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  1. #1
    ICN Member Charisse's Avatar
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    Cystoprotek or Aloe or Glucosomine?

    I am wondering where to start. I'm thinking of trying one of these supplements but I'm confused as to which one to try first? I see that a lot of people take Cystoprotek plus Glucosomine but I thought it had Glucosomine built into it? I also see other people take freeze dried aloe vera only? I ordered some free samples of the Desert Harvest aloe pills. I am mainly worried about GI upset from any of these. Also why do none of these supplements contain MSM? Isn't that supposed to help? I'm so confused
    Symptoms: Increased pain with activity (especially lower leg work and bending over); stabbing urethral pain, menstrual cramp pain, cannot wear tight pants, feel worse during spring/summer allergy season. The combo of things that brought me out of remission were artificial sweetners, liquid vitamins with citric acid, tight pants, lower body workouts and stopping all my allergy meds cold turkey during height of allergy season. I wish I knew back then what I know now about IC

    First IC symptoms Spring of 2000; In-office cystoscopy 2002 -negative; Remission until 2007 (yeah!!); Negative PST spring of 2007
    IC diagnosed via Cystoscopy and Hydrodistention 7/24/07; Another In-office cystoscopy 4/9/10 with biopsy showed inflammation

    Treatments for my IC/PFD:
    Elmiron 400 mg per day; Physical Therapy for PFD; Zyrtec; Singulair
    Ice packs and laying down

    Tried and Failed: Heparin instills -too painful for my urethra; Atarax (interfered with my quality of sleep first time, second time dried my bladder out; Elavil makes me sick, lidocaine patches, Cystoprotek (only tried a couple months but didn't seem to do much)

    Other Diagnoses: PFD diagnosed 9/09; Fibromyalgia
    Gastroparesis (delayed gastric emptying) Anxiety

    Other medications: Ambien, Zegerid, Ativan, Zyrtec

    MOMMY SINCE 10/28/08
    EXPECTING BABY BOY 6/30/11

  2. #2
    ICN Member amanda8's Avatar
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    hi charisse, i am ready to order the aloe, nothing else works for me did you try it yet and has it helped, let me know how it goes

  3. #3
    ICN Member Charisse's Avatar
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    I have not received my free sample yet. I ordered the freeze dried aloe capsules. For now I'm just trying to take the Elmiron but I'm only able to take it with food so not sure if it's absorbing. I also purchased som Glucoscimine/Chondrotin caplets.
    Symptoms: Increased pain with activity (especially lower leg work and bending over); stabbing urethral pain, menstrual cramp pain, cannot wear tight pants, feel worse during spring/summer allergy season. The combo of things that brought me out of remission were artificial sweetners, liquid vitamins with citric acid, tight pants, lower body workouts and stopping all my allergy meds cold turkey during height of allergy season. I wish I knew back then what I know now about IC

    First IC symptoms Spring of 2000; In-office cystoscopy 2002 -negative; Remission until 2007 (yeah!!); Negative PST spring of 2007
    IC diagnosed via Cystoscopy and Hydrodistention 7/24/07; Another In-office cystoscopy 4/9/10 with biopsy showed inflammation

    Treatments for my IC/PFD:
    Elmiron 400 mg per day; Physical Therapy for PFD; Zyrtec; Singulair
    Ice packs and laying down

    Tried and Failed: Heparin instills -too painful for my urethra; Atarax (interfered with my quality of sleep first time, second time dried my bladder out; Elavil makes me sick, lidocaine patches, Cystoprotek (only tried a couple months but didn't seem to do much)

    Other Diagnoses: PFD diagnosed 9/09; Fibromyalgia
    Gastroparesis (delayed gastric emptying) Anxiety

    Other medications: Ambien, Zegerid, Ativan, Zyrtec

    MOMMY SINCE 10/28/08
    EXPECTING BABY BOY 6/30/11

  4. #4
    ICN Member charmedx3's Avatar
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    hey Charisse! I also called to see if they had free samples, they only offer 1 day supply. not very much. So i ordered in a bottle. I will see how it goes! I am also taking the cysta-q also.
    mom to 3 wonderful kids


    IC symptoms 7/03,
    hysterectomy 11/04,
    prolapse cervix 7/07
    diagnosed: IC 2007
    IBS 2008

  5. #5
    ICN Member Charisse's Avatar
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    Charmed how long have you been on the CystaQ? There are SO many options and I don't want to take too many supplements at once because then I won't know what's helping.
    Symptoms: Increased pain with activity (especially lower leg work and bending over); stabbing urethral pain, menstrual cramp pain, cannot wear tight pants, feel worse during spring/summer allergy season. The combo of things that brought me out of remission were artificial sweetners, liquid vitamins with citric acid, tight pants, lower body workouts and stopping all my allergy meds cold turkey during height of allergy season. I wish I knew back then what I know now about IC

    First IC symptoms Spring of 2000; In-office cystoscopy 2002 -negative; Remission until 2007 (yeah!!); Negative PST spring of 2007
    IC diagnosed via Cystoscopy and Hydrodistention 7/24/07; Another In-office cystoscopy 4/9/10 with biopsy showed inflammation

    Treatments for my IC/PFD:
    Elmiron 400 mg per day; Physical Therapy for PFD; Zyrtec; Singulair
    Ice packs and laying down

    Tried and Failed: Heparin instills -too painful for my urethra; Atarax (interfered with my quality of sleep first time, second time dried my bladder out; Elavil makes me sick, lidocaine patches, Cystoprotek (only tried a couple months but didn't seem to do much)

    Other Diagnoses: PFD diagnosed 9/09; Fibromyalgia
    Gastroparesis (delayed gastric emptying) Anxiety

    Other medications: Ambien, Zegerid, Ativan, Zyrtec

    MOMMY SINCE 10/28/08
    EXPECTING BABY BOY 6/30/11

  6. #6
    ICN Member charmedx3's Avatar
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    I think I have been taking it for a couple of months. you can get a trial from them. I would try the sample 1st brfore you spend $. I don't know if there has been a difference or not with the cysta-q. I am really hoping on the aloe vera.
    mom to 3 wonderful kids


    IC symptoms 7/03,
    hysterectomy 11/04,
    prolapse cervix 7/07
    diagnosed: IC 2007
    IBS 2008

  7. #7
    ICN Member Charisse's Avatar
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    Apr 2007
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    This is what I'm afraid of -spending a bunch of money and not having it work.
    Symptoms: Increased pain with activity (especially lower leg work and bending over); stabbing urethral pain, menstrual cramp pain, cannot wear tight pants, feel worse during spring/summer allergy season. The combo of things that brought me out of remission were artificial sweetners, liquid vitamins with citric acid, tight pants, lower body workouts and stopping all my allergy meds cold turkey during height of allergy season. I wish I knew back then what I know now about IC

    First IC symptoms Spring of 2000; In-office cystoscopy 2002 -negative; Remission until 2007 (yeah!!); Negative PST spring of 2007
    IC diagnosed via Cystoscopy and Hydrodistention 7/24/07; Another In-office cystoscopy 4/9/10 with biopsy showed inflammation

    Treatments for my IC/PFD:
    Elmiron 400 mg per day; Physical Therapy for PFD; Zyrtec; Singulair
    Ice packs and laying down

    Tried and Failed: Heparin instills -too painful for my urethra; Atarax (interfered with my quality of sleep first time, second time dried my bladder out; Elavil makes me sick, lidocaine patches, Cystoprotek (only tried a couple months but didn't seem to do much)

    Other Diagnoses: PFD diagnosed 9/09; Fibromyalgia
    Gastroparesis (delayed gastric emptying) Anxiety

    Other medications: Ambien, Zegerid, Ativan, Zyrtec

    MOMMY SINCE 10/28/08
    EXPECTING BABY BOY 6/30/11

  8. #8
    ICN Member charmedx3's Avatar
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    CALIFORNIA
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    right there with you!!
    mom to 3 wonderful kids


    IC symptoms 7/03,
    hysterectomy 11/04,
    prolapse cervix 7/07
    diagnosed: IC 2007
    IBS 2008

  9. #9
    ICN Member soccermom32's Avatar
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    I take MSM 1500mg twice a day + Glucosomine with MSM tablets, 2 once a day. I think the MSM really helps. When I don't take it, I can tell. I ran out of my vitamin E and Fish Oil last week. I really noticed a difference not taking it. Once I started taking it again I felt better.

    I'm not trying to confuse you, but these are the alternatives that help me. I take these along with the Elmiron.

    I have read that Chondritin makes people flare so be careful with that one.

    I just added Quertcin to the mix this week. That is supposed to reduce inflammation and that is my main complaint - menstrual cramp pain like you.

  10. #10
    ICN Member Charisse's Avatar
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    Thank you for replying. Yes I've heard bad things about Chondrotin too but then Dr. Moldwin recommends it in his book so I figure I'm going to try. I have also heard mixed things about the MSM flaring some people. I guess I've got to take it one supplement at a time!
    Symptoms: Increased pain with activity (especially lower leg work and bending over); stabbing urethral pain, menstrual cramp pain, cannot wear tight pants, feel worse during spring/summer allergy season. The combo of things that brought me out of remission were artificial sweetners, liquid vitamins with citric acid, tight pants, lower body workouts and stopping all my allergy meds cold turkey during height of allergy season. I wish I knew back then what I know now about IC

    First IC symptoms Spring of 2000; In-office cystoscopy 2002 -negative; Remission until 2007 (yeah!!); Negative PST spring of 2007
    IC diagnosed via Cystoscopy and Hydrodistention 7/24/07; Another In-office cystoscopy 4/9/10 with biopsy showed inflammation

    Treatments for my IC/PFD:
    Elmiron 400 mg per day; Physical Therapy for PFD; Zyrtec; Singulair
    Ice packs and laying down

    Tried and Failed: Heparin instills -too painful for my urethra; Atarax (interfered with my quality of sleep first time, second time dried my bladder out; Elavil makes me sick, lidocaine patches, Cystoprotek (only tried a couple months but didn't seem to do much)

    Other Diagnoses: PFD diagnosed 9/09; Fibromyalgia
    Gastroparesis (delayed gastric emptying) Anxiety

    Other medications: Ambien, Zegerid, Ativan, Zyrtec

    MOMMY SINCE 10/28/08
    EXPECTING BABY BOY 6/30/11

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