03-11-2006, 06:24 AM #1
- Join Date
- Oct 2004
- Beaverton, OR
depressed and hurting while on vacation
Hello to all of you. I haven't logged infor quite some time. I guess I thought I was tough but this past week has shown that I am not as tough as I thought.
I planned a week of vacation back in November for this month and it is finally here. I was so excited to just be able to sleep in every morning, not get dressed in uncomfortable clothing and just hang out at home sorting beads, working on puzzles, and playing with my cats and mice. How relaxing does that sound? Around the end of Feb. I started to hurt a lot more than I usually do. My pain mgmt. doctor put me on Avinza (morphine) several months ago and I was doing quite well. I'm also on Elmiron for about a year now (dr. plans on stopping that medicine this next week as the year is up) and of course, Prozac for the depression. The dr. put me on it when my I got these darned IC symptoms back and then a few months later my dad died suddenly. We thought it was temporary. So, now, after a few days of several over-the-counter remedies that just made my already nauseated stomach even more nauseated and bloated I finally gave up and went to my primary dr. to have my urine checked. It hurt to pee, which is usually not the case. I prayed for a bladder infection. I'm sure you all know what that means. And of course "well, your urine is quite healthy" came back. I just wanted to cry. She knows me so well and asked if I was still taking the Prozac. I trully think she fears I am very depressed. I tried to think of what I could have done that was out of the ordinary and the only thing I can think of is a small glass of white grape juice. I keep it in the fridge for a friend of mine that just loves it when we have out TV night once a week. Normally I can just ignore that it's in there. Has anyone ever had really bad bladder burning in the urethra from drinking a small glass of juice that lasted weeks? The primary dr. put me on Peridium (hope I spelled it right) until I see the Uro. next week. It does seem to be helping a bit. And this morning I decided to try the Prelief for a few days to see if that helps me tolerate food better. But no juice! I swear
Anyway, the worst put of it all is that I'm now on this much needed week off and don't feel like even sorting beads, let alone going anywhere. I'm so depressed. And so tired of being alone with all of this. None of my friends really understand it and my co-workers just think I'm sickly. They pretend to understand, but I know they really don't know what this feels like to me. And I have to drive about 30 miles round trip to take my 85 year old grandmother shopping today. She's my last living relative that I care about and I've been trying to see her as much as I can. I love her so much. We really are so very much alike. But she needs me so I can't lean on her.
Any ideas for coping with the sadness and pain? By the way, I had some Atarax left over from when I stopped taking it months ago after starting on the morphine (WAY too drowsy together) and so I decided to take one for a couple of nights. Wow! I felt so strange. Like really dizzy and I couldn't stay awake. I literally would wake up in the middle of the night just from the dizziness of rolling over. I decided those are NOT for me.
Thanks, Sherrie in Oregon
03-11-2006, 06:38 AM #2
- Join Date
- Sep 2005
I drank some grape juice one time and was in really bad pain for days. This was early on. I've avoided fruit juices since then.
I know it's hard. Sometimes I just sleep too much out of depression or boredom. I can't seem to get interested in doing anything. But it sounds like you've got some fun things going on that you enjoy, but if you can't or don't want to do them right now, that's okay. Don't be too hard on yourself. I think vacations can place unnecessary stress on us. Think of it like this: now you have the time to do whatever you feel like at that moment. Don't feel like you have to do something in particular. Go do something to spoil yourself. Think what you would say to yourself if you were the perfect best friend. Then do that.
Enjoy!In Search Of Normal
IC (Feb 2001):
OxyContin (started 9/06) (dosage still being determined, but working up to 3 tablets (10 mg) twice per day, for a total of 6)
Effexor (150 mg/day; I was at 200 mg per day but backed off due to side effects; this has helped reduce pain a little but enough to improve my life)
Robaxin (muscle relaxant, started 2/24/06; only as needed rarely for when muscles get tight due to pain)
Elmiron (300 mg/day)
Ulcerative colitis (Dec 2002, mild):
Senna Plus for constipation
Prozac (40 mg day)
Previously tried but didn't work:
Elavil (worked well for pain but could not take urinary retention side effect)
Pamelor (same as Elavil)
Flomax (took when I was on Pamelor)
Tylenol 3 (has codeine; I changed to Vicodin which worked better and did not cause constipation)
03-11-2006, 07:18 AM #3
DonnaHave you checked the ICN Shop?
http://www.icnsales.com for US & Canada
http://www.icnshop.com for all others
Patient Help: http://www.ic-network.com/patientlinks.html
Diet list: http://www.ic-network.com/diet/2009icdietlist.pdf
You'll find my story at: http://www.ic-network.com/patientstories/donna.html
I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
Anyone who says something is foolproof hasn't met a determined fool
03-11-2006, 07:41 AM #4
My doctor told me to try the grape juice, big mistake. I have been drinking Gerber baby pear juice. I water it down some with bottle water. You may want to try that. I know, drinking water all the time is so boring. Group hug.
03-11-2006, 08:33 AM #5
It sounds like you need to take a break go do something for you.. I love to get my nails done or have my hair colored. My family know when I am really down cause I come home with a diffrent color of hair I hope you are feeling better soon. I don't know what to tall you about the juice all i can drink is water right now so I have not tried much except that.Amber Sevy
10-04-2010, 08:22 AM #6
- Join Date
- Sep 2010
I know this is an old post but just in case someone else has this problem. Is it possible that you are sensitive to sulfites! I am very sensitive. They trigger migraines and bladder pain for me. White grape juice is often loaded with the stuff to keep it from discoloring.... Just a thought.
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