11-05-2006, 05:44 AM #1
I talked to Laura and her Dad! Update 11/5/2006
I talked in length with Laura's sweet Dad! Laura saw her visiting nurse. The nurse gave her some supplies and ordered her some more. The nurse explained like mine did with me that basically Laura would be doing all of her own care by herself. She said she was only there to order supplies. This is how my nurse was. WHERE ARE REAL NURSES TODAY????? The tube in her stoma is out and in a few weeks she will have her SupraPubic Tube pulled out. FAST!!! I should have gone to that doctor for surgery! Her SPT is coming out of her belly button and it's connected to a leg bad and at night, a night bag that is more accommodating because it's larger. The nurse came of a Friday. Over a week ago, Saturday she was vomiting up stool which can happen when people have to take large amounts of narcotics and have had this surgery. She tried over two days to take 5 laxatives but it wasn't working for her so she went back into the hospital. At the hospital did a cat scan and found that she had a leak in her Indiana Pouch, and a Paralytic ileus
Paralytic ileus refers to a lack of passage due to paralysis of the bowel, i.e. Ogilvie syndrome. This can be caused by intra-abdominal surgery, medication (morphinomimetica), injury or infection. She also had a small bowel obstruction. They had to drive 4 hours back to the Hospital. In the hospital they gave her Phernergan and Toridol. She was there for 6 days. The small bowel obstruction passed on its own. There is some ileus left, they are giving her Senecot to help it pass. She is now only taking Ultram and Ativan for the pain. She reports that the Ativan seems to help her with the pain more than the Ultram which I can believe because Ativan is like a muscle relaxer and it calms the whole body down. It's an antianxiety medication. She says that the Phantom Urgency is Killing her and it bothers her more than the pain of surgery. I understand that all too well. Dr. Evans talked with her about doing the Denervation on her if it comes down to that. He does NOT believe in waiting a whole year for it to pass because for some people it never goes away. He believes in pain free life and a whole year is a whole year wasted when they can help her now.
On happier notes! She has her wonderful kids this weekend. She is so incredibly happy right now! She is also getting her computer today or tomorrow so she can type for herself soon! SHe still feels ill and her recovery has been rough but she sounds in good spirits!
Side note: Since we are now on the topic of Denervation and horrible phantom pain,I may be going to NC if no one can help me in NY. She is going to talk to him tomorrow about me. He already knows a lot about me from what she has told him. She is going to have him call me. They don't believe in having to suffer anymore than I already have. SO NICE OF HER!
Last edited by Judith56; 11-05-2006 at 03:23 PM.Complex Case: Severe IC 1999, Interstim 2001, Endometriosis 2001, End Stage Refractory IC 2002, Bladder Removal (Cystectomy) 2002, Gall Bladder Removal 2005, Infertility 2003, Urethra Removal, Bladder Reconstruction (Urethrectomy/Indiana Pouch) 2006, Celiac Disease 2007, Adhesion Disease 2007, Pudendal Nerve Entrapment, Ovarian Cysts, Vestibulitis, Vulvodynia, Total Vestibulectomy and removal of both Skene's Glands, 2007 and Coccydynia 2007. Fibromyalgia and, Chronic Myofascial Pain Syndrome both in my neck and knees, 2007, PNE Decompression Operation May, 2009.Multiple Chemical Sensitivities, Anesthesia Awareness (to awaken during operations)Pudendal Nerve Decompression Surgery, Revrse Uterine Sling, Sept. 2011
"One hour at a time, this was NOT my American Dream but it has to work out somehow."
I also have some journals of my journeys, past and some present at:
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Most of my Journaling now is currently on Facebook. These are old and my ICN Patient story is very old and outdated.
11-05-2006, 06:25 AM #2
- Join Date
- Jun 2006
Sorry to hear she had to go back into the hosptial but she is back home and had her kids. That is good news. I hope it all goes well for her from now on.
Kara I hope too that her doctor can help you out. It would be so wonderful for you to finally stop you pain.
11-05-2006, 07:16 AM #3
Sounds unfun....familiar with some of that. Glad she is somewhat better. I hope she heals well now from all of that.
So hope Dr. Evans can help you both with this!!!!!!!!!!!!!!!!!!Faith, Hope, and Love,
I believe God is using me. He uses me for God. Things I gain from all my suffering are meant to help others. I hope I can help you too. Email me or start a chat if you like my help or anything. I CARE!Illnesses: IC,IBS, IBD, GERD, PFD, Epilepsy, Endo, Allergies, RLM,Rapid heart beat, low blood pressure,Gastritis,Gall stones,Tendonitis,migraines, Shingles, Prolapsed pouch,ext. fatigue (current problem) I have seen periods of remission and I have seen them end and return. At this time remission is over and working on getting it back! My hope story http://www.ic-network.com/patientstories/katrina.html
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11-05-2006, 11:18 AM #4
- Join Date
- Mar 2004
- Viera, Florida
Please give her love to me. I wish my own body's retaliation hadn't happened now so I could be more helpful.
PS She and her kids remain in my prayers.
Barb(Babs passed away in April 2009. We honor her memory and remember her fondly. - Jill O. ICN President & Founder)
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I have learned all about life in 3 words: It goes on! :D--Robert Frost
RSD 7/94 :headbang:
Endometriosis 9/98 :toilet:
Antiphospholipid antibody syndrome 9/99
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11-05-2006, 03:34 PM #5
kara thank you for the information on laura. How terrible about the bowel and things. I pray she stays strong and gets through this terrible recovery.not yet dx with ic-diagnosing myself as of aug 2006
diagnosed ic-october 5 2006(huh just what I thought)
cod liver oil (for vitamins a and d)
bladder is not getting worse but maybe better
diagnosed ibs-september 27, 2006
don't know if it's ibs or some other underlining condition. hair loss, weight loss, constipation
all this even though I eat.
Mercury toxicity with Candida Albicans
Realy toxic and sick
Dental almagams removal and chelation for heavy metal toxins and candida cleansing as soon as fillings are out
had catscan, ultrasound, colonoscopy
Matthew 21 verse 22: jesus quotes"and all the things you ask in prayer, having faith, you will receive."
I eat to live, not live to eat.
11-05-2006, 03:38 PM #6
I hope she recovers soon, and Kara, it sounds great for you, maybe Dr Evans can help you!!!!!!!!!!!!!
GOOD LUCK TO BOTH OF YOU!!!!!!!!!!
11-06-2006, 11:42 AM #7
- Join Date
- Jan 2006
Laura, I am still thinking of you and praying for you. I am glad to hear that you are doing well. Sorry I havent been able to post the last few weeks.....(my computer has been messed up and wouldnt let me post). Anyway, you have remained in my thoughts and prayers and I am glad that you are doing well.
Thank you, Kara for keeping us informed!! Please relay to her how very much we care! Hugs, Amy
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