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  1. #1
    ICN Member
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    Feb 2006
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    Richmond VA
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    Recovery time from hydrodistention?

    I had my 3rd cysto/hydrodistention last Friday, and am curious about the typical recovery time. During this procedure, there were (3) places that the surgeon burned off ulcers where it was bleeding. From the pictures, there were lots of red spots and areas that looked almost like skin w/rug burn.
    So far, it's taking me a while to get any energy back, and I still have moderate pain. I want to go back to work soon, but until yesterday, was barely able to get out of bed for more than a few minutes at a time. Each day is a little better. I was wondering what others had experienced after this procedure. Thanks!
    Sugar

  2. #2
    ICN Member GriffsMommy's Avatar
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    I had mine done on a Wednesday and didn't go back to work until the following Tuesday so it was almost a full week and I didn't even have any ulcers removed. I know I had no energy either and I think that was my body trying to heal my bladder. I wouldn't push it though because if you do it will probably take you longer to heal than if you had just given your body the needed time to get better. I actually tried to go back to work on Monday but I was about to walk out the door and realized the process of getting ready for work had worn me out and I called work and took that extra day and I'm so glad I did. I hope you start to feel better soon.
    Christine



    I have been diagnoised for 6 1/2 years now. I have taken a long break from the ICN but really miss helping out my fellow IC patients and want to get back into posting.
    1st hydro 4/07 showed no visible signs of IC but tons of mast cells in all my biopsy samples which did prove IC.
    2nd hydro 4/13/09 showed dark purple glomerulations and I had a capacity of 450 cc's. This hydro proved that my IC had progressed.
    I have tried every oral medication as well as rescue instills and DMSO.

    I have been lucky enough to see Dr Hanno, the top IC specialist in PA who has told me due to the fact that I have not responded to any "standard" treatments that I have a severe, end stage case of IC with a horrible quality of life (didn't have to tell me that last part!)

    Proud wifey of Shane, mommy to Griffin, and step-mom to Logan and Gage
    Also proud mom to the best Bullmastiff on earth, Claus

  3. #3
    IC Friend
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    Oct 2007
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    I had my first one a year ago and it took me about 5-6 days to get back up and moving around. I am having my second one next Tuesday, so hopefully there are no problems!!

  4. #4
    ICN Member mary124's Avatar
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    Jan 2003
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    Hutto, Texas (30 miles or so outside of Austin)
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    I usually have mine on a Thursday and I can go back to work on Monday. The last one I had on Friday, even that I was able to go back on Monday. But we are all different-some people it takes a few days longer.

  5. #5
    ICN Member sickofmybladder's Avatar
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    Aug 2007
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    North Carolina
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    I had mine on a Thursday and did not go back to work until a week from the following Monday - but probably could have gone back by Wednesday of the next week - but I'm glad I gave myself plenty of time - the exhaustion was amazing.

    Hope you feel better soon -

    DX IC Aug 2007 -DX PFD July 2007
    Severe Allergies since 18 months old
    Meds:Aterax 25 mg @ night (only during allergy season - now)
    Valium 2.5 to 5 mg 2x per day for PFD
    Elavil 50 mg @ night
    Bladder Instillations (at home) 3x per week -
    My recipe is: Lidocaine, Heparin and Sodium Bicarb
    _____________________________________________
    Meds I could not tolerate: Elmiron and Lyrica

  6. #6
    IC Friend LiquidFlame's Avatar
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    I had my procedure on Monday, Oct. 29 2007. It was my second cystoscopy with hydrodistention but the first under general anesthesia. No ulcers were found and no biopsy was taken. Immediately after the procedure I was offered either morphine or another pain drug. I choose the latter. When I went home I took phenazopyridine as prescribed. I was prescribed Tylenol with codeine but choose not to take it as I donít like the side effects and didnít think my level of pain warranted it. I kept it on hand just in case, though. I stayed home from work on Tuesday. I was exhausted and slept on and off throughout the day. I returned to my office job on Wednesday. My painful bladder syndrome symptoms have increased markedly as a result of the cysto/hydro. It is now 6 days since the procedure and I still am experiencing almost constant burning and I almost always feel a need to urinate.

  7. #7
    Forum Manager ICNDonna's Avatar
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    When I was working we would schedule me for early in the week and I would return to work the following Monday --- a little tired, but okay.

    Donna
    Have you checked the ICN Shop?
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    You'll find my story at: http://www.ic-network.com/conditions...tories/page/6/

    I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

    Anyone who says something is foolproof hasn't met a determined fool
    .....My Meggie.....

  8. #8
    IC Friend
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    Well it took me nearly four months to recover, and that was from just a simple flexible without distention. I could barely walk for the pain for weeks and weeks.

    It ended up leaving me with more symptoms then before, and since then I've refused to have another.

    I didn't even have a biopsy taken either, so I dread to think how I'd been if I had.

  9. #9
    Support Leader kadi's Avatar
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    I had mine on a Wednesday afternoon & went back to work the following Monday. Within 2 days I was back to my previous level of symptoms (before the procedure).
    Kadi

    -------------------------------------------------------------
    I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
    ------------------------------------------------------


    New favorite quote: "God gives us only what we can handle. Apparently God thinks I'm a bad-ass" ~Author Unknown
    Source - Pinterest
    "


    Current treatments:
    -IC diet
    -Elavil 60mg at night
    -Continuous use birth control pills (4-5 periods/year)
    -Heparin/Marcaine/Sodium Bicarb home instills every morning and night
    -Pyridium if needed,
    -Pain medicine at bedtime daily, as needed during the day several times per week
    -Antibiotic to prevent UTI infections from 2x daily catheter use
    -Colace & Senna to treat chronic constipation from meds
    -Dye Free Benadryl 50 mg at bedtime
    -"Your Pace Yoga: Relieving Pelvic Pain" dvd, walking, treadmill at gym
    -Managing stress= VERY important!
    -Fur therapy: Hugging the cat!

  10. #10
    ICN Member donnadb40's Avatar
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    Dec 2005
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    Arkansas
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    Longer Every Time

    My recovery time seems to get longer with each hydro. The first one, I was up and running within a week.. The last one, my 4th, it took me almost 6 weeks to get back to "normal"! However, that said, I would do it again tomorrow because it helps my pain level for approximately 10-11 months which anyone with IC knows is a blessing!
    Hugs
    Donna

  11. #11
    ICN Member Dreamlove15's Avatar
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    It's day 7 and I am still in a whole lot of pain. I decided to pick up the rest of my Urispas script and it has helped relax me a bit more. Pyridium was didnt work for me, made the burning HORRIBLE!!! Hopefully relief is on its way for me and you. Good luck with your recovery!.

  12. #12
    IC Friend LiquidFlame's Avatar
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    It took 3 weeks after the procedure for my IC symptoms to return to what they had been.

  13. #13
    ICN Member Dreamlove15's Avatar
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    I had mine done on Nov14th and im still recovering due to a serious infection I developed afterwards. Good luck tho

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