Results from Cysto negative for IC,dx: Pelvic Pain Syndrome

**Tracie** · 11-06-2007, 06:12 AM

Hello everyone.
Well, test says I don't have IC. Uro says Pelvic Pain Syndrome. All my pain is urethal and sometimes clitoral. 4 weeks ago my pain level was a 10 but now it can be as low as a 5. While under for the Cysto. , she also did Trigger Point injections in my left and right Levitar Ani muscles. She said they were really tight and tender. When she examined them last month I almost jumped off the table in crazy pain. This explains the pain I feel in the very begining of intercourse. It has only been 2 weeks since these injections and I have not had sex yet since. (scared maybe?)My husband is very understanding on this.

My mornings are still uncomfortable, but managable. I have finally learned how to relax with the pain. Before I would just freak out and cry.

Uro says to stay on the Elavil, ( I am really new to this medicine, and think it is helping) Macro Datin, and I was percribed a medicine a little stronger than Cystospaz called Levsin. The dry mouth thing doesn't even bother me anymore. And Pyridium when needed. Getting use to orange underwear also!

I think I am going to try the IC diet anyway. And from now on I am only going to drink water. I am still going to visit this site, because it is full of wonderful people and positive and comforting advice.
Thanks so much for everything!

Tracie

**leelee88** · 11-06-2007, 07:01 AM

Tracie,

Glad its not IC.. And I am glad you are staying around

If you ever need anything just let us know..

***SharonA*** · 11-06-2007, 07:13 AM

It is good that you do not have IC. I am also glad to learn that your pain level is lower.

**lan** · 11-06-2007, 10:57 AM

Hi Tracie,
I am glad to hear that you are feeling a little better. It sounds like the symptoms and treatments for Pelvic Pain Syndrome are very similar to the symptoms and treatments for IC so I am glad that you are going to continue to join us on this network. Since the diagnostic tools for IC are far from perfect there is probably a thin/fuzzy line between diagnosing someone with IC vs. Pelvic Pain Syndrome. As a matter of fact, many doctors believe that the term IC should be changed to Painful Bladder Syndrome because there is not a single known cause for the condition. All that being said, it sounds like very good news to hear that your bladder looks to be in good condition. So I am very glad to hear that your bladder looks good and I hope that you continue to feel even better and that you continue to join us here to discuss our symptoms and treatments. Wishing you well...Linda