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Thread: Msm
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10-11-2005, 09:47 AM #1ICN Member
- Join Date
- Jul 2003
- Location
- Nova Scotia ,Canada
- Posts
- 604
Msm
Hi
Just wondering if anyone has tried MSM (Methylsulfonylmethane)? I am trying it but have only been taking it a few weeks? I have pamplet from Swiss Natural Sources and it mentions using it for IC..
Thanks
PamGod brought me to it, He will bring me through it!!!
Diagnosed 2003
by cysto/hydro
Elmiron took almost a year- made me sick, caused diarrhea
Pyridium -Made me sick
Detrol and Ditropan- caused constipation
Trying DMSO instill- had 5 out of 6
Started Oxytrol Patch- no side affects so far --Jan 2011
stopped using them after 3 months-- skin was getting irritated
Cysto/hydro April 6ht 2011-- on expansion only hold one cup
IBS/ IC
High blood pressure meds and Crestor
Sinequan
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10-11-2005, 10:46 AM #2ICN Member
- Join Date
- Mar 2004
- Location
- connecticut
- Posts
- 509
I use MSM. I buy it online from a particular company because the MSM is 99%pure; some have fillers. I have been using it for about a year now. I am also on elmiron, atarax and celebrex, so I can't say what's working the best-- but the supplements don't seem to hurt so I continue taking them. It has helped my hair and nail growth..... liz
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10-11-2005, 03:11 PM #3ICN Member
- Join Date
- Dec 2004
- Posts
- 964
I use MSM, orally, the gel and instill it! It has been a major piece of my IC care! It helps A LOT!
I use the one from Jacob's Lab!Shelly Matthewson
Private Researcher
IC Support Group Leader
Director of MOARK Interstitial Cystitis
www.moarkic.com
Also diagnosed with Meduallary Sponge Kidney Disease, with many kidney stones and chronic infection, Pelvic Congestion Syndrome, and
PFD
"And we know that all things work together for good to them that love God, to them who are the called according to His purpose." Romans 8:28
In His hands even IC (MSK, PCS etc.) can be a blessing and an opportunity to serve Him by help others. It is my heart to help others and to network patients and medical practitioners in Missouri and Arkansas!!
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10-11-2005, 03:16 PM #4IC Friend
- Join Date
- Dec 2003
- Location
- Kamloops, BC Canada
- Posts
- 283
I bought a bottle of MSM from a health food store and was always leary of trying it. My pain was so severe (24/7) at that time (I didn't know that I had endo as well) that I didn't want to cause any more unwanted pain. It is suppose to do wonders...I think that I may try it again.
Actually, DMSO is a derivative of MSM, and DMSO has helped a bit.
Peace, Love, Health, and Happiness!
Alana
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10-12-2005, 02:54 AM #5ICN Member
- Join Date
- Dec 2004
- Posts
- 964
Actually MSM is a derivative od DMSO. It is often called DMSO 2. It is like DMSO without the smell or pain!!!!
Shelly Matthewson
Private Researcher
IC Support Group Leader
Director of MOARK Interstitial Cystitis
www.moarkic.com
Also diagnosed with Meduallary Sponge Kidney Disease, with many kidney stones and chronic infection, Pelvic Congestion Syndrome, and
PFD
"And we know that all things work together for good to them that love God, to them who are the called according to His purpose." Romans 8:28
In His hands even IC (MSK, PCS etc.) can be a blessing and an opportunity to serve Him by help others. It is my heart to help others and to network patients and medical practitioners in Missouri and Arkansas!!
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10-13-2005, 06:15 AM #6Registered User
- Join Date
- May 2005
- Posts
- 29
I use MSM every day, both topical gel and oral powder. I bought both products directly from Dr. Jacobs who is the researcher/developer of DMSO and MSM treatments for many ailments. I started with the powdered form about two months ago and although I was doing pretty well at the time, I can say I feel even better now--I am pain free 90% of the time and when I do have pain it is very minor. I am up to about 10 grams a day of the oral MSM and plan to continue to take it indefinitely. According to Dr. Jacobs it can take several months for some people to notice the effects, so if you do try it, I would do so for several months.
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10-13-2005, 07:08 AM #7ICN Member
- Join Date
- Jul 2003
- Location
- Nova Scotia ,Canada
- Posts
- 604
Hi
Thanks for the replies. I am now taking two 500mg a day. The things that it is good for is what got my interested.. and then when I saw IC mentioned, that was a bonus.
I have not seen the topical -- is it like an ointment???
~~Pam~~God brought me to it, He will bring me through it!!!
Diagnosed 2003
by cysto/hydro
Elmiron took almost a year- made me sick, caused diarrhea
Pyridium -Made me sick
Detrol and Ditropan- caused constipation
Trying DMSO instill- had 5 out of 6
Started Oxytrol Patch- no side affects so far --Jan 2011
stopped using them after 3 months-- skin was getting irritated
Cysto/hydro April 6ht 2011-- on expansion only hold one cup
IBS/ IC
High blood pressure meds and Crestor
Sinequan
-
10-13-2005, 02:53 PM #8ICN Member
- Join Date
- Dec 2004
- Posts
- 964
It's actually a gel! I use on my cath's when i do home instills too and it has helped the urethral pain A LOT!
Shelly Matthewson
Private Researcher
IC Support Group Leader
Director of MOARK Interstitial Cystitis
www.moarkic.com
Also diagnosed with Meduallary Sponge Kidney Disease, with many kidney stones and chronic infection, Pelvic Congestion Syndrome, and
PFD
"And we know that all things work together for good to them that love God, to them who are the called according to His purpose." Romans 8:28
In His hands even IC (MSK, PCS etc.) can be a blessing and an opportunity to serve Him by help others. It is my heart to help others and to network patients and medical practitioners in Missouri and Arkansas!!
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10-13-2005, 07:09 PM #9ICN Member
- Join Date
- Feb 2005
- Location
- Olympia, WA
- Posts
- 1,917
What if you rub it on your lower abdomen suprapubically over the bladder? Would it permeate the skin and help???
I used to take it and stopped. I think I should restart. Is it safe to take with Elmiron?30 year old Mother, Midwife, Birth Doula, Herbalist, and Massage Therapist with sudden onset of IC approx. 2/16/05 (after a PAP smear and routine gynecological exam). I tried a HUGE list of natural and alternative treatments (including Cystoprotek, Desert Harvest Aloe, Aloe gel, Glucosamine/Chondroitin, L-Argenine, Quercitin/Bromelain, Marshmallow Root...etc) for the first 9 months of having IC, without much relief, until I finally researched and started Elmiron.
My experience:
~Previously took Elmiron 100mg three times a day
(9/29/05-7/06)
~Experimented with dosage (1-2 Elmiron a day recapped into a plain gelcap) and did well with occasional mild flares. (7/06-9/09)
~Stopped all together at the 1 year mark (9/29/06) for 10 days. Still felt good, with low-level symptoms.
~Decided to go back on it (10/16/06) to see if another year on it will bring me into full (zero symptoms) remission. Currently taking 1-2 pills a day, recapped into a plain gelcap.
~ 6/08...Tried to go off Elmiron again, had huge flare at the 3 week mark, went back on 100mg once a day for maintenance.
-I went off Elmiron for 2 months due to pregnancy and had a complete relapse of IC symptoms to pre-diagnosis levels of pain/frequency. I then went back on Elmiron at 10-12 weeks, but was unable to take it further due to severe morning sickness. The 2nd/3rd trimesters were MUCH better IC-wise, and postpartum is the best I have felt in years. I am no longer on Elmiron for now.
-20 month postpartum remission from 4/17/09 to 12/10/10.
-Out of remission after a pap smear on 12/10/10. Pap smears are obviously the main IC trigger for me. Currently trying to cope with loss of the remission.
Also doing:
~Sugar-free/gluten free and strict IC diet (With an emphasis on organic, alkaline and whole foods)
~Prenatal DHA/Fish oil supplement
~Vitamin D supplement
~Culturelle probiotic
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10-14-2005, 01:58 AM #10ICN Member
- Join Date
- Dec 2004
- Posts
- 964
Yes, that helps too, especially when used with a heating pad!
Shelly Matthewson
Private Researcher
IC Support Group Leader
Director of MOARK Interstitial Cystitis
www.moarkic.com
Also diagnosed with Meduallary Sponge Kidney Disease, with many kidney stones and chronic infection, Pelvic Congestion Syndrome, and
PFD
"And we know that all things work together for good to them that love God, to them who are the called according to His purpose." Romans 8:28
In His hands even IC (MSK, PCS etc.) can be a blessing and an opportunity to serve Him by help others. It is my heart to help others and to network patients and medical practitioners in Missouri and Arkansas!!
-
10-14-2005, 05:43 AM #11ICN Member
- Join Date
- Feb 2005
- Location
- Olympia, WA
- Posts
- 1,917
Where can I get the topical gel?
30 year old Mother, Midwife, Birth Doula, Herbalist, and Massage Therapist with sudden onset of IC approx. 2/16/05 (after a PAP smear and routine gynecological exam). I tried a HUGE list of natural and alternative treatments (including Cystoprotek, Desert Harvest Aloe, Aloe gel, Glucosamine/Chondroitin, L-Argenine, Quercitin/Bromelain, Marshmallow Root...etc) for the first 9 months of having IC, without much relief, until I finally researched and started Elmiron.
My experience:
~Previously took Elmiron 100mg three times a day
(9/29/05-7/06)
~Experimented with dosage (1-2 Elmiron a day recapped into a plain gelcap) and did well with occasional mild flares. (7/06-9/09)
~Stopped all together at the 1 year mark (9/29/06) for 10 days. Still felt good, with low-level symptoms.
~Decided to go back on it (10/16/06) to see if another year on it will bring me into full (zero symptoms) remission. Currently taking 1-2 pills a day, recapped into a plain gelcap.
~ 6/08...Tried to go off Elmiron again, had huge flare at the 3 week mark, went back on 100mg once a day for maintenance.
-I went off Elmiron for 2 months due to pregnancy and had a complete relapse of IC symptoms to pre-diagnosis levels of pain/frequency. I then went back on Elmiron at 10-12 weeks, but was unable to take it further due to severe morning sickness. The 2nd/3rd trimesters were MUCH better IC-wise, and postpartum is the best I have felt in years. I am no longer on Elmiron for now.
-20 month postpartum remission from 4/17/09 to 12/10/10.
-Out of remission after a pap smear on 12/10/10. Pap smears are obviously the main IC trigger for me. Currently trying to cope with loss of the remission.
Also doing:
~Sugar-free/gluten free and strict IC diet (With an emphasis on organic, alkaline and whole foods)
~Prenatal DHA/Fish oil supplement
~Vitamin D supplement
~Culturelle probiotic
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10-14-2005, 10:47 AM #12ICN Member
- Join Date
- Dec 2004
- Posts
- 964
From Jacob's Lab 1-866-375-2262
Shelly Matthewson
Private Researcher
IC Support Group Leader
Director of MOARK Interstitial Cystitis
www.moarkic.com
Also diagnosed with Meduallary Sponge Kidney Disease, with many kidney stones and chronic infection, Pelvic Congestion Syndrome, and
PFD
"And we know that all things work together for good to them that love God, to them who are the called according to His purpose." Romans 8:28
In His hands even IC (MSK, PCS etc.) can be a blessing and an opportunity to serve Him by help others. It is my heart to help others and to network patients and medical practitioners in Missouri and Arkansas!!
-
10-15-2005, 05:49 PM #13ICN Member
- Join Date
- Feb 2005
- Location
- Olympia, WA
- Posts
- 1,917
Thank you!
30 year old Mother, Midwife, Birth Doula, Herbalist, and Massage Therapist with sudden onset of IC approx. 2/16/05 (after a PAP smear and routine gynecological exam). I tried a HUGE list of natural and alternative treatments (including Cystoprotek, Desert Harvest Aloe, Aloe gel, Glucosamine/Chondroitin, L-Argenine, Quercitin/Bromelain, Marshmallow Root...etc) for the first 9 months of having IC, without much relief, until I finally researched and started Elmiron.
My experience:
~Previously took Elmiron 100mg three times a day
(9/29/05-7/06)
~Experimented with dosage (1-2 Elmiron a day recapped into a plain gelcap) and did well with occasional mild flares. (7/06-9/09)
~Stopped all together at the 1 year mark (9/29/06) for 10 days. Still felt good, with low-level symptoms.
~Decided to go back on it (10/16/06) to see if another year on it will bring me into full (zero symptoms) remission. Currently taking 1-2 pills a day, recapped into a plain gelcap.
~ 6/08...Tried to go off Elmiron again, had huge flare at the 3 week mark, went back on 100mg once a day for maintenance.
-I went off Elmiron for 2 months due to pregnancy and had a complete relapse of IC symptoms to pre-diagnosis levels of pain/frequency. I then went back on Elmiron at 10-12 weeks, but was unable to take it further due to severe morning sickness. The 2nd/3rd trimesters were MUCH better IC-wise, and postpartum is the best I have felt in years. I am no longer on Elmiron for now.
-20 month postpartum remission from 4/17/09 to 12/10/10.
-Out of remission after a pap smear on 12/10/10. Pap smears are obviously the main IC trigger for me. Currently trying to cope with loss of the remission.
Also doing:
~Sugar-free/gluten free and strict IC diet (With an emphasis on organic, alkaline and whole foods)
~Prenatal DHA/Fish oil supplement
~Vitamin D supplement
~Culturelle probiotic
-
10-15-2005, 09:12 PM #14ICN Member
- Join Date
- Sep 2004
- Location
- Australia
- Posts
- 201
Does anyone have a website for the topical gel ?
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10-16-2005, 10:58 AM #15ICN Member
- Join Date
- Dec 2004
- Posts
- 964
Shelly Matthewson
Private Researcher
IC Support Group Leader
Director of MOARK Interstitial Cystitis
www.moarkic.com
Also diagnosed with Meduallary Sponge Kidney Disease, with many kidney stones and chronic infection, Pelvic Congestion Syndrome, and
PFD
"And we know that all things work together for good to them that love God, to them who are the called according to His purpose." Romans 8:28
In His hands even IC (MSK, PCS etc.) can be a blessing and an opportunity to serve Him by help others. It is my heart to help others and to network patients and medical practitioners in Missouri and Arkansas!!
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