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  1. 05-09-2006, 12:22 PM #1
    Kara29
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    Thank You (I am back)

    Today is one week to the day of my surgery. At this time last week I was having the Urethrectomy and Reconstruction. To those of you who have been by my side this entire time for my revision, I want to extend my deepest thank you from my heart. Thank you to those who called, sent cards, flowers, and came to see me in the Hospital and posted questions on my behalf when I was unable to write them myself. It helped me heal to get to a better place. The support has been 100% priceless.

    I am back.

    I love you all and Thank You Again for Being There.

    Kara Lynn
    Last edited by Kara29; 05-09-2006 at 01:03 PM.
    Complex Case: Severe IC 1999, Interstim 2001, Endometriosis 2001, End Stage Refractory IC 2002, Bladder Removal (Cystectomy) 2002, Gall Bladder Removal 2005, Infertility 2003, Urethra Removal, Bladder Reconstruction (Urethrectomy/Indiana Pouch) 2006, Celiac Disease 2007, Adhesion Disease 2007, Pudendal Nerve Entrapment, Ovarian Cysts, Vestibulitis, Vulvodynia, Total Vestibulectomy and removal of both Skene's Glands, 2007 and Coccydynia 2007. Fibromyalgia and, Chronic Myofascial Pain Syndrome both in my neck and knees, 2007, PNE Decompression Operation May, 2009.Multiple Chemical Sensitivities, Anesthesia Awareness (to awaken during operations)Pudendal Nerve Decompression Surgery, Revrse Uterine Sling, Sept. 2011

    "One hour at a time, this was NOT my American Dream but it has to work out somehow."

    I also have some journals of my journeys, past and some present at:
    http://karasnewblog2008.blogspot.com/ and http://icnkaralynn.blogspot.com/

    Most of my Journaling now is currently on Facebook. These are old and my ICN Patient story is very old and outdated.
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  2. 05-09-2006, 12:27 PM #2
    ihurttoo
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    Welcome back! Glad you are out of the hospital and on the road to recovery!
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  3. 05-09-2006, 12:29 PM #3
    dancemomof2
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    welcome back Kara, I am so glad you are doing so well. You get some rest and don't over do it.
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  4. 05-09-2006, 12:33 PM #4
    Katrina
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    back Kara! It is so wonderful to see you back here!!!!
    Faith, Hope, and Love,
    Katrina

    I believe God is using me. He uses me for God. Things I gain from all my suffering are meant to help others. I hope I can help you too. Email me or start a chat if you like my help or anything. I CARE!Illnesses: IC,IBS, IBD, GERD, PFD, Epilepsy, Endo, Allergies, RLM,Rapid heart beat, low blood pressure,Gastritis,Gall stones,Tendonitis,migraines, Shingles, Prolapsed pouch,ext. fatigue (current problem) I have seen periods of remission and I have seen them end and return. At this time remission is over and working on getting it back! My hope story http://www.ic-network.com/patientstories/katrina.html
    http://mandksales.net
    IC Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
    or find me on facebook http://www.facebook.com/kat671?ref=profile
    Be the Miracle! & Pay it Forward!
    carmelann@charter.net please contact me...I am here to help!http://health.groups.yahoo.com/group/ICinWI/ if your from WI please contact me!
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  5. 05-09-2006, 12:49 PM #5
    Dixiefireball
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    Kara,
    Glad you are back! I'm still praying for you!
    Rhonda
    Medicine taken daily or as needed:
    1. Heaprin and Marcaine rescue installment 1 to 3x daily as needed.
    2. MS.Cotin 100mg 3x daily
    3. MSIR 30mg 1 or 2 every 4-6hrs as needed for breakthrew pain.
    4. Fentanyl 100 mg Change every 48hrs.
    5. Gentamicin 80mg install after each rescue treatment
    5 Leviquin 500mg self start as needed.
    6. Klonopin 1 or 2 daily as needed.
    7. Prosed/DS as 1 every 6hrs as needed.





    I have IC, but IC doesn't have me anymore!
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  6. 05-09-2006, 01:19 PM #6
    Briza
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    Hi Kara
    It's good to hear from you and I'm so happy all went well. Here's to a fast and easy recovery!
    In remission since Aug 2009!
    New to IC? read this--IC Treatment and Diagnostic Guidelines--American Urological Association
    http://interstitial-cystitis-diet.bl...nosis-and.html     *** http://www.auanet.org/content/guidel...ent_ic-bps.pdf
    What helped me get to and stay in remission? stress reduction, diet, time, meditation, stress reduction, stress reduction, stress reduction!--I no longer take medications for IC, PFD,VV, anxiety, or depression. Making career and lifestyle changes to reduce stress and learning techniques to manage anxiety set the stage for my bladder to heal.
    My history: No history of bladder issues***Onset of IC and VV sxs Nov 2003***Diagnosed Nov 2004 based on symptoms and hydro/biopsy results***Cysto-Hydro did not give therapeutic relief, I had complications and long recovery ***Hunner's Ulcers found and removed during hydro***Symptoms: the usual~pain, burning, spasms, frequency, urgency, nocturia, lower back and upper thigh pain, very bloated "IC Belly"
    Treatments that helped my IC,VV,& PFD symptoms: pyridium, elavil, tylenol 3, ibuprofen, lidocaine gel and patches, cold packs, heating pad, diet, lots of water
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  7. 05-09-2006, 01:22 PM #7
    Judith56
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    I am so happy that things went so well for you! Good to have you back. I just spent a week in the hospital too, so if if there were questions that went unanswered by me I am sorry. I am here now to give you a hand if you need it.
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  8. 05-09-2006, 02:01 PM #8
    ~*~Christine~*~
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    Welcome back Kara!
    IC Live Journal
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  9. 05-09-2006, 02:03 PM #9
    ICLori
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    Welcome back, I am glad things have gone well, and I hope you recover quickly and feel better each passing day!

    Blessings,
    Lori
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  10. 05-09-2006, 02:14 PM #10
    sandramac
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    Talking

    So Glad your back! Love yeh girl! hugs Sandra ps Chris kicked butt tonite! LOL :woohoo:
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  11. 05-09-2006, 02:29 PM #11
    ICNDonna
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    You've been in my prayers. I'm so glad you are out of the hospital. Get lots of rest now and don't try to do too much too soon.

    Warm hugs,
    Donna
    Have you checked the ICN Shop?
    http://www.icnsales.com for US & Canada
    http://www.icnshop.com for all others

    Patient Help: http://www.ic-network.com/patientlinks.html

    Diet list: http://www.ic-network.com/diet/2009icdietlist.pdf

    You'll find my story at: http://www.ic-network.com/patientstories/donna.html

    I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

    Anyone who says something is foolproof hasn't met a determined fool
    .....My Meggie.....
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  12. 05-09-2006, 03:11 PM #12
    emilyrose197377
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    welcome back.
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  13. 05-09-2006, 03:19 PM #13
    Mel53H
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    Welcome back,Kara! :woohoo: Here's to a fast recovery so you can go on with your life.

    Big Hugs

    Mel
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  14. 05-09-2006, 04:42 PM #14
    Imustpee
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    Glad to see you back here with us....now, get better...we have margarita's to drink at the poolside....
    After suffering with IC for 40 years, my bladder was removed in Dec 05...YAY!
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  15. 05-09-2006, 05:41 PM #15
    Mrs. Burschman
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    Yay! Welcome back!

    How are you feeling? I hope you're not in too much pain. Recovery is hard work!

    Amy (Mrs. B)
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