Latest Blog Article: Vaginal Mesh Sling Complications and IC?
Results 1 to 9 of 9
  1. #1
    IC Friend
    Join Date
    Nov 2007
    Posts
    1

    feels like my bladder is falling out

    I am new to this forum. Im excited about getting to talk to someone who shares in my pain. 5 years ago after my partial hysterectomy, I started having low cramps. (felt like something stuck in my vagina) I would also feel bladder spasms. Regular Doctor said they may have nicked my bladder. It just got worse. So I went to urologists. He did a scope and distension on me. Said I had mild IC. bladder half the size of normal. PUt me on Elmiron. Tried it for 3 months. No luck. By this time, I realized my diet could be the cause. I changed drastically my eating habits. Helped alot. No sugar and no acid drinks. Anyway for about 1 year, little or no pain. Then, WHAM. It started again. Have had quite a few infections in the past 3 years. Yeast mostly. 3 weeks ago, I started hurting real bad. Went to the ER with alot of blood and puss in urine. It was dark red. Looked like wine. SCARY. put me on macrobid. 2 days later, my back started hurting. Went to regular doc, said it was kidney infection. Did a culture. NO BLood or puss anymore, but alot of pain. Finally went to urologists(a different one then the first.) He said the dark blood one day and then 2 days later no blood was puzzling. Did a complete CAT scan. no results yet. Heres my confusion. I have real low pressure pain. Feels like my lower half is going to fall out. or like something is stuck in my vagina. I burn when i pee, my bladder has some spasms. All the medicines like pyridum and urastat make me real sick. I am going to the bathroom more often, but Doc doesnt think I have IC. The pain is worse as the day goes on. My mom says it might be a prolapsed bladder, but I dont feel any lump in my vagina when I feel up there. Im real puzzled. Has anyone had these symtoms. I go back to Doc on the 20th. I need all the info I can get before I see him again. Sorry its so long. Look forward to hearing from someone. God Bless.

    godlives38

  2. #2
    Support Volunteer leelee88's Avatar
    Join Date
    Nov 2006
    Location
    Louisiana
    Posts
    8,900
    Hello and

    When I am in a bad flare I have burning and the feeling also that my bladder is swollen and I have alot of pressure and it does feel like I could push my bladder out. My URO said this was just a part of IC.

    Luckily though the Elmiron is working for me along with my other meds and I have not had a severe flare like that in a while..With the symptoms you said you have and you said you had already been Dx with IC by another Dr. I don't understand why this other Dr would not think you have IC..My suggestion would be to go get a second opinion..There is meds out there that can help you..Hope you start feeling better soon..
    Hugs
    Ronda

    ONE Second, ONE Bite, ONE Breath, ONE Pill, ONE Minute, ONE Teardrop, ONE Hour, ONE Sip.. ONE DAY! I will Prevail from this disease! IC Hoping for a Cure!


    Link to Patient Handbook:
    http://www.ic-network.com/handbook/

    Diet Reference Sheet:
    http://www.ic-network.com/diet/icndi...tsheet0909.pdf

    Meds For IC: Lyrica-25mg Glucosamine-500 MSM-500mg, Prosed Ds -When Flaring

    Other Meds: Levlite- Continious Birtcontrol, Micardis-40mg for High Blood Pressure

    Meds I have Tried:
    Topamax,Tofranil, Elmiron, Atarax, Cymbalta, Elavil, Enablex, Detral La, Prydium.
    Lexapro< Bad reaction to this med!
    Intstills, could not continue them due to some kind of reaction after 3rd instill. Tasted the lidocaine in my mouth, tongue and lips went numb then went into what seemed like a panic attack. Shaking, racing heart, tingling face/head, blood pressure shot up..

    Dx With IC in Nov 2006 with Hydro/Cysto
    Hydro/Cysto Caused Bladder to Rupture.

    Other Dxs-Vulvodynia,Fibro, Endo, IBS, HPV, Migraines, Spastic Colon, Mild Dysplasia.



    ICN Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

  3. #3
    Angel watching over us verdicries's Avatar
    Join Date
    Nov 2006
    Location
    A bathroom in Monmouth County, NJ
    Posts
    469
    godlives and welcome to icn.

    a lot of women get that heavy bladder feeling and that CAN be a part of ic. HOWEVER-i read that you had a partial hysterectomy and THAT can cause the other organs (bladder, urethra) to drop. if it feels like something is stitting, stuck in your vagina, PLEASE go have it looked @. can YOU see anything? when i had my prolapse it was pretty darn clear (i went to the bathroom and could see my insides!). even still, pls see a doc about this if it continues. i don't want anyone to go thru the hell i went thru! your mom is right, it does sound like prolapse.

    i too have bladder/urethral spasms and they are HORRIBLE, to the point of retention. pyridium helps somewhat with this. heat also helps too. i want a full body heating pad lol.

    let us know how it goes!

    tracy
    (Added by ICNMgrJill on 5/19/08. I am sad to share that Verdicries (aka Tracy) lost her life in a tragic accident just a few days ago. We will miss her support, her encouragement, her sense of humor and, of course, the joy that she found as a mother and wife).

    Tracy ~ 29 years old with Toxoplasmosis (from birth), Fibro/CFS (since age 13...ouch), severe IC, IBS-D, severe PFD (surgery made it even worse), vulvodynia, hiatal hernia, GERD, ulcers, severe gastritis, numbness/tingling in extremeties, pelvic nerve damage--mainly urethral, urinary retention, pelvic reconstruction 7.10.07 (fixed rectocele, rectal prolapse, lifted bladder, urethra, uterus, and repaired vaginal walls), Raynaud's, 2 severely herniated discs in neck and one in low back, anemia, PCOS, anxiety/depression/panic attacks (since forever). Still having major bowel problems (inability to empty rectum...any ideas?? ).

    I'd like to be on House, MD as a medical mystery.

    Married to Craig, a saint amongst men...who puts up with me and my eccentricities...

    Connor & Mommy by the tree:


    Connor with Santa...so happy!


    I take: LIQUID Atarax, Flomax, Soma (yet again), acidophilus, Glucosamine/Chondroitin with MSM & collagen, d-mannose. MAJOR flare from Cystoprotek! Re-trying freeze dried aloe vera w/some decent results!

    Tried and failed: Elavil, Ultram, Prosed DS, Benadryl, Bentyl, Valium, Ativan, Zanaflex, Librax, Sanctura (all caused retention among other things), bladder instills (owwwwww!), Elmiron (allergic-throat tightening). Failed Interstim-no feeling in sacral nerves...

    I'm allergic to penicillan, sulfa, reglan, quinolones, clindamycin, and now LATEX!

  4. #4
    ICN Member GriffsMommy's Avatar
    Join Date
    Nov 2006
    Location
    Lancaster, PA
    Posts
    3,494
    When I'm feeling really bad which is more and more lately I feel like I'm going to break in half right at the middle from my pelvis straight through to my back. I did feel like my bladder was going to fall out when I had my period the last time which is why I'm trying to avoid it at all costs. My new dr told me that I have pretty severe PFD (pelvic floor dysfunction) which has a lot to do with my pain at this point and really things my endo is having something to do with the totally horrible periods. Maybe they are trying to make sure you don't have something else going on because from what I've found if you have IC you tend to have other problems as well, it seems to be pretty rare for a person to just have one thing wrong with them as I guess that would be too easy. I hope you feel better soon
    Christine



    I have been diagnoised for 6 1/2 years now. I have taken a long break from the ICN but really miss helping out my fellow IC patients and want to get back into posting.
    1st hydro 4/07 showed no visible signs of IC but tons of mast cells in all my biopsy samples which did prove IC.
    2nd hydro 4/13/09 showed dark purple glomerulations and I had a capacity of 450 cc's. This hydro proved that my IC had progressed.
    I have tried every oral medication as well as rescue instills and DMSO.

    I have been lucky enough to see Dr Hanno, the top IC specialist in PA who has told me due to the fact that I have not responded to any "standard" treatments that I have a severe, end stage case of IC with a horrible quality of life (didn't have to tell me that last part!)

    Proud wifey of Shane, mommy to Griffin, and step-mom to Logan and Gage
    Also proud mom to the best Bullmastiff on earth, Claus

  5. #5
    Forum Manager ICNDonna's Avatar
    Join Date
    Mar 2000
    Location
    Oregon
    Posts
    36,021
    It's not unusual for someone with IC to feel like our bodies are trying to expel our bladders. When I have bladder spasms it feels like that --- others have described the feeling as being like trying to give birth to a bladder.

    I think it's good that you're working with a doctor towards diagnosis. Be sure the mention this feeling when you see your doctor.

    Donna
    Have you checked the ICN Shop?
    http://www.icnsales.com for US & Canada
    http://www.icnshop.com for all others

    Patient Help: http://www.ic-network.com/patientlinks.html

    Diet list: https://www.ic-network.com/patient-r...on/#icfoodlist

    You'll find my story at: http://www.ic-network.com/conditions...tories/page/6/

    I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

    Anyone who says something is foolproof hasn't met a determined fool
    .....My Meggie.....

  6. #6
    Angel watching over us
    Join Date
    Mar 2004
    Location
    Viera, Florida
    Posts
    4,325
    Ditto what Donna suggested but I also wanted to add I have a prolapsed bladder and mine often feels like it is falling out.

    Hugs,
    Barb
    (Babs passed away in April 2009. We honor her memory and remember her fondly. - Jill O. ICN President & Founder)

    [SIZE="1"]Proud mama of a gift named Lindsey who taught me through her autism what is important in life:angel:
    :angel: IC Angel Volunteer Coordinator :angel:
    :) Contact me via PM or e-mail if you would like to help
    I have learned all about life in 3 words: It goes on! :D--Robert Frost
    PCOS 7/85
    RSD 7/94 :headbang:
    Endometriosis 9/98 :toilet:
    Antiphospholipid antibody syndrome 9/99
    Kidney stones--too many to count
    Factor V Leiden mutation 10/02
    IC 6/03 :evilsmile
    Deep Venous Thrombosis and Cellulitis 12/05 :loco: DVT and Greenfield Placed 3/14/08
    "Spirit is an invisible force made visible in all of life"--Maya Angelou
    "Ohana means family--no one gets left behind or forgotten." Stitch[/SIZE][/SIZE][/SIZE]

  7. #7
    ICN Member dg2901's Avatar
    Join Date
    Sep 2004
    Location
    east coast, USA
    Posts
    4,320
    Sounds like prolapse.
    Hopefully your Dr will be able to figure out whats causing your symptoms very soon!

    Feel better......
    Diana

  8. #8
    ICN Member lisabar36's Avatar
    Join Date
    Nov 2007
    Location
    Pennsylvania
    Posts
    2,023
    That is how I always describe my bladder to the doctor, I say it feels like its going to fall out, but I don't have a prolapse and I have IC, I also have severe PFD. Good luck!
    Lisa
    Current meds:Elavil, Lortab as needed, Vivelle dot hormone patch 0.1mg, estrace cream, lidocaine ointment, pepcid
    Diagnosis: IC in 1999 , IBS, Pelvic floor dysfunction, vulvodynia, vestibulitis, chronic low back pain, scoliosis, hunners ulcers on bladder, hysterectomy 2/08, fibro 3/08, sciataca


    Me and my girls, my son, me and my wonderful fiance, and our puppy Miley (who loves to cuddle).

  9. #9
    ICN Member mom_in_ma's Avatar
    Join Date
    May 2004
    Location
    Massachusetts
    Posts
    1,001
    I don't get that kind of flare often, but when it does happen it's miserable. In fact, it happened yesterday (not quite sure whey - either walking or hormones) and if felt just like my body was trying to expel or give birth to my bladder. Pyridum, xanax and a heating pad helpd.
    mom_in_ma

Thread Information

Users Browsing this Thread

There are currently 1 users browsing this thread. (0 members and 1 guests)

Similar Threads

  1. Hysterectomy and IC
    By icnmgrjill in forum The Latest IC, BPS & Pelvic Pain Research
    Replies: 13
    Last Post: 08-02-2010, 03:34 AM
  2. Overactive bladder or IC? (Long)
    By faith4jesus in forum Not Diagnosed Yet with Interstitial Cystitis?
    Replies: 5
    Last Post: 08-07-2006, 04:40 PM
  3. Feel like bladder is falling OUT!!
    By misscola in forum Help! I'm in an interstitial cystitis flare!
    Replies: 12
    Last Post: 03-04-2006, 10:45 AM
  4. Replies: 4
    Last Post: 04-10-2003, 02:52 AM
  5. Replies: 2
    Last Post: 03-05-2003, 06:56 AM

Bookmarks

Posting Permissions

  • You may not post new threads
  • You may not post replies
  • You may not post attachments
  • You may not edit your posts
  •