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Thread: IC Soothing?

  1. 01-08-2006, 03:14 PM #1
    chris0410
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    IC Soothing?

    I'm wondering if there is such a thing as an IC soothing food/drink. Has anyone experienced relief from something they ate or drank?
    Chris

    __________________________________________
    God makes everything ok in the end. If it's not ok, then it's not the end.

    Medical Conditions
    IC diagnosed 2005
    Pelvic Floor Dysfunction
    Severe Depression
    Chronic insomnia
    Borderline Personality Disorder
    Acid Reflux
    Bell's Palsy in 2003

    Medications
    Elmiron 300mg
    Celexa 60mg
    Lithobid 900mg
    Lunesta 3mg
    Prilosec 20mg
    Percoset 5/325mg
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  2. 01-08-2006, 03:39 PM #2
    csocain
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    For me, anything that settles my stomach, settles my bladder. My symptoms are frequency and urgency, so that may not be true for others. Bland foods like potatoes, potato bread, rice or rice cereal, and turkey lunch meat work well for me when my stomach is upset. Wish I could be more help to you. Praying that you find something that will help your IC. Blessings to you and yours!
    Carolyn


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  3. 01-08-2006, 04:46 PM #3
    kadi
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    Baking soda in water if bladder is burning. Blueberry juice in water has stopped mini-flares. (Can't figure that one out at all!)
    Kadi

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    I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
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    Current treatments:
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    -Elavil 30mg at night
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    -Pyridium if needed, usually once a week or so
    -1 Vicodin at bedtime,
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  4. 01-08-2006, 05:28 PM #4
    massagedoula
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    Some people (not me) have posted about Almond milk and artichokes!
    30 year old Mother, Midwife, Birth Doula, Herbalist, and Massage Therapist with sudden onset of IC approx. 2/16/05 (after a PAP smear and routine gynecological exam). I tried a HUGE list of natural and alternative treatments (including Cystoprotek, Desert Harvest Aloe, Aloe gel, Glucosamine/Chondroitin, L-Argenine, Quercitin/Bromelain, Marshmallow Root...etc) for the first 9 months of having IC, without much relief, until I finally researched and started Elmiron.

    My experience:
    ~Previously took Elmiron 100mg three times a day
    (9/29/05-7/06)
    ~Experimented with dosage (1-2 Elmiron a day recapped into a plain gelcap) and did well with occasional mild flares. (7/06-9/09)
    ~Stopped all together at the 1 year mark (9/29/06) for 10 days. Still felt good, with low-level symptoms.
    ~Decided to go back on it (10/16/06) to see if another year on it will bring me into full (zero symptoms) remission. Currently taking 1-2 pills a day, recapped into a plain gelcap.
    ~ 6/08...Tried to go off Elmiron again, had huge flare at the 3 week mark, went back on 100mg once a day for maintenance.
    -I went off Elmiron for 2 months due to pregnancy and had a complete relapse of IC symptoms to pre-diagnosis levels of pain/frequency. I then went back on Elmiron at 10-12 weeks, but was unable to take it further due to severe morning sickness. The 2nd/3rd trimesters were MUCH better IC-wise, and postpartum is the best I have felt in years. I am no longer on Elmiron for now.
    -20 month postpartum remission from 4/17/09 to 12/10/10.
    -Out of remission after a pap smear on 12/10/10. Pap smears are obviously the main IC trigger for me. Currently trying to cope with loss of the remission.

    Also doing:
    ~Sugar-free/gluten free and strict IC diet (With an emphasis on organic, alkaline and whole foods)
    ~Prenatal DHA/Fish oil supplement
    ~Vitamin D supplement
    ~Culturelle probiotic
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  5. 01-09-2006, 05:33 AM #5
    Casi
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    I know a lot of people drink marshmallow root hot tea. I bought some a while back and it seemed to help sooth my bladder when I had a little pain. Nothing helps when I am in horrible pain, but everyone's different. I would suggest to do some research before you try the tea. There is a lot of info about it on these boards the subject is "Alternative Therapies". It's always good to research anything and learn the positives and negatives before trying it.
    One of the moderators, Katrina put this quote in, I thought it may help you:

    Quote:

    Marshmallow Root:

    It is believed that marshmallow root tea provides a soothing coating to the bladder because of the mucilage found in the plant.


    Scientific Name: Althaea officinalis
    Approved by Commission E: Yes
    Description: The medicinal parts of the plant are mallow flowers, leaves, syrups and roots. However, the herbal supplement is made from the dried root and the dried leaves.
    Actions & Pharmacology: Marshmallow root relieves local irritation, inhibits mucocilary activity, functions as an anti-inflammatory, good for bladder infections and is an immune stimulant.
    General Precautions:There are no general precautions or side effects if the drug is used as per manufactures labeling on required dosages.
    Drug Interactions: If other drugs are taken simultaneously the absorption of the other drugs may be delayed.
    How Supplied: Marshmallow root can be purchased in capsules, tablets (coated and uncoated), as an extract, as a tea and in powder form.
    Last edited by Casi; 01-09-2006 at 05:38 AM. Reason: Adding more info
    Effexor 150mg 2x
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    Valium 2mg 3x
    hydroxyzine 50mg 4x as needed
    Lidocaine gel as needed
    Roxicodone 30mg 4-5x day as needed break-thru pain
    Oxycontin 20mg 2x day
    B & O Suppositories as needed for spasms
    Meds that didn't work:
    elmiron, Ditropan XL, urised, uromax, proced, vesicare, hep/sodium bicarb,lido instills 1x a day/3-4x a wk/ 4 x a mo.- caused too many infections, they made me flare like crazy!!
    Dxd Endometriosis '96, lap. '98 removal of endo, lap. '99 another removal of endo, lap. '00 removal of endo and left ovary, '01 got pregnant Yeah!!!
    '02 had New Year's Baby , Feb. '03 return of endo, stage 4 full abdominal hysterectomy and apendectomy, June '03 removal of endo and abcess, Aug '03 wasn't healing correctly cut me open to heal from inside-out
    Dxd w/ severe IC March '05 thru potassium test and cystoscopy/hydrodistention under anesthisia also dxd w/ pelvic floor dysfunction and vulvadynia
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  6. 01-12-2006, 07:09 AM #6
    diane57
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    I love marshmallow root. I've started taking it twice a day (the Solaray brand, in capsules), and I've noticed quite an improvement. I've broadened my diet to include some tomatoes and regular coffees, and it still seems to be fine.

    Also, try milk during a flare. I also find that if I have milk with a meal with something acidic, it seems to counteract the acidity some way...
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