06-09-2005, 08:26 AM #1
- Join Date
- Jun 2005
I am scheduled for another appt., but I am sooooo afraid. Have any of you heard of Urelle? That was perscribed for me until my next appt. I am also taking Vicodin ES. My uro said something about shooting some medicine into my bladder, have any of you had that done? This is all new to me, but the pain is tremendous. Now my kidneys are aching like crazy.
06-09-2005, 08:39 AM #2
Ok, don't be afraid, first of all We're here to give you a little help and support.
Yes, I've heard of Urelle; it is a mild urinary tract anesthetic that is supposed to help with bladder pain and urgency/frequency. Some have great luck with it, but others do not report any difference. We are all different with how we respond to meds.
As for "shooting medicine into the bladder," this is called a "bladder instillation" or a "bladder wash." It involves inserting a catheter into your bladder, and then some medicine is put into your bladder via that catheter. The catheter is usually removed, and you will be asked to hold the medicine for 15 minutes -1 hour depending on the doctor. Then you just urinate it out. There are several types of bladder instills -- the most common are DMSO instills (this is an organic solvent, and if you have this one you may smell like garlic for a day afterwards... strange, yes, I know) and instills with heparin, lidocaine and sodium bicarbonate. (You can read more about these instills in our handbook, at http://www.ic-network.com/handbook .)
I do the heparin ones at home after going through DMSO instills, which did not help me. However, again, we are different and some have better luck with DMSO.
I would ask your doctor to explain exactly what is in the instills and how often he plans to do them. Bring a notebook and write down what he says so you always will remember. Remember, THIS IS YOUR BODY and you have a right to know what they are going to put in it!! It's not rude or anything to ask what's in the instill****
*Diagnosed with severe IC in 2004
*Also diagnosed with PFD, fibromyalgia, chronic myofascial pain, IBS, migraines, allergies/asthma, dermatographism
*Kept trying a million different treatments for all these things until I found what works, and I am doing okay these days with the help of a cocktail of medications and the InterStim, which was first placed in 2007. [I have had 2 revisions - one in 2010 when my battery died and had to be replaced, and one complete replacement (lead and generator) in 2012 after a fall on my stairs caused my lead to move.]
*Current meds include Atarax (50mg at night), Lyrica (150mg twice a day), Xanax (0.5mg at night and as needed), Zanaflex (4mg at night), hydrocodone (10/325, every 6 hours as needed), Advair, Nasonex, Singulair (10mg at night), oral contraceptives, home instills containing Elmiron and Marcaine (as often as I need to do them).
**I am not a medical authority nor do I offer definitive medical advice. I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
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