Thread: Hello everyone
10-30-2007, 03:47 PM #1
Hello friends , I came across this site the other night while in a flare and could not sleep due to the pain and burning. I am 29 and a mom of two kids ages 8 and 7, girl and boy. Im happily married and live in Oregon. I was diagnosed when I was 16 after constantly going in for UTI's. They did a cystoscopy and said I was actually bleeding inside my bladder. OUCH! I've always had a fairly easy time with my IC and could control it with just diet and lots of water. Usually when I had a flare I could just take some Uristat, drink lots of water and the next day I would be fine. well lately it hasn't been quite so easy. Ive made an appointment with my Urologist but can't get in until next month. Luckily my hubby has some leftover Vocodin from his tooth pull and it is helping the pain. My question is does IC get worse over time? I have never had to take strong pain meds for this in the past, Ive never had this much pain in the past. My flare began after sex with my husband and then I was stupid enough to have a diet soda which I rarely do. I have a very healthy diet with very little junk food. I eat mostly meat, veggies and fruit. I usually only drink water and do not drink coffee. If I need caffeine I drink green tea which I now know is a no no. Well anyway, thats my story. I am glad to be here with others who understand and can help
Last edited by triscuitwafer; 10-30-2007 at 04:07 PM.Katrina, 32 year old mom of 2
10-30-2007, 04:02 PM #2
Hello and to the ICN...
Heres the link to the ICN Patient Handbook.. It has a lot of good info in it..
ONE Second, ONE Bite, ONE Breath, ONE Pill, ONE Minute, ONE Teardrop, ONE Hour, ONE Sip.. ONE DAY! I will Prevail from this disease! IC Hoping for a Cure!
Link to Patient Handbook:
Diet Reference Sheet:
Meds For IC: Lyrica-25mg Glucosamine-500 MSM-500mg, Prosed Ds -When Flaring
Other Meds: Levlite- Continious Birtcontrol, Micardis-40mg for High Blood Pressure
Meds I have Tried:
Topamax,Tofranil, Elmiron, Atarax, Cymbalta, Elavil, Enablex, Detral La, Prydium.
Lexapro< Bad reaction to this med!
Intstills, could not continue them due to some kind of reaction after 3rd instill. Tasted the lidocaine in my mouth, tongue and lips went numb then went into what seemed like a panic attack. Shaking, racing heart, tingling face/head, blood pressure shot up..
Dx With IC in Nov 2006 with Hydro/Cysto
Hydro/Cysto Caused Bladder to Rupture.
Other Dxs-Vulvodynia,Fibro, Endo, IBS, HPV, Migraines, Spastic Colon, Mild Dysplasia.
ICN Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
10-30-2007, 04:44 PM #3
Welcome aboard. I'm sorry you're feeling bad. IC is not specifically a progressive disease, but it can be better or worse at different times in our lives. There's every reason to hope that this is just a flare-up and will respond to treatment. Let us know what happens.Je vous souhaite de la joie, de la bonne santée, et tout ce qu'il y a de bon dans la vie.
Wishing you happiness and good health, and all the best out of life.
Laura (11), Susannah (12 1/2) and Maman (that's me!), North Wildwood NJ, September 2007
10-31-2007, 03:13 AM #4
to the IC Network. I'm glad you found us. Where do you live in Oregon? I'm in the country outside of Eugene.
I'm thinking the diet soda would be enough to cause a flare. If that's it, the flare may go away within a few days.
Sending healing thoughts,
DonnaHave you checked the ICN Shop?
http://www.icnsales.com for US & Canada
http://www.icnshop.com for all others
Patient Help: http://www.ic-network.com/patientlinks.html
Diet list: http://www.ic-network.com/diet/2009icdietlist.pdf
You'll find my story at: http://www.ic-network.com/patientstories/donna.html
I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
Anyone who says something is foolproof hasn't met a determined fool
10-31-2007, 01:44 PM #5
I live just outside of Portland Thanks for the healing thoughts. Went to the doc today since Im still hurting and she gave me antibiotics just in case of infection. Don't really like taking them If Im not sure but I don't want to be in pain anymore either. Does IC pain usually worsen at night? Im ok during the day but at night I can barely walk.Katrina, 32 year old mom of 2
11-01-2007, 03:56 AM #6
My pain use to be at night, now its in the morning. It is really hard for me to determine when my flares will come.
Users Browsing this Thread
There are currently 1 users browsing this thread. (0 members and 1 guests)