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  1. #1
    ICN Member stacyY's Avatar
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    White tissue in urine last night? what is it???

    Hi everyone;
    Just a quick question, yesterday night, when going pee, i was haveing a hard time going, and i had to really strain even though though i had a lot of presure to go.
    Finnaly, i was able to go. But when i finished i noticed a large piece of white tissue, I think it was blocking it so i couldnt go potty.
    Do any of you have that experaince? I have seen it before also. but it was not that big before. I think it must be the tissue of the bladder lining?? Is it something to worry about passing?? The last time i had a bladder infection, and doing a urine test, i saw a small strand of the white tissue. But this was the size of a nickel or around that size.
    I am not sure to contact my doctor on this issue also? Any surgestions??
    thanks stacy

  2. #2
    ICN Member
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    I have never had that happen to me, but that doesn't mean much. I would call your doctor though. Thats just something I would ask him over the phone.

  3. #3
    Support Volunteer leelee88's Avatar
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    I have heard of many IC patients say that they have white tissue in thier urine..I would talk to a dr about this though..
    Hugs
    Ronda

    ONE Second, ONE Bite, ONE Breath, ONE Pill, ONE Minute, ONE Teardrop, ONE Hour, ONE Sip.. ONE DAY! I will Prevail from this disease! IC Hoping for a Cure!


    Link to Patient Handbook:
    http://www.ic-network.com/handbook/

    Diet Reference Sheet:
    http://www.ic-network.com/diet/icndi...tsheet0909.pdf

    Meds For IC: Lyrica-25mg Glucosamine-500 MSM-500mg, Prosed Ds -When Flaring

    Other Meds: Levlite- Continious Birtcontrol, Micardis-40mg for High Blood Pressure

    Meds I have Tried:
    Topamax,Tofranil, Elmiron, Atarax, Cymbalta, Elavil, Enablex, Detral La, Prydium.
    Lexapro< Bad reaction to this med!
    Intstills, could not continue them due to some kind of reaction after 3rd instill. Tasted the lidocaine in my mouth, tongue and lips went numb then went into what seemed like a panic attack. Shaking, racing heart, tingling face/head, blood pressure shot up..

    Dx With IC in Nov 2006 with Hydro/Cysto
    Hydro/Cysto Caused Bladder to Rupture.

    Other Dxs-Vulvodynia,Fibro, Endo, IBS, HPV, Migraines, Spastic Colon, Mild Dysplasia.



    ICN Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

  4. #4
    ICN Member GriffsMommy's Avatar
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    My uro told me that I had a lot of debris in my urine when I gave him a sample but it's not big enough that I can actually see it.
    Christine



    I have been diagnoised for 2 1/2 years. I have tried every oral med as well as rescue instills and DMSO.
    1st hydro 4/07 which showed no visible signs of IC but I had tons of mast cells in all my biopsy samples which did prove IC.
    2nd hydro 4/13/09 showed dark purple glomerulations and I had a capacity of 450 cc's. I am still feeling the effects of the hydro two weeks later.
    This 2nd hydro proved that because no treatments have helped me that my IC has progressed

    Am being seen by Dr. Hanno's office in Philly

    None of my medicine or treatments are important anymore. One of our best IC sisters Barb has been taken from us too early. She was such a great friend to me, I feel like there is a part of my heart that will always be empty now that she is gone.

    Proud wifey of Shane, mommy of Griffin, and step-mom to Logan, Gage and Miranda
    Also proud new mommy to the best Bullmastiff puppy on earth



  5. #5
    ICN Member TerriT's Avatar
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    I had the same flimy tissue in my urine and have been told it is the gag layer of my bladder sluffing off. I had wondered what it was when it was happening but didn't know what it was until I was diagnosed with IC. I wonder if this was made more public that maybe some people would get treatment before the gag layer was completely gone. Maybe if they caught it at the start they might be able to reverse the damage.


    Symptoms since '86 starting with frequency(told I had a small bladder)
    Diagnosed with medium IC in 2004 when pain started

    Medications:
    For IC Elavil 50 mg - Atarax 50 mg - Fentanyl 25 Patch replaced every 72 hrs

    For HBP Norvasc 5mg -Diovan 320 mg

    For Depression Wellbutrin XL 300mg

    Sinus Problems Flonase 2x daily-Alegera D when needed

    And Now Fibromyalgia


    Have Tried Elmiron (made me sick and hair loss)
    DMSO and Heparin instills no help
    All and every urgency pill
    Trileptal, Neurontin, Tramdol did nothing
    Cymbalta which made me dizzy and flushed
    Lyrica gave me night terrors each night a different family member died very vivid now I know how they got the name night terrors

  6. #6
    ICN Member mich2604's Avatar
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    I have this too on and off. My NP said it is the layer of my bladder because of the IC and because i was in a flair.


    Just as my IC hit me I had a white glob like you describe and also that pressure feeling, never did get an answer to what it was.


    I would call your dr and ask.


    Lyme disease diagnosed 11/05
    vulvar vestibulitis diagnosed 2/06 -worst case she has ever seen..very bad.
    IC diagnosed with hydro/cysto- may 17, 2006

    Over growth of lactobicilli found 8/07 treating with doxy.

    Was able to get my first internal exam evaluation for PFD....wohoo 1/18/07:woohoo:

    8/22/07- was able to get my first speculum exam, with pap

    Strep D found in bladder with United medical labs May 2006
    2 strains of strep in stool culture 9/06
    high Strep ASO titre found 10/06

    NEW MED

    Capsasin cream-once a day for 20min,
    BUt wont lie it does burn

    About to start valium supositories for PFD

    Trigger point injections- oct 07

    Current meds:
    Neurontin- 100mg at night supposed to work up to 300mg if i can tolerate it
    Zanaflex 2mg
    IC and low oxalate diet, no sugar diet
    Xanax for appointments to help relax me since they cause so much pain

    Started PT 3/07, PT has really helped me in ways I never knew that it would

    Meds ive tried
    Lyrica
    Klonopin
    Singulair
    Claritin
    Pyridium
    Soma- can barely tolerate half a pill
    Atropine cream- didnt seem to work, although i found out I was applying the creams wrong
    Estradiol cream
    Urelle- caused worse bladder spasm and retention

    Various antibiotics for lyme which caused yeast and made the IC and VV worse

    waiting for the next chronic illness to pop up


    "Did you know?
    Every 15 seconds,
    a person is
    diagnosed with
    interstitial cystitis."
    Source: J. Dimitrakov, MD

  7. #7
    ICN Member stacyY's Avatar
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    A big thanks to you all!. I am deffinatly going to give them a call on monday. I have been in pain for a flair since last sat night. Just this last day feeling better. But i am having surgery on april 2nd, so i think is good to tell her now.
    Hope you all are doing well.
    take good care of you!!!
    stacy

  8. #8
    I have that periodically as well, and finally learned after I was diagnosed, that it is the lining of my bladder.

    It was very severe after my cystohydro, and I can only guess that it really tore off the layers of my bladder to have it stretched so much.

  9. #9
    ICN Member stacyY's Avatar
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    Ohh thanks for that info. I was thinking thats what it is. But wasnt 100% sure,lol I Mean it cant be to many things,lol since it happends when you pee.lol.
    I havent had my cystohydro yet, not till april 2nd, Which leaves me to wonder why on earth it happends when i havent had the procedure done. Im sureit cant be good news thats for sure. Plus i have been taking an antibiotic for 3 months now. Have to take it for 6 months, becausse i was getting infections every other week. thats when i noticed the 1st time the white tissue. But after 3 months on it, i havent had one sice, and till this past week been feeling better as far as my bladder is concered.
    I did have a few months though of my Endo flarring up. But that seems to be better. Its kind of scarry to think my bladder lining is falling apart like that in big chunks though.. I am wondering now when I had the Freeze up and wasnt able to pee for a full day if that was a reason why. Or maybe when they used the large catheder in the ER cos it hurt realy bad, if that is what started it.
    All this is still new to me even though I been diagnosed now for little over a year. I cant keep up with all this. Its always somthing. I just which it jsut stop and go away for once.
    Trying to find a job this month and not haveing any luck at all. But then ther eis only 2 weeks left and htne i have to have surgery. How to sstart a new job and say ohh yeah by the way i have this bladder condition, and i miss work all the time,a nd ohh yeah haveing this surgery and im sure its going to throw me into a flare up a few days latter, so ill be missing a week or 2. Yeah like anyone is going to hire me.
    I litterly at the moment have 38$ to my name,but now i have to get refills, so I will be down to 35$. But then this coming week, i have to drive to the doctors, which is about 40 mins one way, pay co-pay for the doc and then gas is gone in the car AAAHHHHHHHHHH!!!!!!!!!!!!!!!!!!!!!!!!!!!
    I dont know what to do any more. I filed for disability, but will be months before hearing about that. My family cant help me they cant pay their own bills. No idea what to do any more...I tried for unemployment when i lost my job. I am 550$shor of income to recieve benifits. The state makes you be low income, then when you loose your job, you cant get help,go figure. Isnt life so fun!
    Anyways every take good care fo your selves.
    stacy

  10. #10
    ICN Member
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    Hi Stacy.
    Sorry you are having a rough time. I also am having a terrible time. I think I may have another UTI also(just got over one a couple weeks ago). I also just got my period and have a terrible flu virus on top of all that and my bladder had been in a flare for days. It seems it never ends.

    I also get those white things in my urine all the time. I never mentioned it to my doctor. I will when I see her next though. I think it is just the top layer of skin that sloughs off due to all the inflammation. It is getting rid if that skin and constantly trying to heal itself.

    I hope things pick up for you soon Hon.
    Jen

  11. #11
    ICN Member Berkshire Road's Avatar
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    Stacy -- Have you looked into whether you are eligible for food stamps? That would at least give you a little breathing room. That is such a horrible position to be in -- to poor to live, but too well off for public assistance. This country is really crazy with the way we treat our own citizens.

    I don't think you need to worry too much about the white debris. My doctor said it is not the gag layer itself coming off. I'm sorry I don't remember what he said it was, because it only happened to me one time and I never asked again.

    Anyway, good luck to you. I hope you can find some kind of assistance. Have you tried private organizations that help the poor? I know it's so hard to deal with all these issues when you're in pain, but you have to get something to live on! Wishing you very good luck with all your problems!
    Je vous souhaite de la joie, de la bonne santée, et tout ce qu'il y a de bon dans la vie.
    Wishing you happiness and good health, and all the best out of life.

    Peace, Carolyn
    ___________________________________________________

    Laura (11), Susannah (12 1/2) and Maman (that's me!), North Wildwood NJ, September 2007


    On the Beach with IC

  12. #12
    ICN Member stacyY's Avatar
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    Thanks, Yeah i do get the food assistance already, and the medical assistatance. But thats all i am qualified to get. Thanks for your kind words.
    stacy

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