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Thread: ic newbie

  1. #1
    Registered User resah's Avatar
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    ic newbie

    Hello everyone!
    I am going on March 6th to get a hydro distention test to verify ic. They are already 95% sure I have ic. I had what they call a bladder cocktail done a week ago because I was in so much pain. That helped alot. I also take priosed and prelief on a regular basis. I heard drinking milk helps. Does anyone know if thats true. I am not a big milk drinker but will try anything to prevent a major flare up. Appreciate any advice I can get.

    Resa

  2. #2
    ICN Member Kara Isabel's Avatar
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    I don't know if milk would actually prevent a flare up, but I would really try the IC diet and see if that helps. I have a major aversion to milk, ice cream, yogurt. But recently I started eating cottage cheese just to add some dairy to my diet and although I"m not crazy about the taste, it doesn't cause me to flare. The important thing is finding the right diet to minimize IC symptoms and be healthy!

    I hope you feel better soon! Hopefully you DON'T you have IC!!
    Hugs and Wishes for Pain FREE days!!,
    Kara


    www.loveforearth.net ~reducing plastic waste one bag at a time~

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    Me and my Guccigirl... she helps me through those painful hours!

  3. #3
    IC Friend Kimchi's Avatar
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    Welcome Resa Glad you found us. It does sound like you have IC. I never heard of milk either but you really should try the IC diet. this might put you in the right direction http://www.ic-network.com/handbook/diet.html The majority of IC people are food sensitive. Hope you feel better soon.
    Was diagnosed with IC in 1993 after extensive endometriosis and total hysterectomy.
    MEDS: Attarax, Zantac, Zanaflex, Oxycontin, Lortab, Urimax and daily instillations of Lidocaine, sodium bicarbinate and heparin (lifesavers)
    Have used Elmiron & Elavil w/o any improvement

    Now have a possible dx of fibromyalgia. Working on confirming that or hopefully ruling it out

  4. #4
    Support Volunteer traceann's Avatar
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    Welcome!

    Hi Resa and to the boards!! I am very happy to meet you You have come to the right place for all kinds of information and support, it's just fantastic!

    Definitely check out the link that Kimchi gave you, if you haven't already, it's a huge help.

    Once again, welcome and hope to see you around the boards!

    Hugs!
    Hugs,
    Tracey
    How do you eat an elephant? One bite at a time...

    Harry arrived 2/23/09!



    *IC Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

    IC Diet Cheat Sheet:
    http://www.ic-network.com/diet/2009icdietlist.pdf



    Dx's:
    IC dx'd Nov 2004
    Lymphocytic Colitis dx'd July 2005
    Possible IBS
    Current IC Meds
    Vistaril 25mg in the evening
    Previous IC Meds taken:
    Cystoprotek - 2 caps 2x's a day
    Elmiron, 100mg 3x's a day
    Ditropan, 5 mg 3x's a day
    Others:
    Wellbutrin 150mg 2x's a day for Anxiety/IBS
    Pepcid 40mg a day for GERD
    Zytrec for Nasal Allergies
    Align Probiotic daily for IBS

  5. #5
    Registered User resah's Avatar
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    Thanks for all the support. I have copied the ic diet and will take it with me always. A few questions. Does anyone know about havarti cheese or american cheese?
    Resa

    medications:
    depression / anxiety:
    celexa 20mg
    Indegestion:
    prilosec
    Frequency and burning when voiding:
    priosed
    Allergies:
    allegra
    Pain:
    ultram 50mg
    Sleep aid:
    ambien 10mg
    Prelief/everyday

  6. #6
    ICN Member hoping4acure's Avatar
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    Just want to add my WELCOME!!


    I could only tolerate american & parm cheese. NOTHING aged.


    Don't be shy...see you around the boards, and please let us know how everything goes with your appointment
    Minds are like parachutes-they ony function when they are open.
    -Thomas DeWar-



    ICN Newbie Volunteer


    *ICN Angel Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

  7. #7
    Forum Manager ICNDonna's Avatar
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    Hi, Resa and to the IC Network.

    The thing to look at on cheeses is whether it is "aged" or "processed" --- the label should have the information. American cheese is usually IC safe. Some ICers do well drinking milk; others find it doesn't make any difference.

    Donna
    Have you checked the ICN Shop?
    http://www.icnsales.com for US & Canada
    http://www.icnshop.com for all others

    Patient Help: http://www.ic-network.com/patientlinks.html

    Diet list: http://www.ic-network.com/diet/2009icdietlist.pdf

    You'll find my story at: http://www.ic-network.com/patientstories/donna.html

    I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

    Anyone who says something is foolproof hasn't met a determined fool
    .....My Meggie.....

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