10-11-2007, 11:18 AM #1
Chicago Newspaper Features Story About IC
(We say THANK YOU to the Daily Herald for covering IC and for patient Barbara Zarnikow for telling her story so well!! Bravo!! - Jill )
40 bathroom trips a day?
For people with interstitial cystitis, it's the only way they can get relief from unrelenting pain
By Susan Stevens | Daily Herald Staff
Halfway into her 20-minute commute to Deerfield, Barbara Zarnikow of Buffalo Grove would stop at a hotel to use the restroom. On road trips, her husband knew to pull off at every rest stop. Seeing a concert meant standing in the back, where she could slip into the restroom several times without disturbing everyone.
Zarnikow wasn't incontinent. She was in constant, visceral pain, pain she could relieve only by emptying her bladder.
"It's like having broken glass inside you," she said.
Read the full article here!
http://www.dailyherald.com/story/?id=51663&src=120Would you like to talk with someone about your IC struggles? The ICN now offers personal coaching sessions that include myself, Julie Beyer RD on the diet and Diana Brady CNC on alternative medicines. http://www.icnsales.com/icn-personal-coaching/
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Please remember that the information on the ICN is provided with the understanding that ICN, its founder, staff, volunteers, and participants are not engaged in rendering medical or professional medical services. We cannot and do not give medical advice. Only your personal physician can do this for you.
10-12-2007, 01:36 AM #2
thanks jill and jen74 for posting this. i've actually posted it on my blog in the hopes that others will read it and TRY to understand...
...i void anywhere from 50-70x/day and bet. 8-10x @nite. blah.(Added by ICNMgrJill on 5/19/08. I am sad to share that Verdicries (aka Tracy) lost her life in a tragic accident just a few days ago. We will miss her support, her encouragement, her sense of humor and, of course, the joy that she found as a mother and wife).
Tracy ~ 29 years old with Toxoplasmosis (from birth), Fibro/CFS (since age 13...ouch), severe IC, IBS-D, severe PFD (surgery made it even worse), vulvodynia, hiatal hernia, GERD, ulcers, severe gastritis, numbness/tingling in extremeties, pelvic nerve damage--mainly urethral, urinary retention, pelvic reconstruction 7.10.07 (fixed rectocele, rectal prolapse, lifted bladder, urethra, uterus, and repaired vaginal walls), Raynaud's, 2 severely herniated discs in neck and one in low back, anemia, PCOS, anxiety/depression/panic attacks (since forever). Still having major bowel problems (inability to empty rectum...any ideas?? ).
I'd like to be on House, MD as a medical mystery.
Married to Craig, a saint amongst men...who puts up with me and my eccentricities...
Connor & Mommy by the tree:
Connor with Santa...so happy!
I take: LIQUID Atarax, Flomax, Soma (yet again), acidophilus, Glucosamine/Chondroitin with MSM & collagen, d-mannose. MAJOR flare from Cystoprotek! Re-trying freeze dried aloe vera w/some decent results!
Tried and failed: Elavil, Ultram, Prosed DS, Benadryl, Bentyl, Valium, Ativan, Zanaflex, Librax, Sanctura (all caused retention among other things), bladder instills (owwwwww!), Elmiron (allergic-throat tightening). Failed Interstim-no feeling in sacral nerves...
I'm allergic to penicillan, sulfa, reglan, quinolones, clindamycin, and now LATEX!
10-12-2007, 06:24 AM #3
It's a really good article. Thank you for posting the link.
DonnaHave you checked the ICN Shop?
http://www.icnsales.com for US & Canada
http://www.icnshop.com for all others
Patient Help: http://www.ic-network.com/patientlinks.html
Diet list: http://www.ic-network.com/diet/2009icdietlist.pdf
You'll find my story at: http://www.ic-network.com/patientstories/donna.html
I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
Anyone who says something is foolproof hasn't met a determined fool
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