Results 1 to 10 of 10
  1. #1
    IC Friend Kimchi's Avatar
    Join Date
    Sep 2005
    Posts
    621

    Sending out a thank you

    I am not sure where to post this..... but I want to send a thank you out to my husband. He may be a turd sometimes, but he has sure been supportive of me w/ my disease. He is considerate and patient. He helps me w/ my rescue treatments every single day and he understands that sex hurts and he does not pressure me there. Last night I met yet another ICer that was getting a divorce b/c of this awful disease. It made me want to cry yet it made me realize how truly lucky I am to have the support of my family. I just don't know what I would do w/o it. It helps me get thru the day to know I have people at home and here in this board to support me. When I got home, I gave him a big ole hug and thanked him. I started to cry, he started to cry... it was really touching. Anyway..... I just wanted to send this out, wanted to brag. I wished everyone here had the same thing I do and I will not take it for granted.
    Was diagnosed with IC in 1993 after extensive endometriosis and total hysterectomy.
    MEDS: Attarax, Zantac, Zanaflex, Oxycontin, Lortab, Urimax and daily instillations of Lidocaine, sodium bicarbinate and heparin (lifesavers)
    Have used Elmiron & Elavil w/o any improvement

    Now have a possible dx of fibromyalgia. Working on confirming that or hopefully ruling it out

  2. #2
    ICN Member Katrina's Avatar
    Join Date
    Aug 2001
    Location
    Green Bay WI
    Posts
    9,904
    :woohoo: Yes...it is a great blessing to have the support of love ones...esp a significant other...I know it is wind beneath my wings so to speak. May you always have this and may it help you to get through anything you have to face in life. God Bless!
    Faith, Hope, and Love,
    Katrina


    I believe God is using me. He uses me for God. Things I gain from all my suffering are meant to help others. I hope I can help you too. Email me or start a chat if you like my help or anything. I CARE!Illnesses: IC,IBS, IBD, GERD, PFD, Epilepsy, Endo, Allergies, RLM,Rapid heart beat, low blood pressure,Gastritis,Gall stones,Tendonitis,migraines, Shingles, Prolapsed pouch,ext. fatigue (current problem) I have seen periods of remission and I have seen them end and return. At this time remission is over and working on getting it back! My hope story http://www.ic-network.com/patientstories/katrina.html
    http://mandksales.net
    IC Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
    or find me on facebook http://www.facebook.com/kat671?ref=profile
    Be the Miracle! & Pay it Forward!

    carmelann@charter.net please contact me...I am here to help!http://health.groups.yahoo.com/group/ICinWI/ if your from WI please contact me!

  3. #3
    IC Friend Kimchi's Avatar
    Join Date
    Sep 2005
    Posts
    621
    whew! Thanks for responding. I was beginning to wonder if bragging was a no no. I saw where people were looking but not commenting. Yes, I am a very lucky lady.
    Was diagnosed with IC in 1993 after extensive endometriosis and total hysterectomy.
    MEDS: Attarax, Zantac, Zanaflex, Oxycontin, Lortab, Urimax and daily instillations of Lidocaine, sodium bicarbinate and heparin (lifesavers)
    Have used Elmiron & Elavil w/o any improvement

    Now have a possible dx of fibromyalgia. Working on confirming that or hopefully ruling it out

  4. #4
    Support Leader kadi's Avatar
    Join Date
    Dec 2003
    Location
    California
    Posts
    8,261
    Thanks for posting this. Sometimes I read the sad posts about relationships falling apart over IC and I think I should just give up hope for a relationship... It's good to think that it can work out
    Kadi

    -------------------------------------------------------------
    I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
    ------------------------------------------------------


    This week's favorite one-liner:
    "Just remember, if the world didn't suck, we'd all fall off. ~Author Unknown
    "


    New second favorite:
    Please, Lord, let me prove that winning the lottery won't spoil me.
    - Unknown


    Adding a third because I'm just so darn easily amused...
    "Do not meddle in the affairs of dragons, for you are crunchy and taste good with ketchup.
    - Bruce Graham"



    Current treatments:
    -IC diet
    -Elavil 30mg at night
    -Ditropan 5mg at night
    -Continuous use birth control pills (4-5 periods/year)
    -Heparin/Marcaine/Sodium Bicarb home instills every morning and night
    -Pyridium if needed, usually once a week or so
    -1 Vicodin at bedtime,
    -Flexeril 10mg at bedtime
    -Dye Free Benadryl for allergies occasionally
    -Pelvic floor & myofascial release (external only) physical therapy for 8 weeks, then home exercise program...
    -Managing stress
    -Fur therapy: Hugging the cat!

  5. #5
    Registered User
    Join Date
    Sep 2005
    Location
    Virginia
    Posts
    280
    Kimchi,
    Thanks for sharing that! It was sweet and touching. My husband has been great, too. He's even come to doctor appointments with me when I needed someone else to help me push for pain meds (it worked). I need to thank him more often. So thanks, too, for the reminder!
    In Search Of Normal
    IC (Feb 2001):

    Pain:
    OxyContin (started 9/06) (dosage still being determined, but working up to 3 tablets (10 mg) twice per day, for a total of 6)
    Effexor (150 mg/day; I was at 200 mg per day but backed off due to side effects; this has helped reduce pain a little but enough to improve my life)
    Robaxin (muscle relaxant, started 2/24/06; only as needed rarely for when muscles get tight due to pain)
    Elmiron (300 mg/day)

    Ulcerative colitis (Dec 2002, mild):
    Asacol (6/day)
    Senna Plus for constipation

    Depression:
    Prozac (40 mg day)

    Previously tried but didn't work:
    Elavil (worked well for pain but could not take urinary retention side effect)
    Pamelor (same as Elavil)
    Flomax (took when I was on Pamelor)
    Tylenol 3 (has codeine; I changed to Vicodin which worked better and did not cause constipation)

  6. #6
    ICN President icnmgrjill's Avatar
    Join Date
    Mar 2000
    Posts
    3,220
    Love hearing about yet another IC hero!

    Jill
    Would you like to talk with someone about your IC struggles? The ICN now offers personal coaching sessions that include myself, Julie Beyer RD on the diet and Diana Brady CNC on alternative medicines. http://www.icnsales.com/icn-personal-coaching/

    Looking for books, magazines & reports on IC? Please visit the ICN Shop at: http://www.icnsales.com: Your ICN subscription & purchases in our shop support these message boards, chats and special events. BECOME AN ICN ANGEL TODAY!

    Please remember that the information on the ICN is provided with the understanding that ICN, its founder, staff, volunteers, and participants are not engaged in rendering medical or professional medical services. We cannot and do not give medical advice. Only your personal physician can do this for you.







  7. #7
    ICN Member Kara Isabel's Avatar
    Join Date
    Dec 2005
    Location
    Virginia Beach, VA
    Posts
    1,325
    Thats great!!

    hugs,
    Kara

  8. #8
    ICN Member cass2376's Avatar
    Join Date
    Jun 2005
    Location
    Manteca, California
    Posts
    365

    Smile What a guy!!!

    Thanks for posting this Kimchi! Like said in the previous responces to this, it is a reminder for me too. I have to remember to thank the family and friends who support me also! Your post was soooo touching. I am so happy for you! I'm glad to see that you have the suport you need and deserve. Tell your husband thanks for being a IC hero from us on these boards I love to see a spouse being supportive and loving toward someone who is in great need of that. I am going to make a few phone calls and sit my family down for a personal "Thank You SO Much for being there and understanding even when its hard to understand! " ( I will make sure to buy lots of tissue boxes ) Don't worry about sounding like your bragging, it sounded more like a VERY Proud women who is getting through IC w/ loving help! You made my day, hon! Take care and I really hope you are doing well.
    Take care and God Bless, Cassandra
    dx Fibromyalgia April 2000
    dx Endo. Dec. 2003 had hystorectomy Feb. 2004
    dx IC May 2004
    dx Acid Reflex Nov. 2009
    dx Restless Leg Syndrom July 2010
    dx Degenerative Arthritis in my spine Oct. 2011
    lost my mind: A long time ago!! LOL

    Isaiah 41:31 but those who hope in the Lord will renew their strength. They will soar on wings like eagles; they will run and not grow weary, they will walk and not be faint.

    Meds: Elmiron 100mg three times daily, Gabapentin 1800mg daily for nerve pain, Trazadone 50mg, , Norco 10/325mg four times a day for pain, Pyridium as needed, Pepcid 20mg twice daily for acid reflex, and Zyrtec once daily for allergies
    Also a big hug and kiss from my husband Joe and my 4 kids-Jo-Jo, Jenae, Victoria, and Janelle everyday as needed, ( I take this "med" often )!!!!

  9. #9
    ICN Member
    Join Date
    Jul 2001
    Location
    USA
    Posts
    691

    Start a monthly post

    Kimchi,

    Thank you for posting and sharing. Positive and good news on this board is always needed, and it was extremely inspirational to me. I am single and recently ended a disappointing 2 year relationship. There are good men out there and I refuse to believe the "They are all married line". Even it it was long ago, you attracted a good man because you are a good person. I want to continue to work on myself and find the appropriate companion to share life with.

    Perhaps, you could do a monthly post on one sweet thing your hubby does to support you, and how it makes you feel. (Then print it out and put it on the fridge for him LOL!) I think it would be cool if you keep sharing with us. Thanks

    ads

  10. #10
    IC Friend Kimchi's Avatar
    Join Date
    Sep 2005
    Posts
    621
    Thanks guys. I am gonna print this and take it home.
    Was diagnosed with IC in 1993 after extensive endometriosis and total hysterectomy.
    MEDS: Attarax, Zantac, Zanaflex, Oxycontin, Lortab, Urimax and daily instillations of Lidocaine, sodium bicarbinate and heparin (lifesavers)
    Have used Elmiron & Elavil w/o any improvement

    Now have a possible dx of fibromyalgia. Working on confirming that or hopefully ruling it out

Thread Information

Users Browsing this Thread

There are currently 1 users browsing this thread. (0 members and 1 guests)

Similar Threads

  1. Sending My Culture To Dr. F.
    By Portia17 in forum Antibiotics For Interstitial Cystitis Are Controversial
    Replies: 62
    Last Post: 01-29-2008, 02:04 PM
  2. My family could use some prayers
    By jaime15 in forum Prayer Requests
    Replies: 23
    Last Post: 12-19-2005, 04:06 AM
  3. Replies: 4
    Last Post: 06-15-2005, 08:41 AM
  4. sending me for a mental exam
    By dbays in forum Social Security Disability Q&A
    Replies: 10
    Last Post: 07-01-2004, 05:48 PM
  5. sending my best to Jess
    By littlebear in forum Sacral Nerve Stimulation: Undergoing Trials or Surgery
    Replies: 1
    Last Post: 03-28-2004, 11:46 AM

Bookmarks

Posting Permissions

  • You may not post new threads
  • You may not post replies
  • You may not post attachments
  • You may not edit your posts
  •