12-16-2005, 08:42 AM #1
- Join Date
- Dec 2005
Hi everyone. I was recently diagnosed with IC after years of going to doctor after doctor, and being told "there's nothing wrong" "it's in your head" and "just take these antibiotics and some cranberry juice and come back next week" It was so frustrating, that after awhile i just tried to deal with the frequency and urgancy, as though it were normal. Finally, after a really rough couple of weeks my family doc sent me to a urologist, who did a cystopsy (spelling?) and told me I had IC. It was such a relief to know it wasn't all in my head!!
We just started talking about treatment now, and I'm a bit lost. He reccommended Elmiron or cystitat. I've read alot on here about the elmerion, but not really about the cystistat. Does anyone have any info on it, tried it? I have some time to make up my mind, since i'm fighting with my insurance company through work to get either of these meds covered. Any suggestions on what to do in the mean time to deal with the flare ups? I'm already trying to watch my diet (it's so hard to cut out so much food and drink i love!!) Thanks everyone, you all seem really sweet and helpful!!
12-16-2005, 08:50 AM #2
Check out the links below. There is a ton of information in the IC patient handbook.
This is a great site, there is a ton of support here. I am confident you will find the right combo.
Keeping to the IC diet is very important right now.
Good luck and see you around the boards.
LouannMinds are like parachutes-they ony function when they are open.
ICN Newbie Volunteer
*ICN Angel Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
12-16-2005, 08:58 AM #3
- Join Date
- Dec 2005
Thanks, I've been reading through the handbook alot, it really helps!!
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