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  1. #1
    ICN Member Tinkerbell23's Avatar
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    Angry lupron shots for endo causing serious hair loss!!

    Is anyone currently taking or has anyone taken lupron shots for endometriosis? this is making my hair fall out like crazy! i finally got my hair to grow in thick because i had issues when i was younger, now i start these obnoxious shots and its falling out all over again! i'm not doing this if its going to continue. nothing in the info i was given listed hair loss as a side effect, but once i searched in on the internet i found all this info. people actually have law suits against the drug company! has anyone taken these shots? and if so what side effects did you experience? thanks!
    -Jenn

  2. #2
    ICN Member zanne's Avatar
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    I just got my 3rd Lupron shot, not having a problem with hairloss. Are you on any other medications that would cause hair loss, I know Elmiron may cause hair loss. The only thing I have gotten from Lupron is hot flashes and swollen breasts. It really hasn't helped my endo, this is going to be my last shot and I will probably be considering the surgery. It also makes me very moody.
    Sue

  3. #3
    ICN Member Tinkerbell23's Avatar
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    my dr said hair loss was common...who knows. i just had my second shot, hasnt helped anything yet. i get moody, depressed, emotional....i wish my dr had told me more...i dont think i would have done this...thanks for the reply.

  4. #4
    IC Friend
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    I was on Lupron for a bit and these were my symptoms:

    Weight gain (30lbs in 3 months)
    Hot flashes
    Night sweats
    Increased bleeding (I bled for 6 weeks straight at one point)
    Increased/worsened pain (worst pain in my life!)
    Severe anemia from heavy bleeding
    High cholesterol
    Hair loss
    Sleep problems

    It’s been more than 18 months since I stopped the drug and I’m just now getting over the side effects. Just a couple months ago the bald spots on the front of my head started filling in. I looked like I had a receding hairline!
    Last edited by ICNDonna; 12-06-2007 at 12:19 PM. Reason: Negative statements about a specific company (legal issue).
    Allison

    Allergies (Claritin)
    Anemia (iron supplement)
    Asthma (albuterol inhaler)
    Bilateral hearing loss (hearing aids)
    Chronic migraines (amitryptiline, midrin, special diet)
    Chronic rhinitis and sinusitis
    Endometriosis – stage IV (lapex surgery done by specialist 3/07; now pain- and symptom-free!)
    Other treatments tried: surgery, 13 birth controls, Lupron (poison! ), and Depot Provera (the worst thing my body’s ever gone through! )
    Interstitial Cystitis (Elmiron, Tramadol, Darvocet, IC diet)
    Knee problems (ballet-related injury – no diagnosis 10 years later)
    Scoliosis (>10 years of chiropractic treatment – none currently)
    Seizure (4/03)
    Surgeries: 6/95 – maxillo-facial surgery to realign jaw; currently have 8 screws in jaw
    2/06 – laparoscopy with excision of endometriosis and ovarian cyst, appendectomy, hysteroscopy, D&C, removal of uterine polyp
    3/07 – laparoscopy with excision of endometriosis, hysteroscopy, cystoscopy, hydrodistention, insertion of stent in ureter

  5. #5
    ICN Member Claredale's Avatar
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    I don't know if it will help, but when I lost over half of my hair due to Elmiron and the pain and stress from dealing with IC, I took Fish oil, magnesium and Zinc supplements. I also used Nioxin shampoo treatment which you can find at most salons. The last thing I started using which worked really great was Flaxseed. I still take these supplements, just not the shampoo anymore since my doctor said that they are good to take anyway. My hair stylist is who recommended the Flaxseed. She said that it had helped alot of her clients dealing with chemo.

    Tracey

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