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Thread: Cost of Elmiron

  1. #1
    ICN Member faith4jesus's Avatar
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    Unhappy Cost of Elmiron

    I just started taking Elmiron a few days ago. I finally learned that what I have is IC through the potassium sensitivity test where they fill the bladder with 3 differents things. I had awful pain when the nurse put in the potassium.

    My husband, the sweet wonderful man he is, well made a comment on how we will now have to pay $60 a month for the Elmiron. I am a stay at home mom and just feel awful!

    How much do you all pay for Elmiron. Is there anyway we can get this cheaper? I already take Detrol, Urised, plus I have sinus spray I use daily & daily sinus meds I take. I feel awful! My dear husband said the way I am going with meds we won't soon be able to eat. I know he was just feeling stressed at the cost, but is there any the cost can be lowered?

    We are not a rich USA family or a poor one. Just middle class. I have seen commercials on tv about how to make meds more affordable, but well just thought that didn't concern us. But now . . . I just feel so guilty about how much my IC is costing my family.
    Ashley - wife of Michael for about 15yrs, mom of 3, stay at home mom and homeschooling mom

    Learned I had IC through a potassium sensitivity test on - 3/1/07

    My meds -

    Elmiron 2 times a day
    Marshmallow Root pills once a day
    Prosed
    Zyrtec - once a day

  2. #2
    ICN Member dg2901's Avatar
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    My copay for Elmiron went from $50 to $110/month. Without insurance the cost would be $485/month, so even with the huge increase in my copay, its still better than it not being covered at all.

    From my understanding there is assistance available for patients who need help getting this medication. However, I'm not so sure this would be an option to those who are insured. i suppose you could call the manufacturer (or visit the website) and inquire.

    Take care, dear
    D

  3. #3
    ICN Member vm's Avatar
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    One thing you might want to check on is whether or not your insurance company has a mail order option. I save quite a bit by having my meds delivered to me every 3 months.
    Kim

    Diagnosed August 2001

    Current IC meds: Elmiron (since 2001), Levaquin (one pill after intercourse to prevent UTIs), Effexor (for depression & anxiety)


    Past IC meds: Amitriptyline (Elavil), Hydroxyzine (Vistaril), Detrol LA, Lexapro (for depression & anxiety, but also helped my IC) (They all helped, but I was able to discontinue them.)

    My IC story: http://www.ic-network.com/patientstories/kim.html It's very outdated now. I've been virtually symptom free and able to eat & drink whatever I'd like for about 8 years now.

    *****************************

    “We who lived in concentration camps can remember the men who walked through the huts comforting others, giving away their last piece of bread. They may have been few in number, but they offer sufficient proof that everything can be taken from a man but one thing: the last of the human freedoms -- to choose one's attitude in any given set of circumstances, to choose one's own way.” ~ Viktor Frankl

    “You cannot control what happens to you, but you can control your attitude toward what happens to you, and in that, you will be mastering change rather than allowing it to master you.” ~ Brian Tracy

  4. #4
    ICN Member GriffsMommy's Avatar
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    I looked into the assistance program and they won't help you if you have any kind of Rx coverage. I have to pay $120 for a three month supply through mail order. It wouldn't be so bad if I had to pay $40 a month but my insurance requires that I get three months at a time of any maintance Rx's. The first time I ordered it I actually had to ask my parents to help me out, with four kids in the house that was just more than I could afford.
    Last edited by GriffsMommy; 03-03-2007 at 03:26 PM.
    Christine



    I have been diagnoised for 6 1/2 years now. I have taken a long break from the ICN but really miss helping out my fellow IC patients and want to get back into posting.
    1st hydro 4/07 showed no visible signs of IC but tons of mast cells in all my biopsy samples which did prove IC.
    2nd hydro 4/13/09 showed dark purple glomerulations and I had a capacity of 450 cc's. This hydro proved that my IC had progressed.
    I have tried every oral medication as well as rescue instills and DMSO.

    I have been lucky enough to see Dr Hanno, the top IC specialist in PA who has told me due to the fact that I have not responded to any "standard" treatments that I have a severe, end stage case of IC with a horrible quality of life (didn't have to tell me that last part!)

    Proud wifey of Shane, mommy to Griffin, and step-mom to Logan and Gage
    Also proud mom to the best Bullmastiff on earth, Claus

  5. #5
    ICN Member Annie2's Avatar
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    Definitely check out any mail order coverage you might have. I was paying $60/mo in co-pays through a regular pharmacy and then found I could get a three-month supply through my mail order coverage for just $35 (under $12 a month!). Mail order coverage varies from policy to policy, but it's currently something you will want to ask about because, if you do have it, it just might save you quite a bit.
    Annie

    IC
    Ulcerative Colitis and IBS
    Pelvic Floor Dysfunction

    _________________________________________________________
    Retirement is great! Work is highly overrated!!!
    ---My dear hubby

    ________________________________________________________
    Never go to a doctor whose office plants are dead.
    ---Unknown

  6. #6
    ICN Member GriffsMommy's Avatar
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    Wow Annie, that's cheap! I wish mine was that cheap! The sad thing is that I work for one of the largest third party administraters in the country. Basically that means that they admin benefits and we as employees get in my opinon crappy coveage. At least it's the worst coverage where I've had to pay the most out of pocket out of any insurance that I've ever had.
    Christine



    I have been diagnoised for 6 1/2 years now. I have taken a long break from the ICN but really miss helping out my fellow IC patients and want to get back into posting.
    1st hydro 4/07 showed no visible signs of IC but tons of mast cells in all my biopsy samples which did prove IC.
    2nd hydro 4/13/09 showed dark purple glomerulations and I had a capacity of 450 cc's. This hydro proved that my IC had progressed.
    I have tried every oral medication as well as rescue instills and DMSO.

    I have been lucky enough to see Dr Hanno, the top IC specialist in PA who has told me due to the fact that I have not responded to any "standard" treatments that I have a severe, end stage case of IC with a horrible quality of life (didn't have to tell me that last part!)

    Proud wifey of Shane, mommy to Griffin, and step-mom to Logan and Gage
    Also proud mom to the best Bullmastiff on earth, Claus

  7. #7
    ICN Member curlycue's Avatar
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    Smile Elmiron

    wow that is why I love these boards. I am going to call my Ins.Co on moday Thanks Ladies you guys are wonderful.
    Blessings,
    Ruth

  8. #8
    ICN Member tigger_gal's Avatar
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    would you be eligable to her ssd or even medicade? Diffently call the store and ask the for the companies names, look in the net for an rx help.
    'The will of God will never take you where the Grace of God will not protect you.'

  9. #9
    ICN Member
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    Smile cost of Elimron

    I am glad that I am not the only one having to pay alot for Elimron. I paid $85 for my first bottle and now not sure can take it. I to am a stay at home mom, with a little bit of subbing at the school, but not enough to matter. I do have alittle insurance. But keep your faith in our Lord and he will get you through this time in your life. This is what is keeping me going. Also know this is a great place for encouragement and support which I have found Bamafan

  10. #10
    ICN Member mary124's Avatar
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    I get my at the retail pharmacy, I use to get them with mail order when it was cheaper (3 months for 2 co-pays) now it doesn't matter, its 3 months for 3 co-pays). Most of my prescriptions are anywhere from $25.00 to $40.00 a month. Elmiron is $25.00

  11. #11
    ICN Member MerryBerryMoose's Avatar
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    I pay $20.00 for a month supply of Elmiron.

    Medical "Issues":
    IC
    GERD
    Tachycardia(resting rate is 125-130 )
    Medicastions:
    Tramadol-as needed (IC)-50mg
    Elmiron 200mg twice a day
    Levsin .125mg 1-2 pills 4 times a day

  12. #12
    ICN Member TerryW's Avatar
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    Question Elmiron Cut off

    Hi,

    I'm new to this support group. I've had IC for years and years, but just found out I cannot get Elmiron anymore thru my insurance co! (Aetna PPO) I'm in a total flare (also had a ruptured ovarian cyst last week) and don't know what to do. I've been taking baths all the time and using heating pads, but its been pretty bad. There are no generics or anything that I've heard of. I'm at a total losss. Any suggestions would be very helpful.

    Sincerely,

    Terry
    Almost 50, mother of Carolyn,8 and Leah , 11
    Only meds were Elmiron and occasionally Oxybutynin.

  13. #13
    ICN Member petrie86's Avatar
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    I also pay $35 a month for Elmiron.
    ***Rachel***

    Dance like no one is watching
    Love like you've never been hurt
    Live today like it's your last

    Dxd with IC in June '06

  14. #14
    ICN Member
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    Free Elmiron

    Hi, I don't know if we're allowed to offer this, but I have a friend who tried the Elmiron instills and they didn't agree with her, now we have a bottle of new pills and will have to trash them......unless I can find someone who wants them.

  15. #15
    ICN Member laker46580's Avatar
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    Elmiron Cost

    I just went for my 2 month check up. All went well. I literally have very minimal symtoms. I made a mistake when I first started Elmiron. I thought it was one in the morning and 1 at night. I found out a month later I read wrong. It should have been 2 each time. My doctor said to keep taking 1 each time unless I start a flare then double up. I am so happy to be almost symtom free but it does come at a big price. My Elmiron is $300 per month and I have to pay $100. I also take a hormone @ $25 to me and amytripthline which is only $5. I wish the Elmiron were cheaper but I can't afford not to take it.
    I wish the rest of you the same luck I've had and it's only been 2 months but I have watched the diet pretty close also.

    Be blessed today. We finally had a day in the 70's but back to snow today! What can I say but Indiana weather.

    ~Mary
    Diagnosed Jan 07

    Stopped Elmiron due to hair loss @ 4 months

    Stopped Amitriptyline 25mg bedtime@6 months wt gain
    IC Diet
    Take 2 tablets cytroprotek daily WORKS GREAT!!!

    "I can't adjust the wind but I can adjust the sails"

    Mary

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