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  1. #1
    ICN Member stacyY's Avatar
    Join Date
    May 2006
    Location
    michigan
    Posts
    184

    Are these common PFD pains?

    HI Everyone;
    I just have a quick question. My doctors i have seen ob's up the wazzooo...they say yesi have PFD... BUt I am tryin to learn more about it. And I am trying to tell the differance from My IC and the PFD... and if one is hurting seems the other is hurting also.
    I am in pain now. which is why i am haveing this in my head now. BEsides the tight vaginal muscles, rectral muscles, I have always for me seems to be the last 14 years now,on my Right hip, and if i put my hand on my hip and wrap it twords my bellybutton this whole area hurts and achs so bad. Its a horrible aching that nothing takes away this pain. hurts to wear clothing, or to press on it.then it hurts reall bad also in my groin area also.
    This early afternoon, I had some sharp shooting pains in my bladder, well maybe it wasnt bladder, maybe it was deep vaginal pains,
    Then tonight about 9, i decided to jsut run to the store really quick, and wasnt there more then 15 mins. I really felt the pain then. just walking i was limping around the store with sharp pains on my side and lower back.
    Are these all common things for you all also with PFD, or is it more caused from the IC.. I am so confused now a days. I have so many abnormal problems, that even the doctors cant figure out which is which.
    WHen i saw the Ob/gyn specilist at University of Michigan hopsital, one question was, would a hysterectomy help. She flat out said I had to many abdominal probolems and it is hard to tell where all the pain is coming from, so doing a hysterectomy probably wouldnt help and might make matters worse. If doctors cant figure me out I like to know how i am suposed to.
    But I am wondering how other PFD patients feel and if my pains are simulare to yours. it would makes some since to me if it did.
    And if any of you have the horriblke deep aching pain, how do you manage to get ride of it??? Mine seems to just last and last till it runs it course. And no matter what pain pills i take, how i sit, lay down, not wear clothing, heat, ice, it just wont go away. this is the most horrible pain i swear. it just keep spreading in my back and up my side.
    If anyone has any advice.. i love to hear it...I take anything you got
    thanks take care
    stacy


    Current Conditions:
    Endometriosis,1995
    IC,Feb 06
    IBS-C

    Prenecious Anemia
    Stomach Ulcers
    Duodenitis
    Acid Reflux
    Low Blood Sugar
    Hypothyroid
    Migrains

    Surgeries
    Laporoscopy-1995
    Gaul Bladder-1996
    Laporoscopy-2005
    colonoscopy2005
    cysto/hydro-2006
    cysto/hydro-2007

    endoscope-2007

    Meds:
    Elmiron,100mg 2am 2pm
    Seasonique,1 night(helps control pain for Endo)Provera, 10mg 1 night
    Elavil, 150 1pm
    Flexeril, 10mg 1 night(was to be 1 am also but makes me to sleepy)
    Prilosec,20mg 1am 1pm
    Zoloft,100mg 1 pm
    Topamax 25mg 1am 2pmCyannobalamin(b12), 1 injection every 2 weeks
    Reglan, 10mg, 1 3xday with meals-for duonditis
    Ultram 50mg 1 every 4hrs as needed for pain
    Pyridim,100mg as needed
    Vicodin 5/500 as needed for pain
    Heating pad
    Ice Pack
    Arthritis Pain Equate brand 650mg usualy 2 at a time
    Stool softeners w/stimuli, 2am 2pm[/COLOR]

    Hopefuly no more gets added to the list!!!

    I wish the best for all of you and hope the days with pain are few. I wish you peace and calmness... for we all need it, with out it... the pain is worse.
    Try to take the best care of you that you can. When you are not happy with the care you get dont hesitate to get the help you need. Sometimes a 2nd opinion can give the calm and peace which you are seeking.
    My prays go to all of you. For I know there are many who are have many bad days and need a shoulder.. Always remember this site, for its made a huge differance to me and many people. Here you can find the the ear your looking for when you just need to vent.
    When your not looking for Im so sorry and I have no idea what can help you. Here we understand the pains the suffereing and most of all the Constant frustration. For anyone who needs it.. I will do my best to be the ear who can listen and help how ever I can. All my best to all of you.
    Dont forget to take care of you!
    Take care

  2. #2
    ICN Member Kirs10's Avatar
    Join Date
    Apr 2006
    Location
    Exeter, Maine
    Posts
    433

    Hope this helps.............

    I was looking some things up on the internet and I came across this and it seems to be just what you were wondering....the link is bio-medical.com/news_display.cfm?newsid=47 . Cut and paste it to the address bar of your browser and it will take you right to it. Hopefully it will answer some of your questions..........
    Abdominal pain since 17 years old...
    Hysterectomy April 2003 (for abdominal pain),Diagnosed with IC August 2003
    Diagnosed with Pelvic Floor Disorder 2004,Had right ovary and fallopan tube removed 2005
    Diagnosed with diverticulosis 2006,Interstim December 2006,Home Instillations 2007-not effective
    Diagnosed with Fibromyalgia November 2007,Appendectomy February 2008,Interstim repair December 2008
    Removal of the Interstim August 2011,6 Hydrodistentions from 2003-2009

    Ambien 5mg for sleep.
    Elivil 50 mg at bed
    Lisinopril 20mg in AM
    Effexor 150 mg
    Oxycodone 5mg if REALLY needed for pain
    Baclofen 20mg 2x a day
    Phenazopyridine 200 mg as needed
    Omeprazole 20 mg at night
    Meclizine 25 mg as needed for dizziness
    Ketorolac 10 mg as needed for migraines

  3. #3
    ICN Member stacyY's Avatar
    Join Date
    May 2006
    Location
    michigan
    Posts
    184
    HI thank you so much for this link. It really has answered a lot of my questions. And I deffinatly have all these symtomes. I think I will print this article out and give it to a few of my doctors, and high light a few points for them to read.
    Thanks so much for taking the time to find this link for me. You have no idea how much of a help y ou have been!!!
    Take care of you!!
    stacy


    Current Conditions:
    Endometriosis,1995
    IC,Feb 06
    IBS-C

    Prenecious Anemia
    Stomach Ulcers
    Duodenitis
    Acid Reflux
    Low Blood Sugar
    Hypothyroid
    Migrains

    Surgeries
    Laporoscopy-1995
    Gaul Bladder-1996
    Laporoscopy-2005
    colonoscopy2005
    cysto/hydro-2006
    cysto/hydro-2007

    endoscope-2007

    Meds:
    Elmiron,100mg 2am 2pm
    Seasonique,1 night(helps control pain for Endo)Provera, 10mg 1 night
    Elavil, 150 1pm
    Flexeril, 10mg 1 night(was to be 1 am also but makes me to sleepy)
    Prilosec,20mg 1am 1pm
    Zoloft,100mg 1 pm
    Topamax 25mg 1am 2pmCyannobalamin(b12), 1 injection every 2 weeks
    Reglan, 10mg, 1 3xday with meals-for duonditis
    Ultram 50mg 1 every 4hrs as needed for pain
    Pyridim,100mg as needed
    Vicodin 5/500 as needed for pain
    Heating pad
    Ice Pack
    Arthritis Pain Equate brand 650mg usualy 2 at a time
    Stool softeners w/stimuli, 2am 2pm[/COLOR]

    Hopefuly no more gets added to the list!!!

    I wish the best for all of you and hope the days with pain are few. I wish you peace and calmness... for we all need it, with out it... the pain is worse.
    Try to take the best care of you that you can. When you are not happy with the care you get dont hesitate to get the help you need. Sometimes a 2nd opinion can give the calm and peace which you are seeking.
    My prays go to all of you. For I know there are many who are have many bad days and need a shoulder.. Always remember this site, for its made a huge differance to me and many people. Here you can find the the ear your looking for when you just need to vent.
    When your not looking for Im so sorry and I have no idea what can help you. Here we understand the pains the suffereing and most of all the Constant frustration. For anyone who needs it.. I will do my best to be the ear who can listen and help how ever I can. All my best to all of you.
    Dont forget to take care of you!
    Take care

  4. #4
    ICN Member Buggie's Avatar
    Join Date
    Oct 2004
    Location
    Raleigh, NC
    Posts
    49
    I thought that was a great article too! Oh and StacyY I already mentioned this in another thread but definitly highlight the Valium section!
    Desi

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