03-17-2007, 12:13 PM #1
White tissue in urine last night? what is it???
Just a quick question, yesterday night, when going pee, i was haveing a hard time going, and i had to really strain even though though i had a lot of presure to go.
Finnaly, i was able to go. But when i finished i noticed a large piece of white tissue, I think it was blocking it so i couldnt go potty.
Do any of you have that experaince? I have seen it before also. but it was not that big before. I think it must be the tissue of the bladder lining?? Is it something to worry about passing?? The last time i had a bladder infection, and doing a urine test, i saw a small strand of the white tissue. But this was the size of a nickel or around that size.
I am not sure to contact my doctor on this issue also? Any surgestions??
03-17-2007, 01:29 PM #2
- Join Date
- Mar 2007
I have never had that happen to me, but that doesn't mean much. I would call your doctor though. Thats just something I would ask him over the phone.
03-17-2007, 01:38 PM #3
I have heard of many IC patients say that they have white tissue in thier urine..I would talk to a dr about this though..Hugs
ONE Second, ONE Bite, ONE Breath, ONE Pill, ONE Minute, ONE Teardrop, ONE Hour, ONE Sip.. ONE DAY! I will Prevail from this disease! IC Hoping for a Cure!
Link to Patient Handbook:
Diet Reference Sheet:
Meds For IC: Lyrica-25mg Glucosamine-500 MSM-500mg, Prosed Ds -When Flaring
Other Meds: Levlite- Continious Birtcontrol, Micardis-40mg for High Blood Pressure
Meds I have Tried:
Topamax,Tofranil, Elmiron, Atarax, Cymbalta, Elavil, Enablex, Detral La, Prydium.
Lexapro< Bad reaction to this med!
Intstills, could not continue them due to some kind of reaction after 3rd instill. Tasted the lidocaine in my mouth, tongue and lips went numb then went into what seemed like a panic attack. Shaking, racing heart, tingling face/head, blood pressure shot up..
Dx With IC in Nov 2006 with Hydro/Cysto
Hydro/Cysto Caused Bladder to Rupture.
Other Dxs-Vulvodynia,Fibro, Endo, IBS, HPV, Migraines, Spastic Colon, Mild Dysplasia.
ICN Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
03-17-2007, 01:48 PM #4
My uro told me that I had a lot of debris in my urine when I gave him a sample but it's not big enough that I can actually see it.Christine
I have been diagnoised for 2 1/2 years. I have tried every oral med as well as rescue instills and DMSO.
1st hydro 4/07 which showed no visible signs of IC but I had tons of mast cells in all my biopsy samples which did prove IC.
2nd hydro 4/13/09 showed dark purple glomerulations and I had a capacity of 450 cc's. I am still feeling the effects of the hydro two weeks later.
This 2nd hydro proved that because no treatments have helped me that my IC has progressed
Am being seen by Dr. Hanno's office in Philly
None of my medicine or treatments are important anymore. One of our best IC sisters Barb has been taken from us too early. She was such a great friend to me, I feel like there is a part of my heart that will always be empty now that she is gone.
Proud wifey of Shane, mommy of Griffin, and step-mom to Logan, Gage and Miranda
Also proud new mommy to the best Bullmastiff puppy on earth
03-17-2007, 03:33 PM #5
I had the same flimy tissue in my urine and have been told it is the gag layer of my bladder sluffing off. I had wondered what it was when it was happening but didn't know what it was until I was diagnosed with IC. I wonder if this was made more public that maybe some people would get treatment before the gag layer was completely gone. Maybe if they caught it at the start they might be able to reverse the damage.
Symptoms since '86 starting with frequency(told I had a small bladder)
Diagnosed with medium IC in 2004 when pain started
For IC Elavil 50 mg - Atarax 50 mg - Fentanyl 25 Patch replaced every 72 hrs
For HBP Norvasc 5mg -Diovan 320 mg
For Depression Wellbutrin XL 300mg
Sinus Problems Flonase 2x daily-Alegera D when needed
And Now Fibromyalgia
Have Tried Elmiron (made me sick and hair loss)
DMSO and Heparin instills no help
All and every urgency pill
Trileptal, Neurontin, Tramdol did nothing
Cymbalta which made me dizzy and flushed
Lyrica gave me night terrors each night a different family member died very vivid now I know how they got the name night terrors
03-17-2007, 03:37 PM #6
I have this too on and off. My NP said it is the layer of my bladder because of the IC and because i was in a flair.
Just as my IC hit me I had a white glob like you describe and also that pressure feeling, never did get an answer to what it was.
I would call your dr and ask.
Lyme disease diagnosed 11/05
vulvar vestibulitis diagnosed 2/06 -worst case she has ever seen..very bad.
IC diagnosed with hydro/cysto- may 17, 2006
Over growth of lactobicilli found 8/07 treating with doxy.
Was able to get my first internal exam evaluation for PFD....wohoo 1/18/07:woohoo:
8/22/07- was able to get my first speculum exam, with pap
Strep D found in bladder with United medical labs May 2006
2 strains of strep in stool culture 9/06
high Strep ASO titre found 10/06
Capsasin cream-once a day for 20min,
BUt wont lie it does burn
About to start valium supositories for PFD
Trigger point injections- oct 07
Neurontin- 100mg at night supposed to work up to 300mg if i can tolerate it
IC and low oxalate diet, no sugar diet
Xanax for appointments to help relax me since they cause so much pain
Started PT 3/07, PT has really helped me in ways I never knew that it would
Meds ive tried
Soma- can barely tolerate half a pill
Atropine cream- didnt seem to work, although i found out I was applying the creams wrong
Urelle- caused worse bladder spasm and retention
Various antibiotics for lyme which caused yeast and made the IC and VV worse
waiting for the next chronic illness to pop up
"Did you know?
Every 15 seconds,
a person is
Source: J. Dimitrakov, MD
03-17-2007, 05:33 PM #7
A big thanks to you all!. I am deffinatly going to give them a call on monday. I have been in pain for a flair since last sat night. Just this last day feeling better. But i am having surgery on april 2nd, so i think is good to tell her now.
Hope you all are doing well.
take good care of you!!!
03-17-2007, 08:31 PM #8
I have that periodically as well, and finally learned after I was diagnosed, that it is the lining of my bladder.
It was very severe after my cystohydro, and I can only guess that it really tore off the layers of my bladder to have it stretched so much.
03-18-2007, 06:38 AM #9
Ohh thanks for that info. I was thinking thats what it is. But wasnt 100% sure,lol I Mean it cant be to many things,lol since it happends when you pee.lol.
I havent had my cystohydro yet, not till april 2nd, Which leaves me to wonder why on earth it happends when i havent had the procedure done. Im sureit cant be good news thats for sure. Plus i have been taking an antibiotic for 3 months now. Have to take it for 6 months, becausse i was getting infections every other week. thats when i noticed the 1st time the white tissue. But after 3 months on it, i havent had one sice, and till this past week been feeling better as far as my bladder is concered.
I did have a few months though of my Endo flarring up. But that seems to be better. Its kind of scarry to think my bladder lining is falling apart like that in big chunks though.. I am wondering now when I had the Freeze up and wasnt able to pee for a full day if that was a reason why. Or maybe when they used the large catheder in the ER cos it hurt realy bad, if that is what started it.
All this is still new to me even though I been diagnosed now for little over a year. I cant keep up with all this. Its always somthing. I just which it jsut stop and go away for once.
Trying to find a job this month and not haveing any luck at all. But then ther eis only 2 weeks left and htne i have to have surgery. How to sstart a new job and say ohh yeah by the way i have this bladder condition, and i miss work all the time,a nd ohh yeah haveing this surgery and im sure its going to throw me into a flare up a few days latter, so ill be missing a week or 2. Yeah like anyone is going to hire me.
I litterly at the moment have 38$ to my name,but now i have to get refills, so I will be down to 35$. But then this coming week, i have to drive to the doctors, which is about 40 mins one way, pay co-pay for the doc and then gas is gone in the car AAAHHHHHHHHHH!!!!!!!!!!!!!!!!!!!!!!!!!!!
I dont know what to do any more. I filed for disability, but will be months before hearing about that. My family cant help me they cant pay their own bills. No idea what to do any more...I tried for unemployment when i lost my job. I am 550$shor of income to recieve benifits. The state makes you be low income, then when you loose your job, you cant get help,go figure. Isnt life so fun!
Anyways every take good care fo your selves.
03-18-2007, 08:08 AM #10
- Join Date
- Feb 2007
- I live in Chicago IL
Sorry you are having a rough time. I also am having a terrible time. I think I may have another UTI also(just got over one a couple weeks ago). I also just got my period and have a terrible flu virus on top of all that and my bladder had been in a flare for days. It seems it never ends.
I also get those white things in my urine all the time. I never mentioned it to my doctor. I will when I see her next though. I think it is just the top layer of skin that sloughs off due to all the inflammation. It is getting rid if that skin and constantly trying to heal itself.
I hope things pick up for you soon Hon.
03-20-2007, 04:07 PM #11
Stacy -- Have you looked into whether you are eligible for food stamps? That would at least give you a little breathing room. That is such a horrible position to be in -- to poor to live, but too well off for public assistance. This country is really crazy with the way we treat our own citizens.
I don't think you need to worry too much about the white debris. My doctor said it is not the gag layer itself coming off. I'm sorry I don't remember what he said it was, because it only happened to me one time and I never asked again.
Anyway, good luck to you. I hope you can find some kind of assistance. Have you tried private organizations that help the poor? I know it's so hard to deal with all these issues when you're in pain, but you have to get something to live on! Wishing you very good luck with all your problems!Je vous souhaite de la joie, de la bonne santée, et tout ce qu'il y a de bon dans la vie.
Wishing you happiness and good health, and all the best out of life.
Laura (11), Susannah (12 1/2) and Maman (that's me!), North Wildwood NJ, September 2007
03-21-2007, 04:31 AM #12
Thanks, Yeah i do get the food assistance already, and the medical assistatance. But thats all i am qualified to get. Thanks for your kind words.
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