answer your question. hope this helps

[yarnia]

All I've taken as far as a general pain med was hydrocodone. It's works ok but now I'm taking urised as needed and am really finding it works well without making me drunk or sleepy.
I still have frequency but can function so much better without the pain. My doc prescribed it for me to take every day but I find I don't need it. I do think it makes me retain fluid a little - not bladder rentention but overall, like pms. So, I cut it back to the minimum to get by.
My IC is not severe. I can almost always sleep thru the night, only occasionally getting up in the night.
Heck, I'm not even 100% convinced that IC is my problem, but it may be part of the problem.

[Kiernan]

Thanks for your response. I wish I had someone to talk to near me, in a support group to ask all these questions, regarding pain etc. Thanks for all your responses. I feel better knowing I am not alone.

[Dora]

Heres my update,
My Dr said he didnt want to start me on percocet, went on to tell me how bad that drug is and how addicting it can be. I am on the vicoprofin 6 a day and he wants me to stay on that. He was upset that I even asked if percocet was an option. I am lucky hes willing to treat me and this was the first time hes ever been (irritated) is the only way I can discribe it. As if I was questioning his diagnosses and treatment. I told him I was getting information on different things people are doing for IC and I was just wondering if any of the things that work for them will work for me? Thats when he got pissy and said he knew how to treat me and I should leave it at that. So I will take my elmiron and my antidepressant and my vicopros and be thankfull I have it. In 3 months when I see him again face to face I will discuss his attitude, Maybe he just misunderstood or perhaps he has to big a ego to hear ideas that he didnt come up with. Anyway Thanks for this site and thanks for the advice and information.

[laura dove]

Dora,

Ibuprofin can be very irritating for some icers. Some, not all.
At some point you will probably build a tolerance to the opiate
in the vicoprofin. You asking him about a stronger medication
for your pain should not make him respond to you in such a
rude manner. Percocete is addicting, for some, as is any opiate based
pain med., including vicodan. There is a huge difference between
addiction and physical dependency. If your doctor knows anything
about pain managment, he would not of treated your inquest so
rudely. No one knows better about your pain than you. Most doctors
do not understand pain medications and how to manage them. The
incidence of addiction in chronic pain is very low, and it is very sad
that he does not know this, but it is very common. Sadly. My pain
doctor is an advocate as well as helping the DEA understand pain
managment by consulting for them. He would be furious by your
story. If your pain gets so that the meds you are now taking no
longer work, and he refuses to change meds, PLEASE see a pain
managment doctor. Your suffering should not be questioned or
worse, ignored.

[ihurttoo]

As I told you earlier, I had the EXACT same problem for a lONG time! (4 years to be exact!) This was with the Lortabs from my Gyno. He didnt usually give anyone pain meds either, so I felt lucky to get anything, and didnt want to rock the boat either! But, I was still hurting and they werent enough, and every now and then when I'd call, the nurse would tell me they wouldnt refill it that I had "just" had a refill 1 month ago of 30! (My only pain med at the time!) So, that was when I HAD to have what I know refer to as "The TALK" And the talk is what got me to the pain Dr. and that is what FINALLY got me adequate pain management! (MY GYN truly IS a wonderful caring man, and treats my IC compassionately, but he really, truly just doesnt know about pain meds and is honestly scared of them! So, know we have a WAY better relationship now that someone else handles that for him and me. In fact, we have a GREAT relationship now!) Anyway, here is the link for the word for word details of my talk with my Dr. (in case it ever comes to that for you!):

http://www.ic-network.com/forum/show...935#post228935

I hope this helps and I hope that you get pain relief very soon!

Hugs,
Amy