Page 1 of 2 12 LastLast
Results 1 to 15 of 16

Thread: Yucky Flare

  1. #1
    Support Leader Sarojini's Avatar
    Join Date
    Jan 2004
    Location
    North Carolina
    Posts
    6,856

    Angry Yucky Flare

    Very grumpy today -- I am flaring big time, with both IC and fibro, and the IBS is threatening to start in as well

    I am on MS-Contin, but this flare is cutting right through that, and I have no more breakthrough meds to take to help, so I'm just trying to "white-knuckle" it through the pain, use heat, and go about my daily activities to attempt to ignore my stupid bladder. I'm losing my appetite and everything... yuck. This move has just made me hate the medical system around here; I just hate how they leave you in pain and just don't care one bit about it...

    I'm especially mad the flare is happening now because I have my second day in the neuro-oncology clinic with the resident and attending doc tomorrow and I'll pretty much be on my feet from 9 until whenever (often does not finish until 6 or 7 pm). THAT is going to be fun when I'm this sore, but at least I'll probably get it more in perspective when I start seeing people who have or have had brain tumors -- it could be worse, in other words.

    Ok, enough whining -- I guess I just wanted to complain to someone other than Hubby, who is probably getting sick of my whining by now

    I am going to attempt to vacuum the cat fur off the living room rug now and try to be productive.
    ****
    Jen

    *Diagnosed with severe IC in 2004
    *Also diagnosed with PFD, fibromyalgia, chronic myofascial pain, IBS, migraines, allergies/asthma, dermatographism
    *Kept trying a million different treatments for all these things until I found what works, and I am doing okay these days with the help of a cocktail of medications and the InterStim, which was first placed in 2007. [I have had 2 revisions - one in 2010 when my battery died and had to be replaced, and one complete replacement (lead and generator) in 2012 after a fall on my stairs caused my lead to move.]
    *Current meds include Atarax (50mg at night), Lyrica (150mg twice a day), Xanax (0.5mg at night and as needed), Zanaflex (4mg at night), hydrocodone (10/325, every 6 hours as needed), Advair, Nasonex, Singulair (10mg at night), oral contraceptives, home instills containing Elmiron and Marcaine (as often as I need to do them).

    **I am not a medical authority nor do I offer definitive medical advice. I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

  2. #2
    Angel watching over us
    Join Date
    Mar 2004
    Location
    Viera, Florida
    Posts
    4,325
    Jen,
    I'm sorry you are flaring so bad and that you are not able to get adequate pain control. That stinks. I also lose my appetite during flares. I also know what it is like to be on your feet all day with a flare. I hope September proves to be a much better month with the new uro and pain clinic.

    Hugs,
    Barb
    (Babs passed away in April 2009. We honor her memory and remember her fondly. - Jill O. ICN President & Founder)

    [SIZE="1"]Proud mama of a gift named Lindsey who taught me through her autism what is important in life:angel:
    :angel: IC Angel Volunteer Coordinator :angel:
    :) Contact me via PM or e-mail if you would like to help
    I have learned all about life in 3 words: It goes on! :D--Robert Frost
    PCOS 7/85
    RSD 7/94 :headbang:
    Endometriosis 9/98 :toilet:
    Antiphospholipid antibody syndrome 9/99
    Kidney stones--too many to count
    Factor V Leiden mutation 10/02
    IC 6/03 :evilsmile
    Deep Venous Thrombosis and Cellulitis 12/05 :loco: DVT and Greenfield Placed 3/14/08
    "Spirit is an invisible force made visible in all of life"--Maya Angelou
    "Ohana means family--no one gets left behind or forgotten." Stitch[/SIZE][/SIZE][/SIZE]

  3. #3
    Support Leader dyno's Avatar
    Join Date
    Jun 2002
    Location
    Iowa
    Posts
    3,768
    Jen, I am sending you hugs... sorry about your flare.
    Jolene

    "Life is what happens when you are making other plans" John Lennon

    IC diet cheat sheet....http://www.ic-network.com/diet/dietcheatsheet.html

    Information for Patients can be found here.
    http://www.ic-network.com/patientlinks.html


    Jen's tips for great IC sex..http://www.ic-network.com/forum/showthread.php?t=22522&highlight=jens+tips[/url]




    Newbie Angel...I will be happy to answer any questions or just listen. Email me at joleneb2@yahoo.com

    "IC Angel Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you."

  4. #4
    Guest emilyrose197377's Avatar
    Join Date
    May 2005
    Posts
    3,701
    Jen, I am sending you hugs and prayers. I am sorry you are flaring. I am flaring to my pain meds aren't working for the pain. I hope you feel better soon.I also go back to work tommorrow part time.


  5. #5
    Support Leader Sarojini's Avatar
    Join Date
    Jan 2004
    Location
    North Carolina
    Posts
    6,856
    Thanks for all the support, ladies It helps to know others are going through/have gone through similar things.

    Actually I think I'm going to go take a dip in our rec club's pool -- it's outdoor, so I'll get some fresh air, and the water is like 92 degrees in it from all the hot sun it has absorbed. I find doing a few stretches in warm water like that is very helpful for at least the fibro part of my flare!
    ****
    Jen

    *Diagnosed with severe IC in 2004
    *Also diagnosed with PFD, fibromyalgia, chronic myofascial pain, IBS, migraines, allergies/asthma, dermatographism
    *Kept trying a million different treatments for all these things until I found what works, and I am doing okay these days with the help of a cocktail of medications and the InterStim, which was first placed in 2007. [I have had 2 revisions - one in 2010 when my battery died and had to be replaced, and one complete replacement (lead and generator) in 2012 after a fall on my stairs caused my lead to move.]
    *Current meds include Atarax (50mg at night), Lyrica (150mg twice a day), Xanax (0.5mg at night and as needed), Zanaflex (4mg at night), hydrocodone (10/325, every 6 hours as needed), Advair, Nasonex, Singulair (10mg at night), oral contraceptives, home instills containing Elmiron and Marcaine (as often as I need to do them).

    **I am not a medical authority nor do I offer definitive medical advice. I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

  6. #6
    Forum Manager ICNDonna's Avatar
    Join Date
    Mar 2000
    Location
    Oregon
    Posts
    32,626
    Sounds like a winning move. Our pool is about 88 degrees and it's soooo relaxing to just lay back and float!

    Hope you're better tomorrow.

    Sending gentle hugs,
    Donna
    Have you checked the ICN Shop?
    http://www.icnsales.com for US & Canada
    http://www.icnshop.com for all others

    Patient Help: http://www.ic-network.com/patientlinks.html

    Diet list: http://www.ic-network.com/diet/2009icdietlist.pdf

    You'll find my story at: http://www.ic-network.com/patientstories/donna.html

    I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

    Anyone who says something is foolproof hasn't met a determined fool
    .....My Meggie.....

  7. #7
    ICN Member poetgirl's Avatar
    Join Date
    Mar 2003
    Location
    Atlanta
    Posts
    1,424
    Hope you start feeling better soon, Jen! Being in pain like that is hard to deal with, especially when you have a lot going on. The pool sounds like a good idea.
    Namaste

    "You must be the change you want to see in the world." - Mahatma Gandhi

    "The most important medicine is tender love and care" - Mother Teresa

    Proud mother of Ahleia, born on April 9, 2007

    -----------------------
    Diagnosed with:
    IC, OAB, Congenital urethral stricture, IBS, Vulvar vestibulitis, Heart murmur, Congenital cervical stenosis...but otherwise doing great!

    Meds:
    Currently in remission, but took the following for 3 years: Elmiron 200 mg., Elavil 25 mg., Detrol LA 4mg, Ovcon-35

    Health treatments/practices:
    Kripalu yoga, Chiropractic, Massage therapy and Reiki

  8. #8
    ICN Member tigger_gal's Avatar
    Join Date
    Apr 2002
    Location
    ANYTOWN
    Posts
    8,554
    ((((((jen))))))) in the same boat here.. and it hurts so much to sit.. but you can only lay down for so long..... I am trying to drain my pool and can't get the last of the water out cuz I hurt to bad to scoop and bail it...
    feel better..
    Brat
    'The will of God will never take you where the Grace of God will not protect you.'

  9. #9
    ICN Member Janie Miranda's Avatar
    Join Date
    Mar 2005
    Posts
    1,746
    I hope you feel better soon, Jen.
    hugs,
    Janie

  10. #10
    Registered User MarthaB's Avatar
    Join Date
    Jul 2005
    Location
    brisbane australia
    Posts
    1,704
    martha

  11. #11
    ICN Member patricia1's Avatar
    Join Date
    Mar 2005
    Location
    Louisiana
    Posts
    2,132
    Sending healing thoughts your way....
    God grant me the serinity to withstand the days ahead!!!

    My myspace link...
    www.myspace.com/patricia_luvs_matt


    Patricia

    In Memory of My Father (Lawerence) 1/25/2007

    Procedures:
    Interstim Sept 2001
    1st InterStim Removal May 2005
    2nd Interstim Implanted May 2005
    2nd InterStim Removed March 2007
    Hysterectomy 1999
    Tubes Tied 1997
    C-Section 1996


    Me and my kids


    Taylor (my daughter) Me and my daughter My son Cody and Taylor

  12. #12
    Support Volunteer traceann's Avatar
    Join Date
    Nov 2004
    Location
    Michigan
    Posts
    7,901
    Feel better soon!!!
    Hugs,
    Tracey
    How do you eat an elephant? One bite at a time...

    Harry arrived 2/23/09!



    *IC Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

    IC Diet Cheat Sheet:
    http://www.ic-network.com/diet/2009icdietlist.pdf



    Dx's:
    IC dx'd Nov 2004
    Lymphocytic Colitis dx'd July 2005
    Possible IBS
    Current IC Meds
    Vistaril 25mg in the evening
    Previous IC Meds taken:
    Cystoprotek - 2 caps 2x's a day
    Elmiron, 100mg 3x's a day
    Ditropan, 5 mg 3x's a day
    Others:
    Wellbutrin 150mg 2x's a day for Anxiety/IBS
    Pepcid 40mg a day for GERD
    Zytrec for Nasal Allergies
    Align Probiotic daily for IBS

  13. #13
    ICN Member
    Join Date
    Aug 2005
    Location
    Manchester, England
    Posts
    10
    I'm new here, over in England, where I can't sleep. If it's not the pain it's the pressure! I don't like to wake up my friends at three a.m. just because of the IC, so it can get a bit lonely at this time of night...

  14. #14
    Support Volunteer traceann's Avatar
    Join Date
    Nov 2004
    Location
    Michigan
    Posts
    7,901

    Talking Welcome!

    Hello Bacon! You certainly have found the right place, lol. There is alway someone here it seems, day and night! Glad you found us and feel free to ask any questions you need to/want to. There is a huge amount of information to be had here, from the Patient Handbook, to the Message Boards! The boards are the greatest! So much support and caring, it's wonderful.

    Here's a link to the Patient Handbook (if you haven't found it already)

    http://www.ic-network.com/handbook/

    And here's a link right direct to the IC Diet foods list:

    http://www.ic-network.com/handbook/diet.html

    These are both great places to start, then as you have questions, ask away!!!

    Hope to see you around the boards!!

    Hugs!
    Hugs,
    Tracey
    How do you eat an elephant? One bite at a time...

    Harry arrived 2/23/09!



    *IC Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

    IC Diet Cheat Sheet:
    http://www.ic-network.com/diet/2009icdietlist.pdf



    Dx's:
    IC dx'd Nov 2004
    Lymphocytic Colitis dx'd July 2005
    Possible IBS
    Current IC Meds
    Vistaril 25mg in the evening
    Previous IC Meds taken:
    Cystoprotek - 2 caps 2x's a day
    Elmiron, 100mg 3x's a day
    Ditropan, 5 mg 3x's a day
    Others:
    Wellbutrin 150mg 2x's a day for Anxiety/IBS
    Pepcid 40mg a day for GERD
    Zytrec for Nasal Allergies
    Align Probiotic daily for IBS

  15. #15
    ICN Member
    Join Date
    Aug 2005
    Location
    Manchester, England
    Posts
    10
    Thanks, it means a lot to have someone you can talk to when the bladder is doing its worst.

Page 1 of 2 12 LastLast

Thread Information

Users Browsing this Thread

There are currently 1 users browsing this thread. (0 members and 1 guests)

Similar Threads

  1. Flare advice needed
    By Hope in forum Help! I'm in an interstitial cystitis flare!
    Replies: 4
    Last Post: 07-22-2007, 02:49 PM
  2. Attack of A Weekend IC Flare!
    By icnmgrjill in forum Jill's Journal
    Replies: 33
    Last Post: 07-09-2007, 12:05 PM
  3. My worst flare yet!!!
    By tommygal in forum Help! I'm in an interstitial cystitis flare!
    Replies: 13
    Last Post: 04-29-2006, 10:05 AM
  4. This really helped my flare
    By 1tuffcookie in forum Help! I'm in an interstitial cystitis flare!
    Replies: 13
    Last Post: 05-27-2004, 03:05 PM
  5. What's a flare?
    By creatingkarma in forum Help! I'm in an interstitial cystitis flare!
    Replies: 3
    Last Post: 04-09-2004, 02:48 PM

Bookmarks

Posting Permissions

  • You may not post new threads
  • You may not post replies
  • You may not post attachments
  • You may not edit your posts
  •