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Thread: Cny Cold Today!
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02-05-2007, 02:43 AM #1ICN Member
- Join Date
- Oct 2005
- Location
- Central, NY
- Posts
- 2,809
Cny Cold Today!
All schools closed today, not from the snow but from the temperature. Over 100 schools have closed in my area. It's 7 degrees where I am. It's -5 where I went to College. The windchill makes it feel even COLDER! -17 in Syracuse and -27 where I went to college.
I have to go out in it which I am not happy about. I have to get my car inspected. It's 6 days past due. Then I have to go to my primary care physician to drop off a yucky looking urine sample and get checked out for a headache that has been knocking me off balance for 5 days with nausea and an upset stomach. Wondering if it's a UTI. Then I have to drive to the other side of the City for an Ultrasound to check out that significant cyst they saw on the cat scan that was done on Friday for my Tailbone.
I think the COLD weather has broken me up. I am falling apart. From the waist down.
I took photos from my back window. http://s142.photobucket.com/albums/r...t=IMG_0220.jpg
http://s142.photobucket.com/albums/r...IMG_0217-1.jpg
Keep warm, fellow freezing friends!
KaraComplex Case: Severe IC 1999, Interstim 2001, Endometriosis 2001, End Stage Refractory IC 2002, Bladder Removal (Cystectomy) 2002, Gall Bladder Removal 2005, Infertility 2003, Urethra Removal, Bladder Reconstruction (Urethrectomy/Indiana Pouch) 2006, Celiac Disease 2007, Adhesion Disease 2007, Pudendal Nerve Entrapment, Ovarian Cysts, Vestibulitis, Vulvodynia, Total Vestibulectomy and removal of both Skene's Glands, 2007 and Coccydynia 2007. Fibromyalgia and, Chronic Myofascial Pain Syndrome both in my neck and knees, 2007, PNE Decompression Operation May, 2009.Multiple Chemical Sensitivities, Anesthesia Awareness (to awaken during operations)Pudendal Nerve Decompression Surgery, Revrse Uterine Sling, Sept. 2011
"One hour at a time, this was NOT my American Dream but it has to work out somehow."
I also have some journals of my journeys, past and some present at:
http://karasnewblog2008.blogspot.com/ and http://icnkaralynn.blogspot.com/
Most of my Journaling now is currently on Facebook. These are old and my ICN Patient story is very old and outdated.
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02-05-2007, 02:47 AM #2Support Leader
- Join Date
- Jan 2004
- Location
- North Carolina
- Posts
- 6,856
That is COLD!! I hope you stay warm as you go around to your various doctors!!! Good luck with the appointments. I hope they find out what's going on and can help you feel lots better
****
Jen
*Diagnosed with severe IC in 2004
*Also diagnosed with PFD, fibromyalgia, chronic myofascial pain, IBS, migraines, allergies/asthma, dermatographism
*Kept trying a million different treatments for all these things until I found what works, and I am doing okay these days with the help of a cocktail of medications and the InterStim, which was first placed in 2007. [I have had 2 revisions - one in 2010 when my battery died and had to be replaced, and one complete replacement (lead and generator) in 2012 after a fall on my stairs caused my lead to move.]
*Current meds include Atarax (50mg at night), Lyrica (150mg twice a day), Xanax (0.5mg at night and as needed), Zanaflex (4mg at night), hydrocodone (10/325, every 6 hours as needed), Advair, Nasonex, Singulair (10mg at night), oral contraceptives, home instills containing Elmiron and Marcaine (as often as I need to do them).
**I am not a medical authority nor do I offer definitive medical advice. I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
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02-05-2007, 02:50 AM #3ICN Member
- Join Date
- May 2006
- Location
- Perris,ca
- Posts
- 192
Your photos are beautiful but I will stay out here in CA were it is going to be in the 70's today. Hope all your test come out o.k. Take care of yourself and be carefull in all you do today.
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02-05-2007, 04:03 AM #4IC Friend
- Join Date
- Dec 2005
- Location
- Connecticut
- Posts
- 457
Jeepers!! Brrrrrr....
That is soooo very cold, yuk! Good Luck with your appointments today. It must be difficult for you to get out, I know. I went for a car ride for an hour yesterday, and it about killed me, I was in so much pain when I got back. Take it easy and let us know how you make out. ~ Chris
Thank You all so much to everyone here for all your sharing, caring and support! 
< My "Bear"
CurrentTreatments:
Started herbal teas 6/2/06 Marshmallow root, comfrey root, and catnip. 6/25/06 added Mullein Leaf Powder to tea.
IC Diet
Hydroxyzine 50 or 100mg at night (Is restarted)
Zoloft 100mg 4/8/07 (Is restarted)
Klonopin 1/2 mg 4 X Day (started 3/17/07)
Past Treatments: Amitriptyline, Neurontin, Hytrin, Heparin instills (was Dc'd after 5 weekly tx's due to severe urethritis), Superior hypogastric plexus block, E-stim, Elmiron instills (started 4/18/06-Dc'd 5/30/06 due to severe urethritis/infection requiring foley cath @ home 4 days), Oxycontin (oxycodone) (4/18/06)-pain (Dc'd 5/31/06), Levsin S/L (hyoscyamine) (3/17/06)-antispasmotic (Dc'd 5/31/06), Elmiron (1/24/06)-(Dc'd 6/25/06), Prelief, Zanaflex 4mg for PFD (Dc'd 10/1/06), CystaQ 1 in am & 1 in pm with food(started 5/12/06-increased to 2 in am & 1 in pm 9/20/06---Dc'd 10/18/06), Lyrica (started 10/26/06 up to 600 mg-Dc'd 12/4/06 due to urinary retention), Vicodin (hydrocodone) ES PRN for pain (Dc'd 1/4/07); Cymbalta 30mg (start 1/17/07) up to 60mg in am (1/26/07) (D/c'd 3/17/07); Ativan 1mg(Lorazepam)- PRN Anxiety (changed to Klonopin 1/2mg 4Xday 3/17/07); Pyridium (phenazopyridine) PRN-bladder analgesic; MSM (6/12/06) 1000mg after breakfast & dinner (Dc'd 3/15/07); Acidophilus (Natrol) 100mg. 1 capsule 1/2 hour before breakfast (5/20/06) (Dc'd 3/17/07)
Added BACK in - Atarax (hydroxyzine) (started 4/6/06 Dc'd 5/31/06) Restart 50mg at night 8/18/06, up to 100mg at night 1/4/07. Zoloft 100mg-Depression (Dc'd 7/25/06) Restart 4/8/07) 100mg.
Dx'd: Dec 05 (Positive PST in November and positive cystoscopy in Dec) Symptoms: Pain, frequency, urgency & retention
My Myspace page - http://www.myspace.com/42620225
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02-05-2007, 05:38 AM #5ICN Member
- Join Date
- Sep 2006
- Location
- USA
- Posts
- 1,897
Wow.....that is really cold!!! I think it is cold here when it gets in the 40's
Try to stay bundled up today and I hope all goes well with your appointments.Miss Bessie
Galatians 6:2 - Carry each other's burdens, and in this way you will fulfill the law of Christ.
Hebrews 13:2 - Do not forget to entertain strangers, for by doing so some people have entertained angels without knowing it.
Proverbs 4:23 - Above all else, guard your heart, for it is the wellspring of life
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02-05-2007, 05:47 AM #6Support Volunteer
- Join Date
- Nov 2006
- Location
- Louisiana
- Posts
- 8,892
Burrrr Kara, Gives me chills just looking at the pictures...
I am sorry you are feeling so bad, and I am sure the weather is not helping, I know I could never live up north, because I have to have my sunlight...
Well I hope you will have some pain free days soon, My thoughts and prayers are always with you((((((((((hugs))))))))))))Hugs
Ronda
ONE Second, ONE Bite, ONE Breath, ONE Pill, ONE Minute, ONE Teardrop, ONE Hour, ONE Sip.. ONE DAY! I will Prevail from this disease! IC Hoping for a Cure!
Link to Patient Handbook:
http://www.ic-network.com/handbook/
Diet Reference Sheet:
http://www.ic-network.com/diet/icndi...tsheet0909.pdf
Meds For IC: Lyrica-25mg Glucosamine-500 MSM-500mg, Prosed Ds -When Flaring
Other Meds: Levlite- Continious Birtcontrol, Micardis-40mg for High Blood Pressure
Meds I have Tried:
Topamax,Tofranil, Elmiron, Atarax, Cymbalta, Elavil, Enablex, Detral La, Prydium.
Lexapro< Bad reaction to this med!
Intstills, could not continue them due to some kind of reaction after 3rd instill. Tasted the lidocaine in my mouth, tongue and lips went numb then went into what seemed like a panic attack. Shaking, racing heart, tingling face/head, blood pressure shot up..
Dx With IC in Nov 2006 with Hydro/Cysto
Hydro/Cysto Caused Bladder to Rupture.
Other Dxs-Vulvodynia,Fibro, Endo, IBS, HPV, Migraines, Spastic Colon, Mild Dysplasia.
ICN Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
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02-05-2007, 07:44 AM #7ICN Member
- Join Date
- Sep 2004
- Location
- Sweet Home. Or
- Posts
- 1,034
BRRRRRRRR! It looks so cold. Good luck on your appts. What a day to have to go out.
Meds I take:
Elmiron, Elavil, Vagifem- for IC
Albuterol, Flovent, Atrovent- for Asthma and lung problems
Paxil, Clonazepam- for depression and Anxiety
Atenolol- for rapid heart rate
Nexium- for Gerd
Levothyroxin- for Hypothyroidism
Lasix, Pottasium- for edema
Lipitor- for High Cholesterol
I coated aspirin
02 at bedtime
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02-05-2007, 07:49 AM #8ICN Member
- Join Date
- Apr 2002
- Location
- ANYTOWN
- Posts
- 8,554
I hear ya its colder then heeck, it was -3 and the windchill -19 this morning,, its been like this for days.. all the schools here are closed too..
try to keep warm..'The will of God will never take you where the Grace of God will not protect you.'
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02-05-2007, 08:03 AM #9ICN Member
- Join Date
- Dec 2006
- Location
- lexington,ky
- Posts
- 355
man kara i hear ya.central new york is way too cold right now.my daughter didn't have school today,but our heating is busted in our apt.supposedly their trying to fix it,but its still 63 in here!
ya know were supposed to get 10 inches tonight too right?sorry!i can't wait to move to kentucky!
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02-05-2007, 09:35 AM #10ICN Member
- Join Date
- Oct 2005
- Location
- Central, NY
- Posts
- 2,809
Cny
I am not sure about how much snow tonight. I have not yet watched the news for tomorrow. I hope we don't get 10 inches tonight. I've done all of my running around for today. The roads "looked" ok but as we are all to familiar with here, looks are decieving. While getting my car inspected they closed down 81 South due to multiple accidents. They never close this down unless it's real bad. I was not driving that way but I know plenty of people who were.
Praying that your heat has gotten fixed!
None of us should have to have that happen in this weather. Can you go somewhere else, a friend or family member, or hotel?
Kara
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02-05-2007, 09:51 AM #11ICN Member
- Join Date
- Dec 2006
- Location
- lexington,ky
- Posts
- 355
our heat is starting to work,were up to 70!!!!! we had to run around for awhile too so we were warmer in the car
yes we witnessed onon. lake parkway being closed,we go that route.no visibility. i hope it gets warmer tomorrow,i have my first hydro/cysto tomorrow,and this cold makes everything tense up,so surgery plus cold will probably kill me!stay warm.
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