question about burning

**purpleviolet** · 09-05-2007, 07:48 PM

I just saw Donna's remark about instills burning. I notice when the stuff runs out of the cath when I pull it out that some of the liquid that spills on me burns. I think that one day I should put a little of each ingredient on me on the outside to try to indentify what is burning (heparin, sodium bicarbonate or lidocaine) I can't imagine why something that burns would actually be good for us on the inside. So does anyone else feel that burn? PV

***ICNDonna*** · 09-06-2007, 03:34 AM

When I did self instills, I didn't detach the syringe from the catheter until I had pulled the catheter --- so there was no fluid leak from the catheter.

Donna

**mom_in_ma** · 09-06-2007, 04:38 AM

purpleviolet,
I've been doing the instills at home too and find that I get burning with the heparin, lidocaine and sodium bicarb. Yet, it seems that others find it quite soothing. I'm not sure what's up with that. Are they working for you?

**Ann228** · 09-06-2007, 09:37 AM

I have had some burning with the instills. I get mine at the doc. office but sometimes it burns for about 10-15minutes after the medicine is in. They do not dribble any medicine from the cath. and use a urojet to numb the urethra first. Does not happen everytime so I don't think it is the medicine.

**laurafitz20** · 09-07-2007, 09:28 AM

I have been doing instills in the dr's office since may 2007. I ALWAYS have burning right afterward. My dr's office says it is because of the lidocaine they use. I always have to take pain meds right after an istill for 5 hours or so & then i start feeling better. I wake up & feel GREAT for about a week. I am starting to learn how to do them at home but am VERY nervous. The thought of if actually makes me want to cry

. My mom comes in with me when they do the instills in the dr's office so she can learn how to mix up the solutions & help me. I have gotten used to her coming in to the dr's office with me, but it is still really uncomfortable. I don't think I could do them solo because right now, in order for them to be able to even put a catheter in, I have to be iv sedated with Verset & Morphine. My urethra is just so inflamed even with those drugs, I can hardly stand it. Once I am doing them at home I will do Oral Meds of Valium & Percacept. The whole thing is just very scary. Last week I had another Hydrodistention along with an instillation. It went very well, but I already need another instill & am sick of going to the doctor!! Well, I don't know if this helps anyone, I just needed to vent. Right now I am confused about what to do...I guess I don't really have many options.

**L. Thomas** · 09-08-2007, 03:53 PM

It is interesting that the instills don't always burn. I wonder if the meds were from the same manufacturer each time? I have found it soothing to allow the ingredients to drain onto me.