Results 1 to 11 of 11
  1. #1
    ICN Member Bessie's Avatar
    Join Date
    Sep 2006
    Location
    USA
    Posts
    1,897

    Rescue Instillations 16 FR Catheter

    I had an instillation yesterday and the catheter said 16FR on the outside of the package. They used marcaine, solculef, and heparin. It was uncomfortable going in and then when I used the restroom the first few times it felt like I was peeing out razor blades. Is this normal??? It also feels like I have been punched in the stomach. I am suppose to have 1 instillation every week for 6 weeks and I am scared!!!
    Miss Bessie

    Galatians 6:2 - Carry each other's burdens, and in this way you will fulfill the law of Christ.

    Hebrews 13:2 - Do not forget to entertain strangers, for by doing so some people have entertained angels without knowing it.

    Proverbs 4:23 - Above all else, guard your heart, for it is the wellspring of life

  2. #2
    Support Volunteer leelee88's Avatar
    Join Date
    Nov 2006
    Location
    Louisiana
    Posts
    8,892
    I have never had one so I dont know.. I just wanted to say I am sorry it was so painful for you..((((((((hugs)))))))))
    Hugs
    Ronda

    ONE Second, ONE Bite, ONE Breath, ONE Pill, ONE Minute, ONE Teardrop, ONE Hour, ONE Sip.. ONE DAY! I will Prevail from this disease! IC Hoping for a Cure!


    Link to Patient Handbook:
    http://www.ic-network.com/handbook/

    Diet Reference Sheet:
    http://www.ic-network.com/diet/icndi...tsheet0909.pdf

    Meds For IC: Lyrica-25mg Glucosamine-500 MSM-500mg, Prosed Ds -When Flaring

    Other Meds: Levlite- Continious Birtcontrol, Micardis-40mg for High Blood Pressure

    Meds I have Tried:
    Topamax,Tofranil, Elmiron, Atarax, Cymbalta, Elavil, Enablex, Detral La, Prydium.
    Lexapro< Bad reaction to this med!
    Intstills, could not continue them due to some kind of reaction after 3rd instill. Tasted the lidocaine in my mouth, tongue and lips went numb then went into what seemed like a panic attack. Shaking, racing heart, tingling face/head, blood pressure shot up..

    Dx With IC in Nov 2006 with Hydro/Cysto
    Hydro/Cysto Caused Bladder to Rupture.

    Other Dxs-Vulvodynia,Fibro, Endo, IBS, HPV, Migraines, Spastic Colon, Mild Dysplasia.



    ICN Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

  3. #3
    Support Leader kadi's Avatar
    Join Date
    Dec 2003
    Location
    California
    Posts
    8,261
    How long did they have you hold the solution? When I first started with heparin/marcaine/sodium bicarbonate instillations, I could only hold the solution for 25 min. Now I've over time worked up to holding it for 50-60 minutes & that doesn't seem to cause the irritation holding it longer does.

    If you are having a lot of urethral burning, you might ask for a non-latex catheter and / or a smaller size. I found that even though I'm not officially allergic to latex, it burns. I now use a 12French non latex, but they do make pediatric catheters & that can be really helpful for IC patients.

    Hang in there--
    Kadi

    -------------------------------------------------------------
    I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
    ------------------------------------------------------


    This week's favorite one-liner:
    "Just remember, if the world didn't suck, we'd all fall off. ~Author Unknown
    "


    New second favorite:
    Please, Lord, let me prove that winning the lottery won't spoil me.
    - Unknown


    Adding a third because I'm just so darn easily amused...
    "Do not meddle in the affairs of dragons, for you are crunchy and taste good with ketchup.
    - Bruce Graham"



    Current treatments:
    -IC diet
    -Elavil 30mg at night
    -Ditropan 5mg at night
    -Continuous use birth control pills (4-5 periods/year)
    -Heparin/Marcaine/Sodium Bicarb home instills every morning and night
    -Pyridium if needed, usually once a week or so
    -1 Vicodin at bedtime,
    -Flexeril 10mg at bedtime
    -Dye Free Benadryl for allergies occasionally
    -Pelvic floor & myofascial release (external only) physical therapy for 8 weeks, then home exercise program...
    -Managing stress
    -Fur therapy: Hugging the cat!

  4. #4
    Support Volunteer L. Thomas's Avatar
    Join Date
    Aug 2005
    Location
    Sparta, TN
    Posts
    1,354
    For instills I use a 8fr pediatric feeding tube so I think the one I use is 1/2 the size of the one you had. Some people are sensitive to latex. That may be a problem for you also.

    I have the "stomach punch" sometimes but not that hard. It is more like a backward UTI pain. Sort of a feeling that your bladder is "sucking in" that remind me of what the inside of a jar would feel like when you break the seal as you open it. But it is only mildly uncomfortable and it doen't happen all the time, maybe once in 6-7 caths.

    If solculef is a steroid that can cause pain also.
    TREATMENT: PRN lidocaine/heparin Home Instillations since 2004
    My Helpful Hints for Home Instillation: http://www.ic-network.com/forum/show...985#post309985

    Institute of Female Pelvic Medicine (J. Dell, My MD) http://www.mypelvicmedicine.com/index.asp
    IC scholarly articles: http://www.mypelvicmedicine.com/dell_pubs.asp
    Thank you for allowing me to share my experiences and offer support. Your physician is the only one to give you medical advice. I hope sharing the information from this site will help you and your physician develop successful management of your IC.
    I post to encourage and offer total support for resuce instillations.
    Find me on facebook: L. Clark Thomas
    Louann

  5. #5
    ICN Member Berkshire Road's Avatar
    Join Date
    Jan 2007
    Location
    New Jersey
    Posts
    1,873
    My doctor gives me 10 fr. catheters for my at-home instills. As long as I relax before it goes in (breathing out can help a lot), I barely feel it. Maybe you could ask your doctor about getting a smaller size.

    I recently was in the hospital and had to have a Foley put in. Now that's a big tube -- not to mention that the nurse's technique was not exactly gentle. Ouch! I was bleeding from my urethra for two days afterwards.

    So, I think it's a combination of size (small is good) and technique (on the part of both the patient, who should breathe out as it's going in and relax as much as possible; and of the nurse, who should be aware of the patient's reaction and moderate her speed and force accordingly), that makes for a reasonably comfortable experience.
    Last edited by Berkshire Road; 04-18-2007 at 02:44 PM.
    Je vous souhaite de la joie, de la bonne santée, et tout ce qu'il y a de bon dans la vie.
    Wishing you happiness and good health, and all the best out of life.

    Peace, Carolyn
    ___________________________________________________

    Laura (11), Susannah (12 1/2) and Maman (that's me!), North Wildwood NJ, September 2007


    On the Beach with IC

  6. #6
    Support Volunteer L. Thomas's Avatar
    Join Date
    Aug 2005
    Location
    Sparta, TN
    Posts
    1,354
    One thing I know now is that everyone’s anatomy is different They are taught to stop advancing the catheter when the urine starts to flow and then back off a little. I think that sometimes they push it so quick that it hits the back wall of the bladder before the urine starts to flow. I think that I have been cathed before and the nurse pushed it too far and hit the back wall of my bladder. I have done instills for about 3 years and I know that sometimes the flow is slow starting. I know my anatomy well enough to tell how slow I need to go and when to stop and let everything catch up.
    TREATMENT: PRN lidocaine/heparin Home Instillations since 2004
    My Helpful Hints for Home Instillation: http://www.ic-network.com/forum/show...985#post309985

    Institute of Female Pelvic Medicine (J. Dell, My MD) http://www.mypelvicmedicine.com/index.asp
    IC scholarly articles: http://www.mypelvicmedicine.com/dell_pubs.asp
    Thank you for allowing me to share my experiences and offer support. Your physician is the only one to give you medical advice. I hope sharing the information from this site will help you and your physician develop successful management of your IC.
    I post to encourage and offer total support for resuce instillations.
    Find me on facebook: L. Clark Thomas
    Louann

  7. #7
    ICN Member
    Join Date
    Feb 2007
    Posts
    55
    My nurse uses the pediatric catheter, I also take some pain pills before I go for my treatments. This seems to help also! The first seem to be the worst one, but I also felt funny in my stomach, it also hurt when the cath went in and also when comes out. After my first one I felt like i needed to go to the bathroom but would go and nothing would come out, also I burned to. But I only have to hold it in for 15 to 20 min. the doctor says after this time it really does not work. Bamafan

  8. #8
    Guest
    Join Date
    Jan 2006
    Posts
    2,393
    16 French!! WOW!! and OUCH!! No wonder it hurt! That is HUGE! Well, at least to me....mine are 5 French, (less than 1/3 of the size of yours). I am a firm believer that size matters! I would definately be asking about using a smaller cath. It is bound to make a big difference.

    I also find that it is much more comfortable cathing myself than when others do it. Maybe it is b/c I always advance it VERY SLOWLY. But, like others, I have also been cathed by people who were rough and it definately hurt both during and afterwards.

    I hope your Dr. will agree to using smaller caths. I really think it would help alot.

    I hope your next one goes much better and that you start feeling better soon.

    Hugs,
    Amy

  9. #9
    ICN Member Bessie's Avatar
    Join Date
    Sep 2006
    Location
    USA
    Posts
    1,897
    Thanks everyone for the suggestions. I go in next Monday for the second instillation and I will ask for the smaller size. I will also try to relax and not hold my breath too hard. I know I probably tensed up and that did not help at all. I am going to try a few more instillations and keep my fingers crossed that they help. My pain is 24/7 and I really need some relief

    Thanks again.......I really appreciate everyone here
    Miss Bessie

    Galatians 6:2 - Carry each other's burdens, and in this way you will fulfill the law of Christ.

    Hebrews 13:2 - Do not forget to entertain strangers, for by doing so some people have entertained angels without knowing it.

    Proverbs 4:23 - Above all else, guard your heart, for it is the wellspring of life

  10. #10
    ICN Member
    Join Date
    Apr 2007
    Posts
    180
    I am not familiar with instills (I haven't had one...yet) but 16fr is a common size for indwelling catheters, that much I know. I wouldn't call it "huge" but like I said, for this particular situation I am not very familiar. I know on my floor we stock 14, 16, and 18 for inserting foleys.
    32 years old

    former Med/Surg RN

    endometriosis x 13 years (with attempted/ failed complete removal in June 2008), IC diagnosed with cysto/hydrodistention April 2007, second cysto/hydro in June 2008

  11. #11
    Support Volunteer L. Thomas's Avatar
    Join Date
    Aug 2005
    Location
    Sparta, TN
    Posts
    1,354
    I have instilled for a while now and I don't think I know anyone that uses larger than 10fr. The larger sizes do drain the bladder faster, but the way I understand it, instill are to calm the bladder and keep it from being stressed. Smaller catheters cause less stress and less pain for most.

    I do know that when I had my last urodynamics the catheter was 22fr and the one for the scope was 25fr (or 27fr). I remember thinking "how is THIS going to feel?" I was shocked that I didn't have pain before, during or after.

    I also self-cathed after out patient surgery with 16fr (they weren't going to let me go home until I peed so I told them I could take care of that if they would get me a catheter. Boy did they look funny but I got to go home). I didn't have problems then either. I really think I could use a larger catheter but it only takes 10 seconds or less to empty when I use the 8fr. And the 8fr is easier to store in the "carry with you bag" than a larger one.
    TREATMENT: PRN lidocaine/heparin Home Instillations since 2004
    My Helpful Hints for Home Instillation: http://www.ic-network.com/forum/show...985#post309985

    Institute of Female Pelvic Medicine (J. Dell, My MD) http://www.mypelvicmedicine.com/index.asp
    IC scholarly articles: http://www.mypelvicmedicine.com/dell_pubs.asp
    Thank you for allowing me to share my experiences and offer support. Your physician is the only one to give you medical advice. I hope sharing the information from this site will help you and your physician develop successful management of your IC.
    I post to encourage and offer total support for resuce instillations.
    Find me on facebook: L. Clark Thomas
    Louann

Thread Information

Users Browsing this Thread

There are currently 1 users browsing this thread. (0 members and 1 guests)

Similar Threads

  1. Helpful Hints For Home Instillations
    By L. Thomas in forum Rescue Instillations For Interstitial Cystitis
    Replies: 106
    Last Post: 02-11-2013, 01:56 PM
  2. Rescue Instillations
    By JlGirl76 in forum Flare Coping Strategies For Interstitial Cystitis
    Replies: 6
    Last Post: 12-29-2006, 03:17 AM
  3. more frequency after rescue instillations
    By bclay in forum Rescue Instillations For Interstitial Cystitis
    Replies: 3
    Last Post: 08-08-2006, 12:42 PM
  4. How often do you get rescue instillations
    By Jody Lynn in forum Rescue Instillations For Interstitial Cystitis
    Replies: 2
    Last Post: 05-13-2006, 01:47 PM
  5. Instills at Home?
    By jeanababy in forum DMSO, Cystistat, Heparin - Interstitial cystitis bladder instillations
    Replies: 10
    Last Post: 10-15-2004, 01:40 AM

Bookmarks

Posting Permissions

  • You may not post new threads
  • You may not post replies
  • You may not post attachments
  • You may not edit your posts
  •