Results 1 to 14 of 14
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04-18-2006, 03:24 AM #1
Mini flare caused by......WHAT???????
OK. I am following my diet to a T and I have been in a mini flare since thursday and I have no idea why!!!! I don't think I am eating anything that's causing it. Can anyone tell me what kinds of things on the may be ok aren't ok for you? Thanks!
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04-18-2006, 03:50 AM #2
I was woundering if you have thought about your stress level. I know that when my stress is up I go into a major flair.
So please watch your stress level along with everything else.
do not beat yourvself up and try to relax and I will keep ypu in my prayers
Amber Sevy

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04-18-2006, 04:13 AM #3IC Friend
- Join Date
- Feb 2006
- Location
- New York, NY
- Posts
- 93
Hi Javone
Stress is a biggie for me too. also, if I have a cold or something and my immune sysem is down that can make me flare too. finding triggers is so hard! Im stil trying to pin mine down. good luck and I hope you feel better soon!
Enk
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04-18-2006, 04:34 AM #4
I agree with the rest - when I was in the beginnings of the diet, my diagnosis, just started my meds, stress could get me every time. Even if I really didn't think I was too stressed, it was annoying!! LOL Also, any foods maybe sneak in a preservative or additive your bladder didn't like??? That's how I discovered soy flour was a no no for me. I thought I was eating friendly bread, ha! Joke was on me, ugh.
Hope you feel better and FAST!! Are you keeping a pain/voiding diary? That always helped me at least narrow down what didn't cause it, because I wrote down EVERYTHING, and what time. My meds, my cycle day, if i was under a "known" stressor, - you name it I recorded it!! lol
Hugs,
Tracey
How do you eat an elephant? One bite at a time...
Harry arrived 2/23/09!

*IC Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
IC Diet Cheat Sheet:
http://www.ic-network.com/diet/2009icdietlist.pdf
Dx's:
IC dx'd Nov 2004
Lymphocytic Colitis dx'd July 2005
Possible IBS
Current IC Meds
Vistaril 25mg in the evening
Previous IC Meds taken:
Cystoprotek - 2 caps 2x's a day
Elmiron, 100mg 3x's a day
Ditropan, 5 mg 3x's a day
Others:
Wellbutrin 150mg 2x's a day for Anxiety/IBS
Pepcid 40mg a day for GERD
Zytrec for Nasal Allergies
Align Probiotic daily for IBS
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04-18-2006, 05:24 AM #5
I think preservatives being snuck in is what is doing it. Then again I may be stressed.....I'm starting my first relationship. but then again I may have a UTI but I am not sure how...I don't cath....and all I have had to drink in 2 months was milk and water. This is crazy. I write down in my food diary whenn I have not felt good but not when I went to the bathroom.
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04-18-2006, 07:30 AM #6
Hmmm, a new relationship is a stressor, even though it's a good thing, but even good things can be stress inducers, lol.
And trust me - you don't have to cath to have a UTI!! I never have cathed and have had my fair share of them! If you think that could be it, I'd give my doc a call and maybe they can get you in for a urine test
Hugs,
Tracey
How do you eat an elephant? One bite at a time...
Harry arrived 2/23/09!

*IC Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
IC Diet Cheat Sheet:
http://www.ic-network.com/diet/2009icdietlist.pdf
Dx's:
IC dx'd Nov 2004
Lymphocytic Colitis dx'd July 2005
Possible IBS
Current IC Meds
Vistaril 25mg in the evening
Previous IC Meds taken:
Cystoprotek - 2 caps 2x's a day
Elmiron, 100mg 3x's a day
Ditropan, 5 mg 3x's a day
Others:
Wellbutrin 150mg 2x's a day for Anxiety/IBS
Pepcid 40mg a day for GERD
Zytrec for Nasal Allergies
Align Probiotic daily for IBS
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04-18-2006, 08:56 AM #7Registered User
- Join Date
- Mar 2006
- Location
- South Dakota
- Posts
- 278
Javone,
Remember, too, that the IC diet list is just a guide. There might be things not on the list that bother you (like melon or pears or who knows?) There might also be things that you're not supposed to eat that seem to be fine (peanut butter for me.) It's all really individualized. I'm a newby on the diet, too. I guess all we can do is give it time!
Amy (Mrs. Burschman)
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04-19-2006, 04:26 AM #8
I agree with Amy. The diet is a guide and there are things that I might be able to eat and you might not. That is the unique thing that sets IC off from other disease. Because each of our IC tends to be different from someone else the treatment and diet and different. Because of this not one med or treatment helps everyone. What works for me maybe would not work for you...Also if you have been following the diet maybe it is stress. Like the others stress is a huge factor for mine.
God grant me the serinity to withstand the days ahead!!!
My myspace link...
www.myspace.com/patricia_luvs_matt
Patricia 
In Memory of My Father (Lawerence) 1/25/2007
Procedures:
Interstim Sept 2001
1st InterStim Removal May 2005
2nd Interstim Implanted May 2005
2nd InterStim Removed March 2007
Hysterectomy 1999
Tubes Tied 1997
C-Section 1996
Me and my kids

Taylor (my daughter) Me and my daughter My son Cody and Taylor
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04-19-2006, 10:23 AM #9
Well, this is what bothers me on the ok list. Evian water, gerber pear juice, milk, eggs, turkey, cottage cheese, string cheese, pumpkin, yams, pears.
Courage doesn't always roar. Sometimes courage is the quiet voice at the end of the day saying, "I will try again tomorrow."
Mary Anne Radmacher
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04-19-2006, 10:58 AM #10
i think eggs cause me to flare big time. i stopped them for about 3 weeks and my bladder was good during that time. i started eating them again and i was in the worst flare ever....of course i ate some walnuts, apple and avacado too......but i think its the eggs for me.
i also notice i can eat a food once.......but if i eat it 2 or more days in a row im in flare.
Lyme disease diagnosed 11/05
vulvar vestibulitis diagnosed 2/06 -worst case she has ever seen..very bad.
IC diagnosed with hydro/cysto- may 17, 2006
Over growth of lactobicilli found 8/07 treating with doxy.
Was able to get my first internal exam evaluation for PFD....wohoo 1/18/07:woohoo:
8/22/07- was able to get my first speculum exam, with pap
Strep D found in bladder with United medical labs May 2006
2 strains of strep in stool culture 9/06
high Strep ASO titre found 10/06
NEW MED
Capsasin cream-once a day for 20min,
BUt wont lie it does burn
About to start valium supositories for PFD
Trigger point injections- oct 07
Current meds:
Neurontin- 100mg at night supposed to work up to 300mg if i can tolerate it
Zanaflex 2mg
IC and low oxalate diet, no sugar diet
Xanax for appointments to help relax me since they cause so much pain
Started PT 3/07, PT has really helped me in ways I never knew that it would
Meds ive tried
Lyrica
Klonopin
Singulair
Claritin
Pyridium
Soma- can barely tolerate half a pill
Atropine cream- didnt seem to work, although i found out I was applying the creams wrong
Estradiol cream
Urelle- caused worse bladder spasm and retention
Various antibiotics for lyme which caused yeast and made the IC and VV worse
waiting for the next chronic illness to pop up
"Did you know?
Every 15 seconds,
a person is
diagnosed with
interstitial cystitis."
Source: J. Dimitrakov, MD
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04-19-2006, 12:12 PM #11
Well, I just answered your Mucinex post. If it has a decongestant in it, you may be having problems with that. XOXOX
Hugs, Julie B
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04-26-2006, 12:46 PM #12Registered User
- Join Date
- Feb 2003
- Posts
- 91
Javone77, Think in terms of possible allergies to milk. I seemed to be pain free when I did not use milk. Also, be sure your water is alkaline.
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04-26-2006, 03:00 PM #13
I can totally sympathize with you.
I can't figure out what is bothering me either. I have added nothing back into my diet and I feel like I just keep eliminating things. The first couple weeks of the diet I noticed a big improvement and after that it seemed to get worse again. I only get a couple of good days here and there.
I hope we can both figure out what's going on soon and get better
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04-26-2006, 04:39 PM #14
On the "may be ok" list, unfortunately, less than half these foods are ok for me.
I really recommend eating only the "usually ok" list for 3-4 weeks, then adding in "may be ok" things one by one. I posted the list on the fridge & marked each thing as "ok for me", "NOT OK", "ok in small amounts".
On the "may be ok" list: I can eat (this list is shorter than what I can't)...
bottled water (certain brands only)
lowacid decaf coffee made in the Toddymaker & diluted with milk
small amounts of rice milk
oatmeal
health food store graham crackers
whole wheat bread
small amounts of canned parmesan
small amounts of CoolWhip (this makes no sense to me)
very small amounts of spinach as part of a meal, not alone
small amounts of blueberries as part of a meal, not alone
brown raisins
some caramel candies
small amount of white chocolate
cinnamon
I ONLY EAT THESE THINGS WHEN NOT FLARING. WHEN FLARING, I GRUMPILY GO BACK TO JUST THE "USUALLY OK" LIST.
I hope you find what is ok & not ok for you. This has really helped me & I rarely need painkillers because of it (and the other treatments listed below my name). In spite of the medicines though, without the diet, I'd be miserable 24/7 and would be very dependent on painkillers...
Wishing you better days soon...Kadi
-------------------------------------------------------------
I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
------------------------------------------------------
This week's favorite one-liner:
"Just remember, if the world didn't suck, we'd all fall off. ~Author Unknown
"
New second favorite:
Please, Lord, let me prove that winning the lottery won't spoil me.
- Unknown
Adding a third because I'm just so darn easily amused...
"Do not meddle in the affairs of dragons, for you are crunchy and taste good with ketchup.
- Bruce Graham"
Current treatments:
-IC diet
-Elavil 30mg at night
-Ditropan 5mg at night
-Continuous use birth control pills (4-5 periods/year)
-Heparin/Marcaine/Sodium Bicarb home instills every morning and night
-Pyridium if needed, usually once a week or so
-1 Vicodin at bedtime,
-Flexeril 10mg at bedtime
-Dye Free Benadryl for allergies occasionally
-Pelvic floor & myofascial release (external only) physical therapy for 8 weeks, then home exercise program...
-Managing stress
-Fur therapy: Hugging the cat!
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