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Thread: New user

  1. #1
    Registered User
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    Sep 2005
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    New user

    Hello to all my name is Rachel and I have been finally diagnossed as of 8-11-05
    I have more than likely been living with this for about five years. I also have IBS and it can cause even more pain then normal. I hope to learn so much from you all. Right now I am having a hard time keeping a work schedule and maintaining that schedule and working....I work for SBC and am on the phone all day (it is hell). I am on meds and go once a week for a drug cocktail in the ole bladder!! Glad to meet you all best of luck to all! I forgot a few details...one am happly married and we thank God for the Military insurance!! He is Air Force and we have a cute lil 2 and a half year old boy...I am not partial hoping for number two after we make a move at the first of year. That will be when we start trying.
    Anyways went for about two months off of work being passed from dr. to dr. was being told had bladder infection at every dr. I saw. The OBGYN opened me up and took a look at the female organs. Then also took out the apendix and then finally got referred to a uro-gynocologist!! :woohoo: Took two more months of pain before I got into see him as he is the only one in the state. But between my poor family dr. who I was seeing one to two times a week and my new uro/gyno dr. we have a diagnosis and a treatment plan!!!
    Rachel
    Last edited by rachrene; 09-20-2005 at 05:36 AM.

  2. #2
    Support Leader Sarojini's Avatar
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    Jan 2004
    Location
    North Carolina
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    6,856
    We're glad you found us!

    I understand about the work thing; there are some days where I just don't feel like going to work, or I just don't feel like staying once I get there! As you can see from my signature, I have IC and IBS like you, and fibromyalgia, so when all that acts up it's miserable, as I'm sure you know!!!

    Anyway, welcome to the boards and feel free to ask us any questions you may have. If you haven't seen it already, our Patient Handbook is at http://www.ic-network.com/handbook and contains lots of self help stuff (like the IC Diet) and also information on different treatments you can try.

    Good luck, and welcome again!!!
    ****
    Jen

    *Diagnosed with severe IC in 2004
    *Also diagnosed with PFD, fibromyalgia, chronic myofascial pain, IBS, migraines, allergies/asthma, dermatographism
    *Kept trying a million different treatments for all these things until I found what works, and I am doing okay these days with the help of a cocktail of medications and the InterStim, which was first placed in 2007. [I have had 2 revisions - one in 2010 when my battery died and had to be replaced, and one complete replacement (lead and generator) in 2012 after a fall on my stairs caused my lead to move.]
    *Current meds include Atarax (50mg at night), Lyrica (150mg twice a day), Xanax (0.5mg at night and as needed), Zanaflex (4mg at night), hydrocodone (10/325, every 6 hours as needed), Advair, Nasonex, Singulair (10mg at night), oral contraceptives, home instills containing Elmiron and Marcaine (as often as I need to do them).

    **I am not a medical authority nor do I offer definitive medical advice. I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

  3. #3
    ICN Member SandyRN's Avatar
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    Jul 2005
    Location
    Charlotte, NC
    Posts
    4,728
    Glad you found your way to these boards. The people here are wonderful, kind, and knowlegeable about IC and all things related to it.

    I'm sorry you went through so much before finally getting a diagnosis, but now that you do maybe things will start getting better for you.

    I look forward to getting to know you!

    Sandy
    *IC-- Summer 2004; PFD--October 2005
    *Fibro--Fall 2000; CFS-- Fall 2000
    *MPS--Fall 2000; Crohn's disease-- 1997*IBS,GERD, *Migraines, hypothyroidism, GYN problems *Degenerative Disc Disease/scoliosis

    Total Abdominal Hysterectomy--adenomyosis--9\08

    Colostomy surgery due to rupture of lower large intestine (sigmoid colon) ---4\18\09--Had peritonitis, almost died after surgery as I was very sick. Learning to deal with that and get healthy enough for *possible* reconnect surgery January of 2010...if not this surgery saved my life, so I can, and will live with it....happily!

  4. #4
    ICN Member callie0767's Avatar
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    Jun 2001
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    Indiana
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    376

    Wink

    welcome rachel to the icn boards

  5. #5
    Support Volunteer traceann's Avatar
    Join Date
    Nov 2004
    Location
    Michigan
    Posts
    7,901

    Talking Welcome!!

    Hi Rachel and to the gang!! You have found the greatest place for support, info -- you name it!! Everyone is so great, I have no idea what I would have done in the weeks leading up to diagnosis and the months after diagnosis!!

    Well, once again, welcome and looking forward to chatting with you!!
    Hugs,
    Tracey
    How do you eat an elephant? One bite at a time...

    Harry arrived 2/23/09!



    *IC Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

    IC Diet Cheat Sheet:
    http://www.ic-network.com/diet/2009icdietlist.pdf



    Dx's:
    IC dx'd Nov 2004
    Lymphocytic Colitis dx'd July 2005
    Possible IBS
    Current IC Meds
    Vistaril 25mg in the evening
    Previous IC Meds taken:
    Cystoprotek - 2 caps 2x's a day
    Elmiron, 100mg 3x's a day
    Ditropan, 5 mg 3x's a day
    Others:
    Wellbutrin 150mg 2x's a day for Anxiety/IBS
    Pepcid 40mg a day for GERD
    Zytrec for Nasal Allergies
    Align Probiotic daily for IBS

  6. #6
    Registered User Amyinagony's Avatar
    Join Date
    Aug 2004
    Posts
    315
    Rachel!!!!
    I agree with the others here, you have come to the best place for support and information. Most of us share in your story in that we have been to multiple Drs and had years of suffering before even getting a diagnosis. Thank God you are on the road to a much happier way of living. Wish you the best with the instillations. For me they are a huge help.
    Again, Welcome and will look forward to your posts.
    Hugs,
    Love you all,
    Amy

  7. #7
    ICN Staff SharonA's Avatar
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    Jan 2002
    Location
    Memphis, TN
    Posts
    10,854
    Hi Rachel and to the ICN. I am going to agree with all the others and tell you that I think these people who come here to reach out and support everyone are super. They are the best. I have been diagnosed for over 4 years and have learned so much from reading the posts. I don't know what I would have done in the beginning without the help from the people of the ICN.

    Glad you found us...
    Sharon

    Shopping??? Did someone mention shopping? I'll get my hat... ;-)

    Where I can be found most days.

    If not there, then here


    Link to the ICN Patient Handbook:
    http://www.ic-network.com/handbook/

    Link to the IC Diet:
    http://www.ic-network.com/diet/


    IC Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

  8. #8
    Registered User
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    Sep 2005
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    2
    I'm new too. Just diagnosed yesterday.

  9. #9
    ICN Staff SharonA's Avatar
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    Jan 2002
    Location
    Memphis, TN
    Posts
    10,854
    to the ICN...manicgrammy. Glad you joined us on this journey. Hope we can be a place of help and support for you.

    So tell me...are you really a manic grammy?
    Sharon

    Shopping??? Did someone mention shopping? I'll get my hat... ;-)

    Where I can be found most days.

    If not there, then here


    Link to the ICN Patient Handbook:
    http://www.ic-network.com/handbook/

    Link to the IC Diet:
    http://www.ic-network.com/diet/


    IC Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

  10. #10
    Registered User
    Join Date
    Sep 2005
    Posts
    2

    Smile

    Hi, yes, I am a grammy of two! And I can be manic,but only on a full moon! Lots of info here!!

  11. #11
    ICN Member VickiB's Avatar
    Join Date
    Mar 2004
    Location
    N. Idaho
    Posts
    4,372
    Just wanted to add another welcome to both You, Rachel, and Manicgrammy.
    Hmmm, when's the next full moon anyhow? -Could be interesting from here on in!

    Vicki

  12. #12
    ICN Member ~*~Christine~*~'s Avatar
    Join Date
    Jul 2004
    Location
    A toilet somewhere in Toronto, Canada
    Posts
    873

    I hope something starts helping you with the pain now that you know you have IC.
    btw, I heard in the US that Military insurance is one of the best, if not the best, medical insurance down there so you're one of the lucky ones

  13. #13
    Support Volunteer traceann's Avatar
    Join Date
    Nov 2004
    Location
    Michigan
    Posts
    7,901
    Hi manicgrammy!! Weclome to the site!! Look forward to seeing you on the boards and chatting!!

    Hugs!!!
    Hugs,
    Tracey
    How do you eat an elephant? One bite at a time...

    Harry arrived 2/23/09!



    *IC Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

    IC Diet Cheat Sheet:
    http://www.ic-network.com/diet/2009icdietlist.pdf



    Dx's:
    IC dx'd Nov 2004
    Lymphocytic Colitis dx'd July 2005
    Possible IBS
    Current IC Meds
    Vistaril 25mg in the evening
    Previous IC Meds taken:
    Cystoprotek - 2 caps 2x's a day
    Elmiron, 100mg 3x's a day
    Ditropan, 5 mg 3x's a day
    Others:
    Wellbutrin 150mg 2x's a day for Anxiety/IBS
    Pepcid 40mg a day for GERD
    Zytrec for Nasal Allergies
    Align Probiotic daily for IBS

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