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  1. #1
    ICN Member Kara29's Avatar
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    Red face Interstim is coming out Tomorrow! 7 Years Old

    After all has been said and done Today, My Interstim is coming out. I just got off of the phone with my doctor in Boston. It was an upsetting conversation because he told me that he didn't understand why I could not find a Urologist here in Syracuse to remove it. He knows my whole story and how hard I have struggled to find professional, competant, caring doctors to take my case. I told him that it was only right that he remove it because he was the doctor who put it in for me. I've been nothing but loyal to him for 8 years now! He hemmed and hawed over it for a few minutes and then agreed to do it. He said he wanted it out soon if I was in so much pain. I mentioned that it would take me years to find a doctor elsewhere to do it for me. He said he didn't think we would want to make the 5 hour drive and that it would be a hassle. Not in our opinion. We'd rather do that then wait a year to find someone else to do it.

    He asked me if I could leave Syracuse tomorrow to have the Interstim removed on Friday. IF HIS SECRETARY AGREES that it can be done then. He said he just had a cancellation today for that time slot and that I would fit in perfectly.

    So if the secretary says its a go: I will be leaving tomorrow afternoon/evening for Enitire Interstim Removal. He said it would be done under General and would take 15 minutes.

    I am so tired! But this needs to be done. I just hope it works out. I know how some secretaries can be about scheduling last minute surgeries.

    Thanks for your support! You all have been so good to me this week and I really appreciate it.

    Love and Hugs,

    Kara
    Last edited by Kara29; 01-25-2007 at 06:11 AM.
    Complex Case: Severe IC 1999, Interstim 2001, Endometriosis 2001, End Stage Refractory IC 2002, Bladder Removal (Cystectomy) 2002, Gall Bladder Removal 2005, Infertility 2003, Urethra Removal, Bladder Reconstruction (Urethrectomy/Indiana Pouch) 2006, Celiac Disease 2007, Adhesion Disease 2007, Pudendal Nerve Entrapment, Ovarian Cysts, Vestibulitis, Vulvodynia, Total Vestibulectomy and removal of both Skene's Glands, 2007 and Coccydynia 2007. Fibromyalgia and, Chronic Myofascial Pain Syndrome both in my neck and knees, 2007, PNE Decompression Operation May, 2009.Multiple Chemical Sensitivities, Anesthesia Awareness (to awaken during operations)Pudendal Nerve Decompression Surgery, Revrse Uterine Sling, Sept. 2011

    "One hour at a time, this was NOT my American Dream but it has to work out somehow."

    I also have some journals of my journeys, past and some present at:
    http://karasnewblog2008.blogspot.com/ and http://icnkaralynn.blogspot.com/

    Most of my Journaling now is currently on Facebook. These are old and my ICN Patient story is very old and outdated.

  2. #2
    Forum Manager ICNDonna's Avatar
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    I'll keep my fingers crossed for you. And I sincerely hope this will help your back pain so you can sit.

    Warm hugs and prayers headed your way,
    Donna
    Have you checked the ICN Shop?
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    Patient Help: http://www.ic-network.com/patientlinks.html

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    You'll find my story at: http://www.ic-network.com/patientstories/donna.html

    I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

    Anyone who says something is foolproof hasn't met a determined fool
    .....My Meggie.....

  3. #3
    ICN Member tigger_gal's Avatar
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    I never knew you had the interstim.. Keep us posted on how things go for you. no since of keeping it if it isn't working.
    'The will of God will never take you where the Grace of God will not protect you.'

  4. #4
    IC Friend ChrissySunshine's Avatar
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    Good Luck Kara!

    Hi Kara, What wonderful news! I hope that secretary gets its scheduled for you. I used to schedule surgeries, and it would drive me CRAZY when the doc wanted to do an "add on" or unexpected surgery. Since HE was the doc though, it was up to me to work it out with the hospital, lab and patient to get it all done, even immediate surgery. USUALLY what the doc says goes, and if he's got a cancellation, it shouldn't be a problem. Good Luck to you!
    Thank You all so much to everyone here for all your sharing, caring and support!
    < My "Bear"
    CurrentTreatments:
    Started herbal teas 6/2/06 Marshmallow root, comfrey root, and catnip. 6/25/06 added Mullein Leaf Powder to tea.
    IC Diet
    Hydroxyzine 50 or 100mg at night (Is restarted)
    Zoloft 100mg 4/8/07 (Is restarted)
    Klonopin 1/2 mg 4 X Day (started 3/17/07)
    Past Treatments: Amitriptyline, Neurontin, Hytrin, Heparin instills (was Dc'd after 5 weekly tx's due to severe urethritis), Superior hypogastric plexus block, E-stim, Elmiron instills (started 4/18/06-Dc'd 5/30/06 due to severe urethritis/infection requiring foley cath @ home 4 days), Oxycontin (oxycodone) (4/18/06)-pain (Dc'd 5/31/06), Levsin S/L (hyoscyamine) (3/17/06)-antispasmotic (Dc'd 5/31/06), Elmiron (1/24/06)-(Dc'd 6/25/06), Prelief, Zanaflex 4mg for PFD (Dc'd 10/1/06), CystaQ 1 in am & 1 in pm with food(started 5/12/06-increased to 2 in am & 1 in pm 9/20/06---Dc'd 10/18/06), Lyrica (started 10/26/06 up to 600 mg-Dc'd 12/4/06 due to urinary retention), Vicodin (hydrocodone) ES PRN for pain (Dc'd 1/4/07); Cymbalta 30mg (start 1/17/07) up to 60mg in am (1/26/07) (D/c'd 3/17/07); Ativan 1mg(Lorazepam)- PRN Anxiety (changed to Klonopin 1/2mg 4Xday 3/17/07); Pyridium (phenazopyridine) PRN-bladder analgesic; MSM (6/12/06) 1000mg after breakfast & dinner (Dc'd 3/15/07); Acidophilus (Natrol) 100mg. 1 capsule 1/2 hour before breakfast (5/20/06) (Dc'd 3/17/07)

    Added BACK in - Atarax (hydroxyzine) (started 4/6/06 Dc'd 5/31/06) Restart 50mg at night 8/18/06, up to 100mg at night 1/4/07. Zoloft 100mg-Depression (Dc'd 7/25/06) Restart 4/8/07) 100mg.
    Dx'd: Dec 05 (Positive PST in November and positive cystoscopy in Dec) Symptoms: Pain, frequency, urgency & retention


    My Myspace page - http://www.myspace.com/42620225

  5. #5
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  6. #6
    IC Friend aprilmae's Avatar
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    Yippee!!!! Good news at last. I am so happy for you and so glad he finally got back to you.

  7. #7
    ICN Member Emma's Mommy's Avatar
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    Apr 2006
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    Syracuse, NY
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    have a safe trip and a speedy recovery!
    Erika
    wife to Jeremy
    mom to Emma (3-8-05)
    and Natalie (7-23-07)


    Meds i'm currently taking:
    Lortab as needed for pain


    Meds that did not help:
    Detrol LA
    Lexapro (caused urgency)
    Amatryptaline 10mg once a day (helped IC but made me feel like CRAP)




  8. #8
    ICN Staff SharonA's Avatar
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    Hope this works out for you and relieves that back pain.
    Sharon

    Shopping??? Did someone mention shopping? I'll get my hat... ;-)

    Where I can be found most days.

    If not there, then here


    Link to the ICN Patient Handbook:
    http://www.ic-network.com/handbook/

    Link to the IC Diet:
    http://www.ic-network.com/diet/


    IC Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

  9. #9
    ICN Member Bessie's Avatar
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    I am so glad the doctor finally agreed to help you out. He should be the one to take it out since he is the one who put it in. It always amazes me how willing doctors are in the beginning to help and then when they can't figure things out they get frustrated and don't want to do anything.

    I am sorry you have to drive so far to get it done but I know it will be worth it. I pray this will get rid of the pain you have been in.

    Have a safe trip and when you feel better please let us.
    Miss Bessie

    Galatians 6:2 - Carry each other's burdens, and in this way you will fulfill the law of Christ.

    Hebrews 13:2 - Do not forget to entertain strangers, for by doing so some people have entertained angels without knowing it.

    Proverbs 4:23 - Above all else, guard your heart, for it is the wellspring of life

  10. #10
    Support Volunteers
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    Good luck tomorrow . Hope this ends a lot of the pain you have, though I do realize it is not the whole problem, just a part of it. Is it same day surgery or will you need to stay in the hospital over night? I will be thinking of you tomorrow. Sending you a big hug, Judith

  11. #11
    It's amazing how much pain those can cause. My dad had one and it was shut down for a few years because he became tolerant to the meds. But anyway, he was in excruciating pain daily, couldn't sleep, was swelling everywhere, had sores on his skin.

    Anyway, they removed it and it was just filthy. It had created some sort of reaction to the implant all around it and developed scar tissue, mucus, unhealed tissue, all sorts of stuff in there and it had literally been poisoning him that whole time. No wonder he had been in terrible pain! Yuck!

    So, thank God you are getting it removed, I hope it solves alot of your pain issues and you feel well afterwards.

  12. #12
    ICN Member Kara29's Avatar
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    Heading to Boston in a few hours

    Everything has been set for tomorrow in Boston. The pre-op has been done; the pre-admission testing has been completed. I just need to meet with the Anesthesiologist before I go in. I am scheduled for same day surgery but if things don't go as planned they will keep me overnight. I will be Interstim free by Tomorrow night! I hope this helps the back pain. It's been rough! I am NOT looking forward to traveling 5 hours. I will have to lie down in the back seat. My parents took off of work to take me. I am grateful that I have them and that they are so supportive!

    Thanks for your support!

    Kara
    Complex Case: Severe IC 1999, Interstim 2001, Endometriosis 2001, End Stage Refractory IC 2002, Bladder Removal (Cystectomy) 2002, Gall Bladder Removal 2005, Infertility 2003, Urethra Removal, Bladder Reconstruction (Urethrectomy/Indiana Pouch) 2006, Celiac Disease 2007, Adhesion Disease 2007, Pudendal Nerve Entrapment, Ovarian Cysts, Vestibulitis, Vulvodynia, Total Vestibulectomy and removal of both Skene's Glands, 2007 and Coccydynia 2007. Fibromyalgia and, Chronic Myofascial Pain Syndrome both in my neck and knees, 2007, PNE Decompression Operation May, 2009.Multiple Chemical Sensitivities, Anesthesia Awareness (to awaken during operations)Pudendal Nerve Decompression Surgery, Revrse Uterine Sling, Sept. 2011

    "One hour at a time, this was NOT my American Dream but it has to work out somehow."

    I also have some journals of my journeys, past and some present at:
    http://karasnewblog2008.blogspot.com/ and http://icnkaralynn.blogspot.com/

    Most of my Journaling now is currently on Facebook. These are old and my ICN Patient story is very old and outdated.

  13. #13
    Canada IC Coordinator DebbieB's Avatar
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    Ontario, Canada
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    685
    Hi Kara ;

    I wish you all the best and hope that this surgery goes fast and you have
    a speedy recovery as well ..
    I will be thinking of you Kara..

    So sorry that you have been through so much Kara ..
    My thoughts and are with you Kara.

    Tender hugs, Debbie
    Thinking positive has got me through to another day!!

  14. #14
    ICN Member Mel53H's Avatar
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    Better days ahead, Kara. I will be thinking of you today. Hang in there.
    Meds I take:
    Elmiron, Elavil, Vagifem- for IC
    Albuterol, Flovent, Atrovent- for Asthma and lung problems
    Paxil, Clonazepam- for depression and Anxiety
    Atenolol- for rapid heart rate
    Nexium- for Gerd
    Levothyroxin- for Hypothyroidism
    Lasix, Pottasium- for edema
    Lipitor- for High Cholesterol
    I coated aspirin
    02 at bedtime

  15. #15
    ICN Member Emma's Mommy's Avatar
    Join Date
    Apr 2006
    Location
    Syracuse, NY
    Posts
    305
    kara have a safe trip! if you need anything when you get back let me know!

    watching me limp around with my broken toe will give you a good laugh if nothing else!

    have a safe trip!
    Erika
    wife to Jeremy
    mom to Emma (3-8-05)
    and Natalie (7-23-07)


    Meds i'm currently taking:
    Lortab as needed for pain


    Meds that did not help:
    Detrol LA
    Lexapro (caused urgency)
    Amatryptaline 10mg once a day (helped IC but made me feel like CRAP)




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