Thread: just another rotten wkend
08-28-2006, 04:34 PM #1
just another rotten wkend
I am waiting for the new Dr to get my surgery scheduled to totally remove my bladder and correct all the damage done by the other surgery done by a stupid dr thought by just stretching the bladder would make everything ok. WRONG!!!! Well this wkend I landed my butt in the Er and they said the infection in my bladder has spread to my kidneys and that if something is not done soon then my kidneys are going to start failing thats how bad the infection is soooo here goes more meds and another worry. I feel like pooh and wondering if i will ever catch a break. just another frustrating wkend all was going good and then wham the infection got me good. going in tomorrow and they want to put in a super pubic tube to drain away the infection and possiablly a chemport because the meds are making me sick. I just wish I could post happy days well maybe soon. Thx for letting me vent!
08-28-2006, 04:58 PM #2
I am here for you if you want to talk.
I am here for you if you want to talk about what is happening to you.
Praying for better days ahead! Hoping the SPT gives you and your infection some relief.....
KaraComplex Case: Severe IC 1999, Interstim 2001, Endometriosis 2001, End Stage Refractory IC 2002, Bladder Removal (Cystectomy) 2002, Gall Bladder Removal 2005, Infertility 2003, Urethra Removal, Bladder Reconstruction (Urethrectomy/Indiana Pouch) 2006, Celiac Disease 2007, Adhesion Disease 2007, Pudendal Nerve Entrapment, Ovarian Cysts, Vestibulitis, Vulvodynia, Total Vestibulectomy and removal of both Skene's Glands, 2007 and Coccydynia 2007. Fibromyalgia and, Chronic Myofascial Pain Syndrome both in my neck and knees, 2007, PNE Decompression Operation May, 2009.Multiple Chemical Sensitivities, Anesthesia Awareness (to awaken during operations)Pudendal Nerve Decompression Surgery, Revrse Uterine Sling, Sept. 2011
"One hour at a time, this was NOT my American Dream but it has to work out somehow."
I also have some journals of my journeys, past and some present at:
http://karasnewblog2008.blogspot.com/ and http://icnkaralynn.blogspot.com/
Most of my Journaling now is currently on Facebook. These are old and my ICN Patient story is very old and outdated.
08-29-2006, 01:23 AM #3
I'm so sorry you are going through all of this. Doesn't sound fun at all. I hope things get better for you soon.
08-29-2006, 03:23 AM #4
Hope you feel better soon! Hugs Sandra
08-29-2006, 04:20 AM #5Sharon
Shopping??? Did someone mention shopping? I'll get my hat... ;-)
Where I can be found most days.
If not there, then here
Link to the ICN Patient Handbook:
Link to the IC Diet:
IC Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
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