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Thread: The BEST tea
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10-05-2005, 05:46 AM #1ICN Member
- Join Date
- Jul 2005
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- Charlotte, NC
- Posts
- 4,728
The BEST tea
I bought some Madagascar Vanilla Red tea today as a treat...it didn't have rose hips in it, it's caffeine free, and it looked good. I just had a cup of it, with a tiny bit of sugar to sweeten it, and so far so good...no extra bladder pain, in fact it seems soothing.
I think traceann said something about rooibos teas being ok, this is one of those......I've found a new passion I do believe. It almost makes up for the lack of coffee even though its caffeine free.*IC-- Summer 2004; PFD--October 2005
*Fibro--Fall 2000; CFS-- Fall 2000
*MPS--Fall 2000; Crohn's disease-- 1997*IBS,GERD, *Migraines, hypothyroidism, GYN problems *Degenerative Disc Disease/scoliosis
Total Abdominal Hysterectomy--adenomyosis--9\08
Colostomy surgery due to rupture of lower large intestine (sigmoid colon) ---4\18\09--Had peritonitis, almost died after surgery as I was very sick. Learning to deal with that and get healthy enough for *possible* reconnect surgery January of 2010...if not this surgery saved my life, so I can, and will live with it....happily!
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10-05-2005, 06:37 AM #2ICN Member
- Join Date
- Feb 2005
- Location
- Olympia, WA
- Posts
- 1,917
I love rooiboos tea, though I never tried the type you say with vanilla in it! Sounds wonderful!
30 year old Mother, Midwife, Birth Doula, Herbalist, and Massage Therapist with sudden onset of IC approx. 2/16/05 (after a PAP smear and routine gynecological exam). I tried a HUGE list of natural and alternative treatments (including Cystoprotek, Desert Harvest Aloe, Aloe gel, Glucosamine/Chondroitin, L-Argenine, Quercitin/Bromelain, Marshmallow Root...etc) for the first 9 months of having IC, without much relief, until I finally researched and started Elmiron.
My experience:
~Previously took Elmiron 100mg three times a day
(9/29/05-7/06)
~Experimented with dosage (1-2 Elmiron a day recapped into a plain gelcap) and did well with occasional mild flares. (7/06-9/09)
~Stopped all together at the 1 year mark (9/29/06) for 10 days. Still felt good, with low-level symptoms.
~Decided to go back on it (10/16/06) to see if another year on it will bring me into full (zero symptoms) remission. Currently taking 1-2 pills a day, recapped into a plain gelcap.
~ 6/08...Tried to go off Elmiron again, had huge flare at the 3 week mark, went back on 100mg once a day for maintenance.
-I went off Elmiron for 2 months due to pregnancy and had a complete relapse of IC symptoms to pre-diagnosis levels of pain/frequency. I then went back on Elmiron at 10-12 weeks, but was unable to take it further due to severe morning sickness. The 2nd/3rd trimesters were MUCH better IC-wise, and postpartum is the best I have felt in years. I am no longer on Elmiron for now.
-20 month postpartum remission from 4/17/09 to 12/10/10.
-Out of remission after a pap smear on 12/10/10. Pap smears are obviously the main IC trigger for me. Currently trying to cope with loss of the remission.
Also doing:
~Sugar-free/gluten free and strict IC diet (With an emphasis on organic, alkaline and whole foods)
~Prenatal DHA/Fish oil supplement
~Vitamin D supplement
~Culturelle probiotic
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10-05-2005, 07:03 AM #3ICN Member
- Join Date
- May 2004
- Location
- Michigan
- Posts
- 1,554
I enjoy Rooibos too, yep red tea is the same. Glad its workin for ya!!!!
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10-05-2005, 07:35 AM #4Support Leader
- Join Date
- Dec 2003
- Location
- California
- Posts
- 8,261
Where'd you find it?
Kadi
-------------------------------------------------------------
I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
------------------------------------------------------
This week's favorite one-liner:
"Just remember, if the world didn't suck, we'd all fall off. ~Author Unknown
"
New second favorite:
Please, Lord, let me prove that winning the lottery won't spoil me.
- Unknown
Adding a third because I'm just so darn easily amused...
"Do not meddle in the affairs of dragons, for you are crunchy and taste good with ketchup.
- Bruce Graham"
Current treatments:
-IC diet
-Elavil 30mg at night
-Ditropan 5mg at night
-Continuous use birth control pills (4-5 periods/year)
-Heparin/Marcaine/Sodium Bicarb home instills every morning and night
-Pyridium if needed, usually once a week or so
-1 Vicodin at bedtime,
-Flexeril 10mg at bedtime
-Dye Free Benadryl for allergies occasionally
-Pelvic floor & myofascial release (external only) physical therapy for 8 weeks, then home exercise program...
-Managing stress
-Fur therapy: Hugging the cat!
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10-05-2005, 08:46 AM #5ICN Member
- Join Date
- Jul 2005
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- Charlotte, NC
- Posts
- 4,728
Well, I found it at Harris Teeter, which is our biggest chain grocery store here in Charlotte...but I also saw it at Food Lion, another NC chain I believe, and Bi-Lo. It's a celestial seasonings tea, so it should be nationwide.
It's wonderful, and so far no problems at all from the tea.*IC-- Summer 2004; PFD--October 2005
*Fibro--Fall 2000; CFS-- Fall 2000
*MPS--Fall 2000; Crohn's disease-- 1997*IBS,GERD, *Migraines, hypothyroidism, GYN problems *Degenerative Disc Disease/scoliosis
Total Abdominal Hysterectomy--adenomyosis--9\08
Colostomy surgery due to rupture of lower large intestine (sigmoid colon) ---4\18\09--Had peritonitis, almost died after surgery as I was very sick. Learning to deal with that and get healthy enough for *possible* reconnect surgery January of 2010...if not this surgery saved my life, so I can, and will live with it....happily!
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10-05-2005, 09:56 AM #6ICN Member
- Join Date
- Nov 2004
- Location
- New Jersey
- Posts
- 1,088
Thanks for the info on the tea..........gotta look for it. I'm still searching for something that I enjoy to have when I wake in the mornings. I really miss that cup of coffe but don't dare! I have a little decaf espresso mid-day....no prob .....but when I venture out and have a real espresso (with caffeine) I pay the price!
any other OK teas you might recommend???
Mel
http://s109.photobucket.com/albums/n...1169174549.pbw
Frequent UTI's as a child,urethral stenosis by age 9, Urethral dilatations every 2 months. By age 20urethrotomy to remove scar tissue from dilatations.
Questionable endometriosis nightmare begins. First lap severed an artery. Lost lots of blood resulting in severe abdominal/pelvic adhesions. Needed 7 surgeries to clean up adhesions. Last adhesiolysis- 7/04 in Germany by adhesion expert using Spraygel. Finally adhesion free! Fibromylagia and chronic fatigue(from Parvo Virus infection 1997and Epstein Barr), migraines, IBS,IGG & IGA deficiencies, high IGM.Lots of food and envorionmental allergies.IC/PFD diagnosed after 4 endo surgeries and is now chronic daily pain.Still tryng to fine tune the diet and get on some sort of medication that I don't react too!
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10-05-2005, 10:06 AM #7ICN Member
- Join Date
- Jul 2005
- Location
- Charlotte, NC
- Posts
- 4,728
If you like vanilla, you'll love this tea. I wish I had known about it sooner--I actually don't feel deprived of anything for a change!
I bought some tangerine spice tea, but it has rose hips in it and I didnt notice til I got it home, and drank a cup....even so, I didn't have any problems from it. I was afraid to try it again after noticing the rose hips....didn't want to push my luck.*IC-- Summer 2004; PFD--October 2005
*Fibro--Fall 2000; CFS-- Fall 2000
*MPS--Fall 2000; Crohn's disease-- 1997*IBS,GERD, *Migraines, hypothyroidism, GYN problems *Degenerative Disc Disease/scoliosis
Total Abdominal Hysterectomy--adenomyosis--9\08
Colostomy surgery due to rupture of lower large intestine (sigmoid colon) ---4\18\09--Had peritonitis, almost died after surgery as I was very sick. Learning to deal with that and get healthy enough for *possible* reconnect surgery January of 2010...if not this surgery saved my life, so I can, and will live with it....happily!
-
10-05-2005, 02:03 PM #8ICN Member
- Join Date
- Feb 2005
- Location
- Olympia, WA
- Posts
- 1,917
I will look for it too. I love vanilla! Thanks Sandy!
30 year old Mother, Midwife, Birth Doula, Herbalist, and Massage Therapist with sudden onset of IC approx. 2/16/05 (after a PAP smear and routine gynecological exam). I tried a HUGE list of natural and alternative treatments (including Cystoprotek, Desert Harvest Aloe, Aloe gel, Glucosamine/Chondroitin, L-Argenine, Quercitin/Bromelain, Marshmallow Root...etc) for the first 9 months of having IC, without much relief, until I finally researched and started Elmiron.
My experience:
~Previously took Elmiron 100mg three times a day
(9/29/05-7/06)
~Experimented with dosage (1-2 Elmiron a day recapped into a plain gelcap) and did well with occasional mild flares. (7/06-9/09)
~Stopped all together at the 1 year mark (9/29/06) for 10 days. Still felt good, with low-level symptoms.
~Decided to go back on it (10/16/06) to see if another year on it will bring me into full (zero symptoms) remission. Currently taking 1-2 pills a day, recapped into a plain gelcap.
~ 6/08...Tried to go off Elmiron again, had huge flare at the 3 week mark, went back on 100mg once a day for maintenance.
-I went off Elmiron for 2 months due to pregnancy and had a complete relapse of IC symptoms to pre-diagnosis levels of pain/frequency. I then went back on Elmiron at 10-12 weeks, but was unable to take it further due to severe morning sickness. The 2nd/3rd trimesters were MUCH better IC-wise, and postpartum is the best I have felt in years. I am no longer on Elmiron for now.
-20 month postpartum remission from 4/17/09 to 12/10/10.
-Out of remission after a pap smear on 12/10/10. Pap smears are obviously the main IC trigger for me. Currently trying to cope with loss of the remission.
Also doing:
~Sugar-free/gluten free and strict IC diet (With an emphasis on organic, alkaline and whole foods)
~Prenatal DHA/Fish oil supplement
~Vitamin D supplement
~Culturelle probiotic
-
10-05-2005, 02:52 PM #9Support Volunteer
- Join Date
- Nov 2004
- Location
- Michigan
- Posts
- 7,901
Yup Sandy, good stuff huh? I get the Celestial Seasonings too, that's what you got right? I know they call theirs Madagascar Red, yummy stuff!!!
Hugs,
Tracey
How do you eat an elephant? One bite at a time...
Harry arrived 2/23/09!
*IC Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
IC Diet Cheat Sheet:
http://www.ic-network.com/diet/2009icdietlist.pdf
Dx's:
IC dx'd Nov 2004
Lymphocytic Colitis dx'd July 2005
Possible IBS
Current IC Meds
Vistaril 25mg in the evening
Previous IC Meds taken:
Cystoprotek - 2 caps 2x's a day
Elmiron, 100mg 3x's a day
Ditropan, 5 mg 3x's a day
Others:
Wellbutrin 150mg 2x's a day for Anxiety/IBS
Pepcid 40mg a day for GERD
Zytrec for Nasal Allergies
Align Probiotic daily for IBS
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10-05-2005, 02:57 PM #10Support Leader
- Join Date
- Jan 2004
- Location
- North Carolina
- Posts
- 6,856
K... I'm gonna go to Harris Teeter tomorrow and try to find it
It sounds good.. and I like having a soothing cup of tea before bed. Especially since they are predicting rain for us up here all week -- and then the night temps are going to drop into the 40s by the weekend!!! Cool, rainy weather = great time for tea! Esp. if we get to light the woodstove for the first time this year
****
Jen
*Diagnosed with severe IC in 2004
*Also diagnosed with PFD, fibromyalgia, chronic myofascial pain, IBS, migraines, allergies/asthma, dermatographism
*Kept trying a million different treatments for all these things until I found what works, and I am doing okay these days with the help of a cocktail of medications and the InterStim, which was first placed in 2007. [I have had 2 revisions - one in 2010 when my battery died and had to be replaced, and one complete replacement (lead and generator) in 2012 after a fall on my stairs caused my lead to move.]
*Current meds include Atarax (50mg at night), Lyrica (150mg twice a day), Xanax (0.5mg at night and as needed), Zanaflex (4mg at night), hydrocodone (10/325, every 6 hours as needed), Advair, Nasonex, Singulair (10mg at night), oral contraceptives, home instills containing Elmiron and Marcaine (as often as I need to do them).
**I am not a medical authority nor do I offer definitive medical advice. I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
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10-18-2005, 04:04 AM #11ICN Member
- Join Date
- Jul 2005
- Location
- Charlotte, NC
- Posts
- 4,728
Did anyone try this tea? I'm hooked and sitting here drinking a cup of it now....anyway, just curious if anyone found it and what ya thought of it.
*IC-- Summer 2004; PFD--October 2005
*Fibro--Fall 2000; CFS-- Fall 2000
*MPS--Fall 2000; Crohn's disease-- 1997*IBS,GERD, *Migraines, hypothyroidism, GYN problems *Degenerative Disc Disease/scoliosis
Total Abdominal Hysterectomy--adenomyosis--9\08
Colostomy surgery due to rupture of lower large intestine (sigmoid colon) ---4\18\09--Had peritonitis, almost died after surgery as I was very sick. Learning to deal with that and get healthy enough for *possible* reconnect surgery January of 2010...if not this surgery saved my life, so I can, and will live with it....happily!
-
10-18-2005, 05:23 AM #12ICN Member
- Join Date
- Nov 2004
- Location
- New Jersey
- Posts
- 1,088
Hi Sandy,
I'm so glad that you found somethng that you enjoy drinking and can tolerate. I finally found it but haven't tried it yet! I was in FL last weekend and got it in Whole Foods along with Marshmellow Root and Slippery Elm. I bought both those as loose herbs. but....the ONES that I have been having and enjoying are by NUMI. I got the Bushmen's Brew - Honeybush and the Red Mellow Bush - Rooibos. I like the honey better and it cuauses no problem. I feel the Rooibos has a little tannic acid which irritates ever so slightly. The honey does absolutley NO harm!!!!
How are you doing lately?
Mel
http://s109.photobucket.com/albums/n...1169174549.pbw
Frequent UTI's as a child,urethral stenosis by age 9, Urethral dilatations every 2 months. By age 20urethrotomy to remove scar tissue from dilatations.
Questionable endometriosis nightmare begins. First lap severed an artery. Lost lots of blood resulting in severe abdominal/pelvic adhesions. Needed 7 surgeries to clean up adhesions. Last adhesiolysis- 7/04 in Germany by adhesion expert using Spraygel. Finally adhesion free! Fibromylagia and chronic fatigue(from Parvo Virus infection 1997and Epstein Barr), migraines, IBS,IGG & IGA deficiencies, high IGM.Lots of food and envorionmental allergies.IC/PFD diagnosed after 4 endo surgeries and is now chronic daily pain.Still tryng to fine tune the diet and get on some sort of medication that I don't react too!
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