10-16-2006, 06:46 PM #1
pseudonomas infection questions...
Has anyone here been formally diangosed with a pseudonomal infection of the urogenitorinary tract? I would love as much infromation about this as possible, such as.. what are the spacific symptoms.. just how difficult is it to test for (how reliable are test results), ect. I have been searching for info. about this on the net, but all I have been coming up with are very vague notations, and most of the information on this bacteria seems to be in relation to the resperatory tract. I would love to know how I could get tested for this.. of course, "adequately". I don't have much faith left in our "average" laboratories. Much thanks to anyone who can help. PM me if you'de like.
10-17-2006, 02:49 AM #2
Your doctor should be able to help you.
DonnaHave you checked the ICN Shop?
http://www.icnsales.com for US & Canada
http://www.icnshop.com for all others
Patient Help: http://www.ic-network.com/patientlinks.html
Diet list: http://www.ic-network.com/diet/2009icdietlist.pdf
You'll find my story at: http://www.ic-network.com/patientstories/donna.html
I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
Anyone who says something is foolproof hasn't met a determined fool
10-17-2006, 03:10 AM #3
- Join Date
- Dec 2005
Have you ever had a broth culture done? Could they detect pseudonomas? I just had one done and they found Klebsiella.
I too don't have much faith in routine urine tests done at the regular labs. Maybe I would have more faith if they hadn't missed so many infections. I am with you on this one. Wish I knew more about pseudonomas.
10-17-2006, 10:37 AM #4
Yes, I have had the broth done twice, and am about to do it again. I am under Ruth's instruction. It hasn't picked up pseudo., but I still have an intuition about this bacteria, for a couple of reasons. And, even though I am ohh so greatful for United lab. and their brilliant broth culturing technique, I am sure it isn't a "find all" technique. I have read that pseudo is a very slow growing organism, and can be difficult to detect.. esp if the culture isn't kept long enough (I also read that it is a sporochete or rod shaped bacteria that has saphisticated abilities.. such as hiding in biofilms).. kind of reminds me of the borellia(sp?) - (lyme bacteria).. rod shaped.. high adaptability, esp to antibiotics.. slow growing.. difficult to culture.. ect.
I know Romans was (maybe still is) having difficulty with this bacteria in her urine, but she cultured it herself. I am hoping to figure out a way that I can get an "adaquate" culture done for this bacteria, for certain. As I believe I recall, even though Romans cultured this in her urine, she had difficulty proving her findings to her local lab, who were unable to replicate her findings. This is what really makes me wonder, how can I be 100% certain this bacteria is being tested for properly, and isn't being missed.
Thanks for your responses!
10-17-2006, 10:49 AM #5
Good luck!Faith, Hope, and Love,
I believe God is using me. He uses me for God. Things I gain from all my suffering are meant to help others. I hope I can help you too. Email me or start a chat if you like my help or anything. I CARE!Illnesses: IC,IBS, IBD, GERD, PFD, Epilepsy, Endo, Allergies, RLM,Rapid heart beat, low blood pressure,Gastritis,Gall stones,Tendonitis,migraines, Shingles, Prolapsed pouch,ext. fatigue (current problem) I have seen periods of remission and I have seen them end and return. At this time remission is over and working on getting it back! My hope story http://www.ic-network.com/patientstories/katrina.html
IC Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
or find me on facebook http://www.facebook.com/kat671?ref=profile
Be the Miracle! & Pay it Forward!
email@example.com please contact me...I am here to help!http://health.groups.yahoo.com/group/ICinWI/ if your from WI please contact me!
Users Browsing this Thread
There are currently 1 users browsing this thread. (0 members and 1 guests)
By icjen in forum Managing Yeast InfectionsReplies: 7Last Post: 06-17-2006, 11:49 AM
By DreamChaser in forum Flare Coping Strategies For Interstitial CystitisReplies: 10Last Post: 02-17-2006, 02:43 PM
By crystilclear in forum Other Related ConditionsReplies: 2Last Post: 11-29-2004, 11:42 AM
By crystilclear in forum Help! I'm in an interstitial cystitis flare!Replies: 3Last Post: 11-28-2004, 10:58 AM
By Kara in forum Bladder RemovalReplies: 6Last Post: 09-27-2002, 07:17 AM