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  1. #1
    ICN Member
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    Not sure where to ask this... pelvic ultrasound and 32 ounces of water to drink?

    I was not sure where to post this... but... I have been diagnosed with IC since January and my period has been irregular. My IC doctor has written a Rx for me to get a pelvic ultrasound to see what's going on with my period. The woman told me an hour before the test I am supposed to drink 32 ounces and hold it. I told her I have IC and I don't think that's possible for me to drink THAT much and hold it THAT long. Has anyone here had a pelvic ultrasound since being diagnosed? What amount of water is necessary for it? She told me she would have to ask someone and call me back. I am really scared they're going to make me drink that much and hold it that long. What do I do?
    IC Diagnosed: January 3, 2007
    Pelvic Floor Dysfunction
    Vulvodynia

    Meds:
    Estrostep FE
    Urocit K
    Prelief (as needed)
    Urelle (as needed)
    Darvocet (as needed for pain)
    Singulair (for seasonal allergies affecting the IC)
    Cymbalta (for the pain)

    Have been on and off too many to list because of adverse reactions...

  2. #2
    ICN Member dg2901's Avatar
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    I had to have a pelvic ultrasound a couple of years ago. The technician had no problem instilling the necessary amount of water needed for the scan via a catheter. Once the scan was over she simply drained my bladder and I was on my way.

    Might be worth a shot to ask if this is an option for you.

    Takc care, dear
    Diana

  3. #3
    ICN Member
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    Thank you, that sounds like an excellent idea. The woman I talked to trying to set it up is going to call me tomorrow about how to deal with the water for the ultrasound. If she doesn't have a better idea I will suggest her asking if instilling the water would be alright! Thank you much!
    IC Diagnosed: January 3, 2007
    Pelvic Floor Dysfunction
    Vulvodynia

    Meds:
    Estrostep FE
    Urocit K
    Prelief (as needed)
    Urelle (as needed)
    Darvocet (as needed for pain)
    Singulair (for seasonal allergies affecting the IC)
    Cymbalta (for the pain)

    Have been on and off too many to list because of adverse reactions...

  4. #4
    ICN Member
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    Diana, why didn't they think of that when I had them done? Do they have caths at gyno offices? I had to drink the water with the 3 different ones I had. Now I could kick myself about it but I didn't know anything about caths and bladders back then. That is sure good advice.

  5. #5
    Support Leader kadi's Avatar
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    How smart!
    I had to drink all that water, then the tech reprimanded me for having a bladder "too full", saying I must have had more than they told me to..
    Now I wonder if I have reduced bladder capacity & that's why it seemed overfull. Never occurred to me to ask if that's what happened...
    Kadi

    -------------------------------------------------------------
    I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
    ------------------------------------------------------


    New favorite quote: "God gives us only what we can handle. Apparently God thinks I'm a bad-ass" ~Author Unknown
    Source - Pinterest
    "


    Current treatments:
    -IC diet
    -Elavil 60mg at night
    -Continuous use birth control pills (4-5 periods/year)
    -Heparin/Marcaine/Sodium Bicarb home instills every morning and night
    -Pyridium if needed,
    -Pain medicine at bedtime daily, as needed during the day several times per week
    -Antibiotic to prevent UTI infections from 2x daily catheter use
    -Colace & Senna to treat chronic constipation from meds
    -Dye Free Benadryl 50 mg at bedtime
    -"Your Pace Yoga: Relieving Pelvic Pain" dvd, walking, treadmill at gym
    -Managing stress= VERY important!
    -Fur therapy: Hugging the cat!

  6. #6
    ICN Member GriffsMommy's Avatar
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    Long before I knew about IC I always had to pee alot and water always went right through me. I have had quite a few pelvic ultrasounds because I have endo, have had cysts and was pregnant. With my more recent ultrasounds, which were still long before my really bad symptoms started I learned that I can drink less water. Personally I would probably drink a little more than half of the water and do it a little after the time they told me to start. Because my bladder fills up so fast by the time I get there I am FULL but I'm not as full as I would have been if I would have followed their directions exactly. They didn't have any problems doing the ultrasound that way and actually when they let you pee afterwards I would have to go again in like 5 minutes because my bladder would start filling up again right away. Hope that the ultrasound works out and you're not too uncomfortable.
    Christine



    I have been diagnoised for 6 1/2 years now. I have taken a long break from the ICN but really miss helping out my fellow IC patients and want to get back into posting.
    1st hydro 4/07 showed no visible signs of IC but tons of mast cells in all my biopsy samples which did prove IC.
    2nd hydro 4/13/09 showed dark purple glomerulations and I had a capacity of 450 cc's. This hydro proved that my IC had progressed.
    I have tried every oral medication as well as rescue instills and DMSO.

    I have been lucky enough to see Dr Hanno, the top IC specialist in PA who has told me due to the fact that I have not responded to any "standard" treatments that I have a severe, end stage case of IC with a horrible quality of life (didn't have to tell me that last part!)

    Proud wifey of Shane, mommy to Griffin, and step-mom to Logan and Gage
    Also proud mom to the best Bullmastiff on earth, Claus

  7. #7
    ICN Member
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    I just had a pelvic ultrasound two weeks ago because a CAT scan showed probable cysts. My appointment was at 2:15 and they told me to drink 32 oz between 12:45 and 1:15. I told them that that I had IC but that I would do the best I could. I drank the 32 oz as instructed. I started to get uncomfortable around 1:45 and by 2:00 I was so unbearably uncomfortable that I had to stop at WAWA (I was on my way to the appointment) to use the restroom. I was so upset about this whole IC thing. I did not want to have to cancel the appointment. I bought a 24 oz. bottle of water at the WAWA at 2:00 and drank most of it before I reached the office at 2:15. I told the woman at the front desk that I was not able to hold the first 32 oz. and that I just started drinking again. I was so embarrassed and frustrated and fed-up with IC that I started to cry. She was very nice and had the technician take me back right away. The technician was really sweet and said that everyone (not just us with IC) has a hard time preparing for this test. I told her that I did not know if my bladder would be full since I just "went" at 2:00. And she said that she would take a look and if it wasn't full yet we would just wait a little while and try again. Thankfully it was full and I did not have to wait. Afterwards she showed me to the restroom immediately. I was so grateful for their kindness. I agree with GriffsMommy - maybe start a little later and drink a little less. And if you can't hold it - don't worry - hopefully they will be kind and just wait until your bladder is full.
    Sending Healing energy...lan

  8. #8
    ICN Member Mel53H's Avatar
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    When I go to have ultrasounds, and have to drink a lot of water, I always bring a change of clothes just in case. You never know.........

    I have been cathed for an ultrasound as well. Much easier than drinking all that dang water.
    Meds I take:
    Elmiron, Elavil, Vagifem- for IC
    Albuterol, Flovent, Atrovent- for Asthma and lung problems
    Paxil, Clonazepam- for depression and Anxiety
    Atenolol- for rapid heart rate
    Nexium- for Gerd
    Levothyroxin- for Hypothyroidism
    Lasix, Pottasium- for edema
    Lipitor- for High Cholesterol
    I coated aspirin
    02 at bedtime

  9. #9
    ICN Member mich2604's Avatar
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    I havent read all of your replies to your post-too tired right now.

    BUT, i have had three pelvic ultra sounds done with IC, the first one went badly because i didnt know i had IC and drank Dasani water, which I now know flares me.

    Some tips.

    Go to the test site an hour before the test and start drinking the water there, this way you dont have to drive and walk with a full bladder.

    2) drink a water that you know doesnt hurt your IC
    3) i saw that you take Urelle, also take this before the test, this will help with the bladder pain



    The last one I had done wasnt so bad.


    My periods were also irregular, and are just now normal again, and i really hope they stay this way.

    Good luck with your test.


    Lyme disease diagnosed 11/05
    vulvar vestibulitis diagnosed 2/06 -worst case she has ever seen..very bad.
    IC diagnosed with hydro/cysto- may 17, 2006

    Over growth of lactobicilli found 8/07 treating with doxy.

    Was able to get my first internal exam evaluation for PFD....wohoo 1/18/07:woohoo:

    8/22/07- was able to get my first speculum exam, with pap

    Strep D found in bladder with United medical labs May 2006
    2 strains of strep in stool culture 9/06
    high Strep ASO titre found 10/06

    NEW MED

    Capsasin cream-once a day for 20min,
    BUt wont lie it does burn

    About to start valium supositories for PFD

    Trigger point injections- oct 07

    Current meds:
    Neurontin- 100mg at night supposed to work up to 300mg if i can tolerate it
    Zanaflex 2mg
    IC and low oxalate diet, no sugar diet
    Xanax for appointments to help relax me since they cause so much pain

    Started PT 3/07, PT has really helped me in ways I never knew that it would

    Meds ive tried
    Lyrica
    Klonopin
    Singulair
    Claritin
    Pyridium
    Soma- can barely tolerate half a pill
    Atropine cream- didnt seem to work, although i found out I was applying the creams wrong
    Estradiol cream
    Urelle- caused worse bladder spasm and retention

    Various antibiotics for lyme which caused yeast and made the IC and VV worse

    waiting for the next chronic illness to pop up


    "Did you know?
    Every 15 seconds,
    a person is
    diagnosed with
    interstitial cystitis."
    Source: J. Dimitrakov, MD

  10. #10
    ICN Founder icnmgrjill's Avatar
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    I've had several ultrasounds. The first time... I tried their approach (32 ounces, 2 hours before) which created way too much pain. I had to laugh when they said they were running 45 minutes late and that I should just try to pee out "half" of my bladder. I'm sorry... but that's just not possible.

    I know my bladder and what I can tolerate. I drink just one glass about 45 minutes before the test. They've never said that it wasn't enough... I didn't suffer through the test and we were done quickly!!!

    Whoever developed that protocol clearly doesn't understand the pain and discomfort of a full bladder in IC patients.

    Jill
    Would you like to talk with someone about your IC struggles? The ICN now offers personal coaching sessions that include myself, Julie Beyer RD on the diet and Dr. Heather Howard on Sexuality. http://www.icnsales.com/icn-personal-coaching/

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  11. #11
    ICN Member
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    Thank you all who have responded. Your tips are all great. I am the type of person that never likes to break the rules of tests and stuff. However, I know now that when it comes to my bladder and IC I have to start to learn to make the appropriate adjustments so I am not in too much discomfort. Thank you all again! I am not as scared for this test now...
    IC Diagnosed: January 3, 2007
    Pelvic Floor Dysfunction
    Vulvodynia

    Meds:
    Estrostep FE
    Urocit K
    Prelief (as needed)
    Urelle (as needed)
    Darvocet (as needed for pain)
    Singulair (for seasonal allergies affecting the IC)
    Cymbalta (for the pain)

    Have been on and off too many to list because of adverse reactions...

  12. #12
    ICN Member mary124's Avatar
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    When I had mine, I told them I had IC, and then they said drink as much as you can, and we will see what we can do, found out I didn't have to drink as much as they said, and didn't have to wait as long either. So Just explain what IC is and hopefully it will work out for you too.

  13. #13
    Angel watching over us born2swim's Avatar
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    I was given 2 transvaginal ultrasounds recently... so I didn't have to drink anything for it (had to empty for it actually).

    See if that is a better option for you?

  14. #14
    ICN Member
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    Before I knew I had IC I had an ultrasound done and I thought I was just going to die on the table! My bladder was in such pain. Now for the past 10 years anytime I need an ultrasound I will only do the trans vaginal one. They put a probe just a little ways in you, which isn't the greatest either, but I find it better then having to deal with the stress of holding the water and then them pusing on my stomach with the probe while I'm full! It works best for me, maybe you can request the vaginal one?

    Kari
    Kari

    I'm 47 years old, married 27 years. I have two wonderful boys and two wonderful grandchildren. I was diagnosed in 1994. Life has certainly thrown me many many surprises, all of which I'm trying to stay positive and hopeful, and I try to think about my blessings not my misfortunes, when possible. Stay Strong!

  15. #15
    Support Volunteer L. Thomas's Avatar
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    When I had a pelvic ultrasound 4 years ago I wan't asked to drink any water and they didn't fill my bladder. I had the ultrasound because I was having breakover bleeding with HRT. The ultrasound showed cyst and endometrial hyperplasia..just a big word to say I was in menapause and the uterus was not shedding the lining. It was just getting bigger and bigger.
    TREATMENT: PRN lidocaine/heparin Home Instillations since 2004
    My Helpful Hints for Home Instillation: http://www.ic-network.com/forum/show...985#post309985

    Institute of Female Pelvic Medicine (J. Dell, My MD) http://www.mypelvicmedicine.com/index.asp
    IC scholarly articles: http://www.mypelvicmedicine.com/dell_pubs.asp
    Thank you for allowing me to share my experiences and offer support. Your physician is the only one to give you medical advice. I hope sharing the information from this site will help you and your physician develop successful management of your IC.
    I post to encourage and offer total support for resuce instillations.
    Find me on facebook: L. Clark Thomas
    Louann

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