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  1. #1
    Support Volunteers ICNJess's Avatar
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    Stim out, and I feel great!

    Yesterday I had my stim out. Man, oh man, that was a fight. I got there at 11 and the nurse came out and said, "oh your surgery isn't until 1:00". I was starving and sooo thirsty! I felt like crying! I was so nervous that I was just about throwing up. Well I got taken back, had to give urine to make sure I wasn't pregnant (thankfully I was not!) and they began the whole IV process, questions, etc.

    Then the doc came by, and this is not a joke, what he said to me next was horrific.

    "Would you like me to reimplant it again?" I stared at him in shock.

    "No, it didn't work last year, and it won't work this time, and you know it."

    "Okay, just checking. So removed?"

    "YES!! And can I keep my unit?" He agreed and then they wheeled me back for surgery.

    So he got the unit out, plus 98% of the lead. I was relieved about that, but still worried about that 2%...he assured me it wasn't going anywhere. Hmm...just like my unit?

    Oh and this is the part that really irks me. I told the nurse about my pain and she goes, "oh dear, that sounds like nerve pain!" and I said, "yeah, it does, and it hurts like nothing I've ever experienced before."

    Well the doc came back, I told him about the pain, and he dismissed it! He said it was not nerve pain, nor was it related to the unit. Funny...haven't had much of that pain since the unit was removed PLUS the unit was 6 inches above where it was first implanted.

    Today, I am just really tired but my backside already feels better now that the unit isn't pressing into me. I am so relieved. I hope the other stimmers going through removal also have an easier time.
    Mommy to 2 crazy, wonderful kids and wife to the most amazing man in the world!

  2. #2
    ICN Member poetgirl's Avatar
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    I'm glad to know you're feeling better now that the Interstim is removed. Hope your backside heals up quickly!
    Namaste

    "You must be the change you want to see in the world." - Mahatma Gandhi

    "The most important medicine is tender love and care" - Mother Teresa

    Proud mother of Ahleia, born on April 9, 2007

    -----------------------
    Diagnosed with:
    IC, OAB, Congenital urethral stricture, IBS, Vulvar vestibulitis, Heart murmur, Congenital cervical stenosis...but otherwise doing great!

    Meds:
    Currently in remission, but took the following for 3 years: Elmiron 200 mg., Elavil 25 mg., Detrol LA 4mg, Ovcon-35

    Health treatments/practices:
    Kripalu yoga, Chiropractic, Massage therapy and Reiki

  3. #3
    ICN Member ICLori's Avatar
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    I hope you heal quickly and that the pain won't come back or anything. Those interstims cause more harm than good, I'm certain of it after reading all the posts here...

    Blessings,
    Lori

  4. #4
    ICN Member charmedx3's Avatar
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    my uro just recommended the interstim to me. From all I have read................ I don't think so!
    glad to hear you are feeling better!
    mom to 3 wonderful kids


    IC symptoms 7/03,
    hysterectomy 11/04,
    prolapse cervix 7/07
    diagnosed: IC 2007
    IBS 2008

  5. #5
    Support Volunteers ICNJess's Avatar
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    I wish my uro would never have mentioned this unit to me. It has been such a nightmare, plus two extra surgeries. If I never have surgery again, it will be too soon! Now I just wait to see if there are any lingering, "rest of life" effects. We'll see as time goes on, I suppose.

    I just hope that people think very carefully about going through with this device. I was so desperate at the time for relief, but a year or so later, it was becoming a problem. Not worth it for me.
    Mommy to 2 crazy, wonderful kids and wife to the most amazing man in the world!

  6. #6
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    Glad it is over with and you are on the mend.

  7. #7
    ICN Member vm's Avatar
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    Sooooo glad you've gotten relief, Jess. Long overdue, huh? Happy for you.
    Kim

    Diagnosed August 2001

    Current IC meds: Elmiron (since 2001), Levaquin (one pill after intercourse to prevent UTIs), Effexor (for depression & anxiety)


    Past IC meds: Amitriptyline (Elavil), Hydroxyzine (Vistaril), Detrol LA, Lexapro (for depression & anxiety, but also helped my IC) (They all helped, but I was able to discontinue them.)

    My IC story: http://www.ic-network.com/patientstories/kim.html It's very outdated now. I've been virtually symptom free and able to eat & drink whatever I'd like for about 8 years now.

    *****************************

    “We who lived in concentration camps can remember the men who walked through the huts comforting others, giving away their last piece of bread. They may have been few in number, but they offer sufficient proof that everything can be taken from a man but one thing: the last of the human freedoms -- to choose one's attitude in any given set of circumstances, to choose one's own way.” ~ Viktor Frankl

    “You cannot control what happens to you, but you can control your attitude toward what happens to you, and in that, you will be mastering change rather than allowing it to master you.” ~ Brian Tracy

  8. #8
    ICN Member
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    I'm so glad that your surgery is over & that you're already feeling better! I hope things continue to improve for you!
    ,
    Karma



    Dream with the feathers of angels stuffed beneath your head - Clutch

    IC, PFD, IBS, Fibromyalgia, MPS, Migraines, Allergies, Scoliosis, Bi-polar, Vulvodynia......

  9. #9
    ICN Member Dixiefireball's Avatar
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    So glad it is out Jess, and I pray you never have to worry about any type of problems later down the line!! I also pray you heal quickly!!

    sending you hugs and prayers.
    Rhonda
    Medicine taken daily or as needed:
    1. Heaprin and Marcaine rescue installment 1 to 3x daily as needed.
    2. MS.Cotin 100mg 3x daily
    3. MSIR 30mg 1 or 2 every 4-6hrs as needed for breakthrew pain.
    4. Fentanyl 100 mg Change every 48hrs.
    5. Gentamicin 80mg install after each rescue treatment
    5 Leviquin 500mg self start as needed.
    6. Klonopin 1 or 2 daily as needed.
    7. Prosed/DS as 1 every 6hrs as needed.





    I have IC, but IC doesn't have me anymore!

  10. #10
    ICN Member patricia1's Avatar
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    Louisiana
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    Isnt amazing how when you first get this you are overwhelmed with hope joy and happiness because this is gonna help with your IC and finally have some relief. Then to have problems occur and again sugery and again happy, joy and overwhelmed that it is now gone, so you can feel better from that.

    I am glad you are doing well and I hope you continue to heal good...
    God grant me the serinity to withstand the days ahead!!!

    My myspace link...
    www.myspace.com/patricia_luvs_matt


    Patricia

    In Memory of My Father (Lawerence) 1/25/2007

    Procedures:
    Interstim Sept 2001
    1st InterStim Removal May 2005
    2nd Interstim Implanted May 2005
    2nd InterStim Removed March 2007
    Hysterectomy 1999
    Tubes Tied 1997
    C-Section 1996


    Me and my kids


    Taylor (my daughter) Me and my daughter My son Cody and Taylor

  11. #11
    Support Volunteers ICNJess's Avatar
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    I spoke too soon...my backside is sooo sore today. I spent most of the day in bed. Ugh. I guess the anesthetic he put in the pocket has worn off, and I am so sick of pain medication. It feels like it is still there, like it's still sticking me. I hope that feeling goes away soon.
    Mommy to 2 crazy, wonderful kids and wife to the most amazing man in the world!

  12. #12
    ICN Member vm's Avatar
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    Oh, I bet it will. Probably like any surgery that area will need time to heal and get to feeling better.
    Kim

    Diagnosed August 2001

    Current IC meds: Elmiron (since 2001), Levaquin (one pill after intercourse to prevent UTIs), Effexor (for depression & anxiety)


    Past IC meds: Amitriptyline (Elavil), Hydroxyzine (Vistaril), Detrol LA, Lexapro (for depression & anxiety, but also helped my IC) (They all helped, but I was able to discontinue them.)

    My IC story: http://www.ic-network.com/patientstories/kim.html It's very outdated now. I've been virtually symptom free and able to eat & drink whatever I'd like for about 8 years now.

    *****************************

    “We who lived in concentration camps can remember the men who walked through the huts comforting others, giving away their last piece of bread. They may have been few in number, but they offer sufficient proof that everything can be taken from a man but one thing: the last of the human freedoms -- to choose one's attitude in any given set of circumstances, to choose one's own way.” ~ Viktor Frankl

    “You cannot control what happens to you, but you can control your attitude toward what happens to you, and in that, you will be mastering change rather than allowing it to master you.” ~ Brian Tracy

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