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  1. #1
    IC Friend Grandma Susie's Avatar
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    Question Ulcerative IC surgery

    I am having laser surgery Fri. for Hunner's ulcers in my bladder. It was diagnosed with a scope in the office and WOW it hurts SO MUCH. I'm taking Neurontin, Elmiron, Eurelle, Tramado, Loritab, Trazadone, Muscle relaxer at night. I also have Fibro, and Osteo Arthritis, and have had surgeries for the OA. This has thrown me for a loop. I can't excape the pain and am hoping this proceedure will help. Has anyone here had this done and how did it help??

    Hunner's ulcers
    meds: a.m. Neurontin (400 mg 3xday)
    Urelle, Instills, Estrodial, Calcium, Fish Oil, Multivitman
    tramadol 1x mid day, loritab prn

    2Elmiron, 2muslce relaxer, Zanex,last Neurontin (bedtime)

  2. #2
    ICN Member Katrina's Avatar
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    I hope your surgery goes well. My understanding is that many have relief from the surgery but in some cases the hunners come back and some end up doing the proceedure again. Other than Laser surgery patients surveys seem to say that rescue instillations are the treatment of choice...Just letting you know. I hope you get relief and get a lot of improvement.

    Faith, Hope, and Love,
    Katrina


    I believe God is using me. He uses me for God. Things I gain from all my suffering are meant to help others. I hope I can help you too. Email me or start a chat if you like my help or anything. I CARE!Illnesses: IC,IBS, IBD, GERD, PFD, Epilepsy, Endo, Allergies, RLM,Rapid heart beat, low blood pressure,Gastritis,Gall stones,Tendonitis,migraines, Shingles, Prolapsed pouch,ext. fatigue (current problem) I have seen periods of remission and I have seen them end and return. At this time remission is over and working on getting it back! My hope story http://www.ic-network.com/patientstories/katrina.html
    http://mandksales.net
    IC Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
    or find me on facebook http://www.facebook.com/kat671?ref=profile
    Be the Miracle! & Pay it Forward!

    carmelann@charter.net please contact me...I am here to help!http://health.groups.yahoo.com/group/ICinWI/ if your from WI please contact me!

  3. #3
    IC Friend Grandma Susie's Avatar
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    Thank you for your reply

    I've done the instilations for a year and even did them myself for a while until I got too nervous and hated it. It cost me $35 everytime I do one and have had to do double doses twice a week. Sure hope this laser treatment works. I'll let you know
    Thanks again

    Hunner's ulcers
    meds: a.m. Neurontin (400 mg 3xday)
    Urelle, Instills, Estrodial, Calcium, Fish Oil, Multivitman
    tramadol 1x mid day, loritab prn

    2Elmiron, 2muslce relaxer, Zanex,last Neurontin (bedtime)

  4. #4
    ICN Member ~*~Christine~*~'s Avatar
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    Good luck and God bless tomorow; you will feel SO much better when you get those suckers removed

    The first pee, after surgery, may sting quite a bit. This is because the wounds where the ulcers were removed are healing, but a few pees later and it's fine : )

  5. #5
    Angel watching over us
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    I have had mine lasered multiple times and the relief was wonderful. I usually had mine done in conjunction with a hydrodistention and had decent pain control for about 6 months.


    Hugs,
    Barb
    (Babs passed away in April 2009. We honor her memory and remember her fondly. - Jill O. ICN President & Founder)

    [SIZE="1"]Proud mama of a gift named Lindsey who taught me through her autism what is important in life:angel:
    :angel: IC Angel Volunteer Coordinator :angel:
    :) Contact me via PM or e-mail if you would like to help
    I have learned all about life in 3 words: It goes on! :D--Robert Frost
    PCOS 7/85
    RSD 7/94 :headbang:
    Endometriosis 9/98 :toilet:
    Antiphospholipid antibody syndrome 9/99
    Kidney stones--too many to count
    Factor V Leiden mutation 10/02
    IC 6/03 :evilsmile
    Deep Venous Thrombosis and Cellulitis 12/05 :loco: DVT and Greenfield Placed 3/14/08
    "Spirit is an invisible force made visible in all of life"--Maya Angelou
    "Ohana means family--no one gets left behind or forgotten." Stitch[/SIZE][/SIZE][/SIZE]

  6. #6
    ICN Member Briza's Avatar
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    I had ulcers burned off (fulgurated) during my hydro. I had complications with retention and ileus and week hospital stay after the hydro, so mine was not a "normal" recovery and took quite a few months before I began feeling better. I do still get mini flares that are taken care of pretty quickly (like within a day) if I take all my meds and watch my diet, but since the long recovery, I have never had the sharp stabbing pains that I got before the hydro and only have to take my meds as needed now. So maybe, who knows, the removal of the ulcers is why I don't get those debiltating pains anymore. I still have other symptoms, but not extreme stabbing pain like before. I hope they don't come back, because I dread another hydro. I have not done installations, but would consider doing them to avoid having another hydro. Please don't think I'm trying to scare you, complications are rare, so I have been told, and you will most likely get thru this fine, with maybe just some extra pain from having the ulcers burned off.
    Just as a side note, I don't believe I got the "therapuetic" effects from the hydro that some IC paitients do.
    Best wishes and let us know how it goes.
    In remission since Aug 2009!
    New to IC? read this--IC Treatment and Diagnostic Guidelines--American Urological Association
    http://interstitial-cystitis-diet.bl...nosis-and.html
    *** http://www.auanet.org/content/guidel...ent_ic-bps.pdf
    What helped me get to and stay in remission? stress reduction, diet, time, meditation, stress reduction, stress reduction, stress reduction!--I no longer take medications for IC, PFD,VV, anxiety, or depression. Making career and lifestyle changes to reduce stress and learning techniques to manage anxiety set the stage for my bladder to heal.
    My history: No history of bladder issues***Onset of IC and VV sxs Nov 2003***Diagnosed Nov 2004 based on symptoms and hydro/biopsy results***Cysto-Hydro did not give therapeutic relief, I had complications and long recovery ***Hunner's Ulcers found and removed during hydro***Symptoms: the usual~pain, burning, spasms, frequency, urgency, nocturia, lower back and upper thigh pain, very bloated "IC Belly"
    Treatments that helped my IC,VV,& PFD symptoms: pyridium, elavil, tylenol 3, ibuprofen, lidocaine gel and patches, cold packs, heating pad, diet, lots of water

  7. #7
    IC Friend Grandma Susie's Avatar
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    Yahoo, It's over! It went really well, however the first day I was on Loritab and it kept me pretty well undecontrol, but drugged. Yesteday rested and today am back to normal. WOw I didn't think it would be so immideate. I'm still sore, but no japping bladder pain. Thank yu for allyour hlp and good thoughts. The doc said I had very large bladder capacity, which is a good thing. 3 ulcers and he fixed me right up. Now if I could get the fibro back under control...... Thanks again to everyone.
    Warm hugs,
    Susie

    Hunner's ulcers
    meds: a.m. Neurontin (400 mg 3xday)
    Urelle, Instills, Estrodial, Calcium, Fish Oil, Multivitman
    tramadol 1x mid day, loritab prn

    2Elmiron, 2muslce relaxer, Zanex,last Neurontin (bedtime)

  8. #8
    Angel watching over us
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    Susie,
    Yippee!:woohoo: I am glad you got such quick relief.

    Hugs and get well wishes,
    Barb
    (Babs passed away in April 2009. We honor her memory and remember her fondly. - Jill O. ICN President & Founder)

    [SIZE="1"]Proud mama of a gift named Lindsey who taught me through her autism what is important in life:angel:
    :angel: IC Angel Volunteer Coordinator :angel:
    :) Contact me via PM or e-mail if you would like to help
    I have learned all about life in 3 words: It goes on! :D--Robert Frost
    PCOS 7/85
    RSD 7/94 :headbang:
    Endometriosis 9/98 :toilet:
    Antiphospholipid antibody syndrome 9/99
    Kidney stones--too many to count
    Factor V Leiden mutation 10/02
    IC 6/03 :evilsmile
    Deep Venous Thrombosis and Cellulitis 12/05 :loco: DVT and Greenfield Placed 3/14/08
    "Spirit is an invisible force made visible in all of life"--Maya Angelou
    "Ohana means family--no one gets left behind or forgotten." Stitch[/SIZE][/SIZE][/SIZE]

  9. #9
    IC Friend Grandma Susie's Avatar
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    Thanks Babs,
    I sure hope others can get as good a response. I'm only 48 hours after surgery, and I'm really optomistic. :woohoo:
    warm hugs to you,
    susie

    Hunner's ulcers
    meds: a.m. Neurontin (400 mg 3xday)
    Urelle, Instills, Estrodial, Calcium, Fish Oil, Multivitman
    tramadol 1x mid day, loritab prn

    2Elmiron, 2muslce relaxer, Zanex,last Neurontin (bedtime)

  10. #10
    ICN Member Katrina's Avatar
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    Green Bay WI
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    9,904
    That is great! :woohoo:
    Faith, Hope, and Love,
    Katrina


    I believe God is using me. He uses me for God. Things I gain from all my suffering are meant to help others. I hope I can help you too. Email me or start a chat if you like my help or anything. I CARE!Illnesses: IC,IBS, IBD, GERD, PFD, Epilepsy, Endo, Allergies, RLM,Rapid heart beat, low blood pressure,Gastritis,Gall stones,Tendonitis,migraines, Shingles, Prolapsed pouch,ext. fatigue (current problem) I have seen periods of remission and I have seen them end and return. At this time remission is over and working on getting it back! My hope story http://www.ic-network.com/patientstories/katrina.html
    http://mandksales.net
    IC Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
    or find me on facebook http://www.facebook.com/kat671?ref=profile
    Be the Miracle! & Pay it Forward!

    carmelann@charter.net please contact me...I am here to help!http://health.groups.yahoo.com/group/ICinWI/ if your from WI please contact me!

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