Thread: Will I go in remission again?
05-31-2005, 03:12 PM #1
Will I go in remission again?
I had been for the most part in remission before this pregnancy for many years with a couple twinges here and there. I am about 6 months pregnant now and been flaring up since a couple months into this pregnancy. I am really scared. What are my chances of ever feeling normal again? Did I do damage to my bladder now by getting pregnant? I have read peoples posts that they seem to think that their IC has been brought on by c-sections and deliveries, etc. It's really scaring me! I wanted a baby so bad but I'm worried if I'm not well after this how will I take care of him? It has felt like I've been flaring up forever. I am just so scared of never getting back to where I was again. I don't understand how so many go into remission just from pregnancy. Pregnancy has been an IC nightmare. Is there any hope? I have tried several things even since being pregnant that I'm told are safe and not even a slight change (elmiron, ditropan, zyrtec, prelief, physical therapy for PFD). Elmiron was helping me before! I don't get it! Do people never get better when things get worse due to pregnancy? Ann
05-31-2005, 05:14 PM #2
- Join Date
- Mar 2002
The hardest thing to deal with about IC is that we are all so very different. What works for some, won't for others. My IC went into remission during my pregnancy and lasted until she was about 6 months old. Others I know, their IC worsened during the pregnancy. The only advice I can give you is to live for today. Don't worry yourself about what tomorrow may bring. All the stress is not good for you or baby. Not to mention IC rears it's ugly head when you are under alot of stress. I think that if you go back to doing the things you did before you got pregnant and got yourself to remission in the first place, that things will get better for you. It may take some time but you'll get there!IC Angel: Proudly supporting the Children and the Elderly with IC.
"And he will wipe out every tear from their eyes, and death will be no more, neither will mourning nor outcry nor pain be anymore. The former things have passed away."
06-10-2005, 08:10 PM #3
I know everyone is different, but my pain and other symptoms got so bad when I was pregnant I wanted to die. After my daughter was born, my symptoms settled down about 80%. I still had some pain and urgency and frequency, but I felt much much better. So like I said everyone is different, but it will be the same for you.
P.S. Also, after the baby is born you can go back on meds or try other meds or have procedures that might help that you can't have when you are pregnant.http://www.ic-network.com/patientstories/danielle.html
06-12-2005, 03:24 PM #4
I am sorry you are having such a rough time. But keep your head up, and just try to make it through the rest of your pregnancy the best that you can. My own personal theory is that hormones play a huge key factor in IC...that might be why some people experience painful pregnancies, while others float through them. Maybe after you deliver and when your hormones return to normal, you will feel better! Plus, I'm sure it doesn't help to have a fetus resting above your bladder!!! So just hang in there--I wish you much healing in the present and future.
JessMommy to 2 crazy, wonderful kids and wife to the most amazing man in the world!
06-15-2005, 12:19 PM #5
I am sorry your having a rough time.. I sent this thread to a friend of mine, hopefully she will see it soon and post, she has IC and went thru pregnancy.
Brat'The will of God will never take you where the Grace of God will not protect you.'
06-15-2005, 12:56 PM #6
- Join Date
- Jan 2003
Brat sent me this psot, and I wanted to reply quickly. My IC was out of control with my pregnancy and it was literally the worst 37 weeks of my life. I would not trade the out come for anything. Feel free to PM or email me and I will be happy to talk to you about it. It would take an eternity to sympathize with you on this subject as I truly know how you feel.
06-17-2005, 04:09 PM #7
- Join Date
- Jun 2004
- San Jose, CA
My worst trigger is hormones. I went into remission for 4 years. All of a sudden I started getting my periods every 3 weeks and my IC flared up sooooo bad! I almost went on disability. I went on birth control bills and elmiron and now I am doing about 90% better after a year.
I know this is not the same as being pregnant but my point is that you don't know how hormones will effect IC. Please don't panic. You don't know how the end of your
pregnancy will affect you. The more stress you put on yourself the worse it can make your pain. I had to see a therapist when I came out of remission because I was panicking about the pain and making my own condition worse. She kept telling me that there was no reason to assume the worse. To make a long story short, it took about 10 months but my IC is under control again and she was right not to assume the worse.
Good luck with your pregnancy. Don't assume this will affect how good of a mother you will be. Us women are more resilent then we know.
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