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04-03-2006, 05:09 PM #1ICN Member
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- Jul 2004
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- 167
Lab Tissue Used to Rebuild 7 Bladders
Did everyone see this article? "For the first time, scientists have rebuilt a complex human organ, the bladder, in seven young patients using live tissue grown in the lab". I want a new lab grow bladder. I wonder if this could help us.
http://news.yahoo.com/s/ap/20060404/...NlYwN5bmNhdA--
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04-03-2006, 05:46 PM #2ICN Member
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- Oct 2005
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- Central, NY
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- 2,809
If IC is autoimmune this may not help.
IC could just attack the new bladder if it's in our whole body. I would want a lot more than 7 of them done and put into IC patients and see how they progress before I went this route. I would be too scared the IC would attack the new bladders.
KaraComplex Case: Severe IC 1999, Interstim 2001, Endometriosis 2001, End Stage Refractory IC 2002, Bladder Removal (Cystectomy) 2002, Gall Bladder Removal 2005, Infertility 2003, Urethra Removal, Bladder Reconstruction (Urethrectomy/Indiana Pouch) 2006, Celiac Disease 2007, Adhesion Disease 2007, Pudendal Nerve Entrapment, Ovarian Cysts, Vestibulitis, Vulvodynia, Total Vestibulectomy and removal of both Skene's Glands, 2007 and Coccydynia 2007. Fibromyalgia and, Chronic Myofascial Pain Syndrome both in my neck and knees, 2007, PNE Decompression Operation May, 2009.Multiple Chemical Sensitivities, Anesthesia Awareness (to awaken during operations)Pudendal Nerve Decompression Surgery, Revrse Uterine Sling, Sept. 2011
"One hour at a time, this was NOT my American Dream but it has to work out somehow."
I also have some journals of my journeys, past and some present at:
http://karasnewblog2008.blogspot.com/ and http://icnkaralynn.blogspot.com/
Most of my Journaling now is currently on Facebook. These are old and my ICN Patient story is very old and outdated.
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04-04-2006, 12:07 AM #3Support Leader
- Join Date
- Mar 2000
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- Salem, MA
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- 1,433
This is great news...it sounds like expansion on the 6 bladders grown in 1999 for six beagles...all of which were successful. Albeit it may not fit everyone's IC. But I am quite confident that a great percentage could be helped with a new bladder transplant.
I haven't looked at the article yet (due to slooooooow dialup) but I will take a look later today on a faster network....I'm curious to see if Dr. Atala is still involved with this project as it was his initially, years ago. His office was wonderful when I had called asking about the beagles a couple years ago.
Again I think this is wonderful and encouraging news that bladder research is indeed getting closer, and it may not be for everyone but certainly investigating before poo-pooing it
Somewhere there's a reason /Why things go like they do /Somewhere there's a reason /Why some things just fall through /We don't always see them /For what they really are /But I know there's a reason /Just can't see it from this far /Maybe I don't like it, /But I have no choice /I know that somewhere, /Someone hears my voice / I thought I knew it all /I thought I had it made /How could it end this way? /I thought I knew Somewhere there's a reason /Why things don't go my way /Somewhere there's a reason /That I cannot explain /Just like the change of season, /Just may not be my turn /But I know there's a reason, /The lesson's mine to learn
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04-04-2006, 03:14 AM #4ICN Member
- Join Date
- Mar 2005
- Location
- Louisiana
- Posts
- 2,132
Okay I am glad I was not seeing things...I saw something similar on the Good Morning America, and I posted another thread about it. The grew a new bladder for a woman with severe incontinence. They took good bladder cells from her and I think stem cells from other adults when the cells fused togehter and started working they transplanted them to her.
Possible hope maybe for IC? I hope so
God grant me the serinity to withstand the days ahead!!!
My myspace link...
www.myspace.com/patricia_luvs_matt
Patricia 
In Memory of My Father (Lawerence) 1/25/2007
Procedures:
Interstim Sept 2001
1st InterStim Removal May 2005
2nd Interstim Implanted May 2005
2nd InterStim Removed March 2007
Hysterectomy 1999
Tubes Tied 1997
C-Section 1996
Me and my kids
Taylor (my daughter) Me and my daughter My son Cody and Taylor
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04-04-2006, 04:32 AM #5ICN Member
- Join Date
- Apr 2004
- Posts
- 1,775
I also, like Kara, wonder about IC invading the new bladder. Doesn't this happen with neobladders? I would think that it would happen to a transplant bladder also. What would be cool, though, would be if they could inject/instill new bladder lining cells in us. It would probably have to be done every so often, but our bladders could actually have a lining for a while. OK. Who do I have to talk to about getting this done?
,
Karma
Dream with the feathers of angels stuffed beneath your head - Clutch
IC, PFD, IBS, Fibromyalgia, MPS, Migraines, Allergies, Scoliosis, Bi-polar, Vulvodynia......
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04-04-2006, 04:48 AM #6Support Volunteers
- Join Date
- Mar 2004
- Location
- Vermont
- Posts
- 1,486
Until they know all the causes for and why IC happens I like Kara and Karma, think it will not benefit us. I do however think it is wonderful for others who it will help. As for IC getting to neo-bladders, if the entire bladder was taken out as well as the urethra that does not usually happne, in fact it is rare. When it does occur it is usually in augmented bladders, those that are made bigger and some of the original bladder still remains.Judith
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04-04-2006, 05:19 AM #7ICN Member
- Join Date
- Oct 2005
- Location
- Central, NY
- Posts
- 2,809
I retained IC in my urethra my Neobladder is well.
Because they never took out my urethra this is the main problem. I know that IC can't attack intestinal tissue so it's not in the Neobladder just the old urethra that had IC tissue in it to begin with. What I fear about these new bladders is the fact that IC could attack them as where in a Neobladder case, it does not get attacked (in my case).
I hope I made some sense.
KaraComplex Case: Severe IC 1999, Interstim 2001, Endometriosis 2001, End Stage Refractory IC 2002, Bladder Removal (Cystectomy) 2002, Gall Bladder Removal 2005, Infertility 2003, Urethra Removal, Bladder Reconstruction (Urethrectomy/Indiana Pouch) 2006, Celiac Disease 2007, Adhesion Disease 2007, Pudendal Nerve Entrapment, Ovarian Cysts, Vestibulitis, Vulvodynia, Total Vestibulectomy and removal of both Skene's Glands, 2007 and Coccydynia 2007. Fibromyalgia and, Chronic Myofascial Pain Syndrome both in my neck and knees, 2007, PNE Decompression Operation May, 2009.Multiple Chemical Sensitivities, Anesthesia Awareness (to awaken during operations)Pudendal Nerve Decompression Surgery, Revrse Uterine Sling, Sept. 2011
"One hour at a time, this was NOT my American Dream but it has to work out somehow."
I also have some journals of my journeys, past and some present at:
http://karasnewblog2008.blogspot.com/ and http://icnkaralynn.blogspot.com/
Most of my Journaling now is currently on Facebook. These are old and my ICN Patient story is very old and outdated.
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04-04-2006, 05:47 AM #8ICN Member
- Join Date
- Apr 2004
- Posts
- 1,775
I'm sorry if I confused anyone. I meant to say augmented bladder, not neo-bladder.
,
Karma
Dream with the feathers of angels stuffed beneath your head - Clutch
IC, PFD, IBS, Fibromyalgia, MPS, Migraines, Allergies, Scoliosis, Bi-polar, Vulvodynia......
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04-04-2006, 05:56 AM #9Forum Manager
- Join Date
- Mar 2000
- Location
- Oregon
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- 32,597
I'd be willing to be a test case! Even if the IC came back, it would take time, possibly years for it to happen. In the meantime --- a vacation from IC.
The article was in our morning paper and I think it's good news.
DonnaHave you checked the ICN Shop?
http://www.icnsales.com for US & Canada
http://www.icnshop.com for all others
Patient Help: http://www.ic-network.com/patientlinks.html
Diet list: http://www.ic-network.com/diet/2009icdietlist.pdf
You'll find my story at: http://www.ic-network.com/patientstories/donna.html
I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
Anyone who says something is foolproof hasn't met a determined fool
.....My Meggie.....
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04-04-2006, 06:17 AM #10Registered User
- Join Date
- Sep 2005
- Location
- San Antonio, Texas
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- 273
Donna, you read my mind.
I just wanted to post the same what you did.
I wish you the best!
Oxana.
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04-04-2006, 03:15 PM #11Support Leader
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- Jan 2004
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- North Carolina
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- 6,856
Anyone interested in being a test case tell me... Tony Atala, one of the scientists involved in this, is now at Wake Foreset U. Medical Center, and that's where I am. In fact, my husband and I are beginning a collaboration with him using MRI to track implanted cells (without the need for biopsy) -- so I may be meeting him in person soon and can plead cases
****
Jen
*Diagnosed with severe IC in 2004
*Also diagnosed with PFD, fibromyalgia, chronic myofascial pain, IBS, migraines, allergies/asthma, dermatographism
*Kept trying a million different treatments for all these things until I found what works, and I am doing okay these days with the help of a cocktail of medications and the InterStim, which was first placed in 2007. [I have had 2 revisions - one in 2010 when my battery died and had to be replaced, and one complete replacement (lead and generator) in 2012 after a fall on my stairs caused my lead to move.]
*Current meds include Atarax (50mg at night), Lyrica (150mg twice a day), Xanax (0.5mg at night and as needed), Zanaflex (4mg at night), hydrocodone (10/325, every 6 hours as needed), Advair, Nasonex, Singulair (10mg at night), oral contraceptives, home instills containing Elmiron and Marcaine (as often as I need to do them).
**I am not a medical authority nor do I offer definitive medical advice. I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
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