01-29-2007, 05:04 PM #1
Hello to All !! Prayers continue for yooooz!
Ok, I went to see specialist today and she took one look and said "OMG how long have you been like this and what happened to you to cause this?"
I finally got validation!!!! It's not just IC but alot of horrible scarring from several previous surgeries to remove ovarian cysts, previous botched bladder and bowel lift, childhood sexual abuse, pesiotomies (don't know if I spelled it right, lol) from child birth. 5 children and hysterectomy. I asked her why none of the many other docs never seen it and she basically chalked it up to them being men. One male gynie told me "that's just the way you are made". Sheeeeesh! So she tried to put one of those rings in to push up my bladder but had to take it right back out. She wants to try to avoid any more surgery but it doesn't look good. But when I get through with all the docs that let me suffer so badly for the past 6 years, the last being excruciating, they will wish they had helped me before I got so bad.
At first I was really upset and crying uncontrollably, but now I am mad. There's a reporter from our local tv station, waiting to hear from me after my appointment today and I will be calling him tomorrow. I haven't been able to sit in a chair or walk for over a year now and they have the nerve to kick me out of the hospital last month???!!!! OH BOY am I mad. If I have been suffering all this time, being told I'm a crazy woman and I need to go to mental health, and I am a drug seeker, how many more "me's" are out there? Every time I went to a doc, my records followed me with all those lies and influenced what the docs thought about me. I can't stand the thought of how many other women like me are out there in this suffering. The thought of doctors ignoring thousands of other women like me and making them think there is no hope just drives me up a wall and down the other side.
So PLEASE don't give up! Keep fighting for recognition and pain relief. I have finally found a great family doctor and he sent me to this wonderful female gynie today. She said that she will find a way to make me well. You all can do it too! THERE IS HOPE. We all just have to find the docs who are docs because they care about people and not so much the paycheck. I am praying for ALL of you and the tears that are falling down my face are for each one of us! KEEP UP THE FIGHT!
PRAYERS AND BLESSINGS FROM GOD TO EVERYONE! LOVE AND CARING IS THE KEY!All my hobbies & plans for my life have come to a screeching halt in this past year and the next looks pretty bleak! But I know GOD has a plan for me or I wouldn't be here. Just like all of you! That's what keeps me waking up each day even though I don't want to face another day of screeming pain. I will Garden again. I will Knit & Crochet and do all the Creative things that are stuck in my head again. I want to go camping & fishing. GOD BLESS US ALL INDEED! This is my cat Mikey, only Mikey is black with faint reddish brown stripes. You can only see his stripes when the light shines on him a certain way. He is blessed too!
Diagnosed with IC 1996
Prolapsed bladder & bowel (2nd time)
DILAUDID (Only if I have to cuz they make me shake)
PYRIDIUM (Freezes bladder lining)
"STILL SMILIN CUZ WHEN I GET ABOVE THE SUN, I'LL BE ALL BETTER"
01-29-2007, 06:37 PM #2
- Join Date
- Jan 2007
- Edmonton, Canada
I am so glad for you!! I pray all things go well for you
I can't imagine how some people do it without having a doc that recognizes and know what IC is. How you keep on till you find the doc that is bright enough to find out the truth behind it all. I was very fortunate in that ever since my hysterectomy 2 years ago, I ended up with a doctor who was able to pinpoint and figure out I had IC when the pain intensified after my surgery.
01-31-2007, 11:02 AM #3
- Join Date
- Nov 2002
- Rhode Island
Congrats to you!!!! I understand. I went through 7 freakin' years of pain b/c every said that nothing was wrong with me!!!! I finally found a wonderful wonderful doc. that finally justified me. TG for good people!
01-31-2007, 11:06 AM #4
I am so happy that you finally found a doctor that is going to help you****
*Diagnosed with severe IC in 2004
*Also diagnosed with PFD, fibromyalgia, chronic myofascial pain, IBS, migraines, allergies/asthma, dermatographism
*Kept trying a million different treatments for all these things until I found what works, and I am doing okay these days with the help of a cocktail of medications and the InterStim, which was first placed in 2007. [I have had 2 revisions - one in 2010 when my battery died and had to be replaced, and one complete replacement (lead and generator) in 2012 after a fall on my stairs caused my lead to move.]
*Current meds include Atarax (50mg at night), Lyrica (150mg twice a day), Xanax (0.5mg at night and as needed), Zanaflex (4mg at night), hydrocodone (10/325, every 6 hours as needed), Advair, Nasonex, Singulair (10mg at night), oral contraceptives, home instills containing Elmiron and Marcaine (as often as I need to do them).
**I am not a medical authority nor do I offer definitive medical advice. I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
02-03-2007, 11:16 AM #5
Nine years of being told I was a headcase...
Curlyfries, I'm so glad to hear from you, and didn't I tell you that you were due for some good luck?! :woohoo:
So now you're going to be an activist. All I can say is ... you GO, girl!
Peace,Je vous souhaite de la joie, de la bonne santée, et tout ce qu'il y a de bon dans la vie.
Wishing you happiness and good health, and all the best out of life.
Laura (11), Susannah (12 1/2) and Maman (that's me!), North Wildwood NJ, September 2007
02-03-2007, 12:22 PM #6
Curlyfries, you are an inspiration, you did it, you got the help you deeply deserve. :woohoo:
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