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  1. #1
    ICN Member debbyakamom's Avatar
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    Oct 2005
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    Quincy, MA
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    28

    In DESPERATE Need Sympathetic Pain Doctor in Massachusetts

    I desperatly need a GOOD, SYMPATHETIC Pain Doctor, who is not afraid of writing scrips for Pain Medications
    I am sooooo sick of suffering and being told "There's not much else we can do"
    Especially when I KNOW there is, at least for me.
    When I was first diagnosed and in extreme pain, I was given Oxycontin & Percocet for the breaktrough.
    Then I went into remission for about the last 2 years.
    Now it is back with a VENGENCE!!!!
    I had a lot of other treatments also in the beginning but NOTHING worked as well as the pain med treatments.
    I don't know what it's like in other states but Massachusetts is UNBELIEVABLE to get ANYTHING for pain.
    The original Dr I was seeing moved out of state and I just can't find ANYONE.
    I'M DESPERATE................PLEASE HELP!!!!!

  2. #2
    Forum Manager ICNDonna's Avatar
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    Mar 2000
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    Oregon
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    32,580
    I'm too far away to be able to give you any advice on this --- hopefully someone near you will respond.

    Donna
    Have you checked the ICN Shop?
    http://www.icnsales.com for US & Canada
    http://www.icnshop.com for all others

    Patient Help: http://www.ic-network.com/patientlinks.html

    Diet list: http://www.ic-network.com/diet/2009icdietlist.pdf

    You'll find my story at: http://www.ic-network.com/patientstories/donna.html

    I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

    Anyone who says something is foolproof hasn't met a determined fool
    .....My Meggie.....

  3. #3
    ICN Member Kara29's Avatar
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    Oct 2005
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    Central, NY
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    Smile Here is some help....

    I don't know of a pain mangement doctor in MA. But Dr. Friedman in Natick, MA does give out paiin medication to patients he trusts won't abuse them. I have seen him for 7 years. He's on the cutting edge of treatment for IC and he may be able to help you. Here is his information.

    http://www.vasectomy-noscalpel.com/aboutus.html

    This site does not even begin to describe everything he really does for bladder problems. But it gives you some background information on him and his staff.

    Dr. Emanuel Friedman
    Metrowest Urology
    67 Union Street
    Natick, MA 01760
    508-655-4422

    If he does not give you the help you need, he may be able to refer you to a pain management specialist.

    Dr. Friedman is an IC Specialist

    Kara
    Complex Case: Severe IC 1999, Interstim 2001, Endometriosis 2001, End Stage Refractory IC 2002, Bladder Removal (Cystectomy) 2002, Gall Bladder Removal 2005, Infertility 2003, Urethra Removal, Bladder Reconstruction (Urethrectomy/Indiana Pouch) 2006, Celiac Disease 2007, Adhesion Disease 2007, Pudendal Nerve Entrapment, Ovarian Cysts, Vestibulitis, Vulvodynia, Total Vestibulectomy and removal of both Skene's Glands, 2007 and Coccydynia 2007. Fibromyalgia and, Chronic Myofascial Pain Syndrome both in my neck and knees, 2007, PNE Decompression Operation May, 2009.Multiple Chemical Sensitivities, Anesthesia Awareness (to awaken during operations)Pudendal Nerve Decompression Surgery, Revrse Uterine Sling, Sept. 2011

    "One hour at a time, this was NOT my American Dream but it has to work out somehow."

    I also have some journals of my journeys, past and some present at:
    http://karasnewblog2008.blogspot.com/ and http://icnkaralynn.blogspot.com/

    Most of my Journaling now is currently on Facebook. These are old and my ICN Patient story is very old and outdated.

  4. #4
    Registered User
    Join Date
    Nov 2005
    Location
    Billerica, Ma
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    7
    I can so relate to your frustration. I am going through the same thing ( I live North of Boston in ma) right now. I can't seem to get any doctor to realize that I need something for the pain. Right now I am prescribed ultram but when the pain is bad it is like popping a tictac. I wish I knew of a doctor in mass that could help. If you do find one please let me know and I will do the same. My thoughts and sympathy are with you.
    ~Kara

  5. #5
    ICN Member
    Join Date
    Oct 2005
    Posts
    18
    I also am looking for a new pain doctor as my other pain doctor, Dr. Brookoff who moved to Denver, is not accepting out-of-town patients. I did get in touch with a pain clinic in Rochester, NY out of Strong Memorial. Even though I have not gone to them, I did talk with the clinic, and they said they do treat IC. I don't know exactly what they prescribe but since they are a pain clinic and treat IC, I would assume it probably involves pain medication. Like I said, I have not yet gotten an appointment as I am looking around for a pain doctor, but I just wanted to write about this option to the lady in Massachusetts if she cannot find a pain clinic who treats IC in her area. If you are interested, write back and I will give you their phone number.

    Carol Junco

  6. #6
    ICN Member Kara29's Avatar
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    Oct 2005
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    Central, NY
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    Be Careful, Not all Pain Management Clinics will prescribe pain medication.

    Not all pain clinics prescribe pain meds. You need to call ahead of time to make sure they do or do not do that before you travel all the way across the country to see them. Some only do interventional therapy which is like nerve blocks and internal pain pumps and nerve stimulators. Some pain clinics require to see you every 2 weeks to a month for refilling the precriptions if they do precribe pain meds. I don't know who would do this for you if you lived out of state. Maybe your primary care doc could work something out with the pain mangmement clinic that you find to refill your meds each month. I have made the mistake of thinking that all pain management clinic prescribe and then when I get there, I find out they don't. So I just wanted to put the word out to ask first and if they do prescribe meds, what would you do if you came from out of state.

    Good Luck,

    Kara
    Complex Case: Severe IC 1999, Interstim 2001, Endometriosis 2001, End Stage Refractory IC 2002, Bladder Removal (Cystectomy) 2002, Gall Bladder Removal 2005, Infertility 2003, Urethra Removal, Bladder Reconstruction (Urethrectomy/Indiana Pouch) 2006, Celiac Disease 2007, Adhesion Disease 2007, Pudendal Nerve Entrapment, Ovarian Cysts, Vestibulitis, Vulvodynia, Total Vestibulectomy and removal of both Skene's Glands, 2007 and Coccydynia 2007. Fibromyalgia and, Chronic Myofascial Pain Syndrome both in my neck and knees, 2007, PNE Decompression Operation May, 2009.Multiple Chemical Sensitivities, Anesthesia Awareness (to awaken during operations)Pudendal Nerve Decompression Surgery, Revrse Uterine Sling, Sept. 2011

    "One hour at a time, this was NOT my American Dream but it has to work out somehow."

    I also have some journals of my journeys, past and some present at:
    http://karasnewblog2008.blogspot.com/ and http://icnkaralynn.blogspot.com/

    Most of my Journaling now is currently on Facebook. These are old and my ICN Patient story is very old and outdated.

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