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  1. #1
    ICN Member
    Join Date
    Dec 2006
    Location
    portland, oregon
    Posts
    20

    good news from my school!

    so i was diagnosed not too long ago but IC's something i've struggled with my whole life. i just didn't know what was wrong with me.
    i've been in beauty school for a little over a year now though and this past year has been the worst ever which is what finally made me go to the doctor. but in the past year i've missed a lot of school. i've gotten so behind and frustrated with our school i didn't think anyone would help me with my situation because there are already people in the admin that don't like me (namely the owner of the school haha) due to me having problems with my schedule.
    anyway i went to talk to someone about it finally because i missed 5 days in a row because of my IC and i started explaining to the woman what i have. i said i thoughti had chronic bladder infections but it turns out i have another condition... and she said do you have IC?.. totally threw me off! i was like uh.. yea actually i do. she was like oh my husband has that.
    anyway she is going to make it so my absent days aren't going to count against me! i was so worried all my absences would prevent me from getting a job i want. it was great news. and i'm really glad to have met someone in real life that knows i'm not crazy and what i have is real and willing to help me out!
    it seems like whenever i think things aren't going to work out and i finally decide that it doesn't matter i'll get through it without help, the help finds me =]
    love.life.

  2. #2
    Forum Manager ICNDonna's Avatar
    Join Date
    Mar 2000
    Location
    Oregon
    Posts
    32,902
    I think it's great that you have found someone who will work with you on this.

    Sending welcoming hugs,
    Donna
    Have you checked the ICN Shop?
    http://www.icnsales.com for US & Canada
    http://www.icnshop.com for all others

    Patient Help: http://www.ic-network.com/patientlinks.html

    Diet list: http://www.ic-network.com/diet/2009icdietlist.pdf

    You'll find my story at: http://www.ic-network.com/patientstories/donna.html

    I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

    Anyone who says something is foolproof hasn't met a determined fool
    .....My Meggie.....

  3. #3
    ICN Member sacausa's Avatar
    Join Date
    Oct 2004
    Location
    Tampa Bay area in Florida/ Miami for college
    Posts
    675
    That's AWESOME!
    current meds:
    cytotec 200mcg twice daily
    toprol
    allegra

    ONLY 3 MEDICATIONS!!! YAY! Would never have dreamed this is possible

    dx: hashimoto's thyroiditis 1998
    dx: interstitial cystitis via cystoscopy with hydrodistention and biopsy 2003
    dx: endometriosis 2003
    dx: innapropriate sinus tacchicardia 2005

    meds tried but failed:
    elavil (6months)- severe tachycardia
    elmiron (1yr6mo.)- no improvement, nausea, hair loss, stomach ulcers
    a bunch of others



    Me and my best friend's baby (also my Godson!)

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