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  1. #1
    IC Friend kelly McC's Avatar
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    rhemotologist ??? Anyone

    I am having a hard time getting into a rhemotologist.. Wondering if anyone else had trouble or what I should do? My Md told me in Feb. She was working on getting me to see a Rhemotologist. She said there was only 2 in this area and hard to get a appointment. I saw neurologist last month he said my Md wrote in letter she was working on getting me into rhemotologist . The neurologist stated it would take awhile as well but I should see one for possible arthritis and or/lupus/Fibro. I called MD office a few weeks ago and was told I need no referral (thanks foir letting me know) I was waiting..
    I called where they suggested I was told by the rhemotologist office they wont schedule appointments till the doctors office summits a letter detailing your symtoms and they would call you to set a appointment. I wait hear nothing. I had a appointment with MD last week she says I still am having a difficult time getting you in to a rhemotologist. I told her I called and they were waiting for a letter. She then said my blood levels for arthritis are fine so she didnot see a need to send me anymore. I have constant tinggling and numbness in feet and hands,muscle spasms,fatique and knee and hip pain among other things. Am I wrong I thought there was no test for fibro ( like blood test) also I know several people who have arthritis and it did not show in blood work ? Plus she admitted to me Lupus can not always be diagnosed by blood tests and that I had several symptoms pointing to it.
    I am wrong to push the issue to see one. One more thing I check the phoneook and there about 15 rhemotologist listed in our area and she said there were only 2.
    On a good note with my blood pressure being alittle high for the last few months she started me on a low dose of blood pressure medicine .
    Kelly
    To the world you might be one person but to one person you might be the world..
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  2. #2
    Guest emilyrose197377's Avatar
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    I am sorry your having so much trouble sound like your dr. is giving you a hard time.

  3. #3
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    hello Kelly, I am sorry your having such a hard time. I was also kinda having your problems with doctors, My nephrologist said he was going to referr me to a rhemotologist, becaused I was getting joint and muscle pain, and one of my smooth muscle titers came back positive. I called often, and they never did the referral. eight months down the line, my PC read the report, and stated that he was going to referr me, but never did. She then she did it herself, because I was now have major fatigue (?). I got in a week later. I have a lot of symtoms that point to Lupus, but like your neurologist stated that the test may not show anything. I had them done three times and not close to any dx. FM their isn't any blood work for it, just trigger points in your body that releases pain,when triggered. I think it's 8 out of the 11 points in the FM chart, but i'm not sure. i just got dx with FM a few weeks ago, and a minor case of arthritis.

    I would say to you to not give up, things will work out...i wish I could say soon, but I can't.

    good luck,

    Hugs,
    Kiyoka

  4. #4
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    "One more thing I check the phoneook and there about 15 rhemotologist listed in our area and she said there were only 2." maybe your doctor only turst those two?
    Kiyoka

  5. #5
    ICN Member JenG's Avatar
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    Kelly,
    I feel your pain - literally! I have been waiting on a referal to a rheumatologist for over a month. I have almost exactly the same situation as you, maybe fibro, arthritis, ms, etc. I also took the blood test and came back normal for the rheumitoid factor. My doctor just shrugged his shoulders and gave up saying "it may be firbro, but I know nothing about it." I finally paid myself to see a physical therapist that helps both fibro and arthritis patients. She did the trigger point test on me and thinks I definitely have fibro, but my symptoms are exactly the same as another of her patients that has RA. She said you can still have RA and test negative for it??? Now I am back to trying to get to a rheumatologist! She also noticed I have psoriasis and said "well, you could very well have psoriatic arthritis - that presents itself exactly like RA only it tests negative for the RA factor." NOW HOW DID SHE KNOW ALL THIS AND MY PRIMARY CARE PHYSICIAN DIDN'T HAVE A CLUE???

    I hope you find a good doctor, I can suggest going to the arthrits foundation websight. www.arthritis.org
    They have info on all types of arthritis and FM. Good luck!
    Jenny

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  6. #6
    IC Friend kelly McC's Avatar
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    I called a few more doctors in area from phone book and online nothing yet everyone of them is not taking new patients. Hopefully my MD will have some good news in the next few days.
    Kelly
    To the world you might be one person but to one person you might be the world..
    I am a newbie Angel ~IC Angel Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

  7. #7
    IC Friend K9wife's Avatar
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    It's sure not like the shows on TV, that's for sure! I work in a Family Practice Drs office, and it's my job to MAKE these referrals....let me tell you, sometimes the ones answering the phones in those specialty offices aren't very cooperative when we plead with them for an earlier appointment, and lots of times they tell us, "Just fax us the patient's info and we'll contact them..." Yeah, right. I think that so many people that don't really require a specialist are taking up valuable appointment time that others really need! Yet, General Practitioners are under the gun by the AMA and insurance companies to do MORE referring out of services...jeesh! There is NO excuse, though, if an office is delinquent in referring you or getting your information out to the specialist, with today's technology...fax machines, modems, etc. The whole system is just a big mess. Prior authorizations, participating providers.....You don't see any of that on Strong Medicine, do you?!? Anyway, just keep politely working your doctor until they get you in to a specialist...the squeaky wheel gets the grease!

  8. #8
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    I had a hard time getting referrals to both my neurologist and the rheumatologist because of the type of insurance I have. There was only 1 neuro that takes my ins and only 2 rheumys that take it. It makes it hard! I agree to just keep calling the MD's office. Eventually they may just get tired of you calling and make the referral! Good luck!
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  9. #9
    Support Leader dyno's Avatar
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    There are not enough rheumatologist for the need, that is one reason why it takes so long. When my H really needed to get in sooner than the 6 mos to a year it was going to take. One day I went in person to the office and pleaded with them to get him in sooner. He was seen in 2 weeks.
    Jolene

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  10. #10
    IC Friend kelly McC's Avatar
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    Yes Jolene I agree there are few. But theres about 15 in my area. Hope someone can see me I dont mind waiting I have waiting far to long for more serious issues.
    My Md's office is working on it there staff is amazing.
    Hope they come up with something
    Kelly
    To the world you might be one person but to one person you might be the world..
    I am a newbie Angel ~IC Angel Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

  11. #11
    IC Friend Hangin' Tough's Avatar
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    Kelly,
    Unfortunately, I have been dealing with doctors non-stop for about the last 5 years. It sounds to me like you need to push your doctor a little bit. This has two possible outcomes 1) the doctor gets mad- if this happens I would change doctors-sounds to me like they are not good at following-up and following through which is not good for you or 2) they will get the message that you take some responsibility for your own health and health care and that you will not "just forget" and move on and they will try harder to work with you toward resolution
    This is just how I approach the situation, and I have had this situation before, unfortunately, I had to change doctors, because he just got mad when I pushed for answers. I was very professional and diplomatic, but I was persistent and wouldn't let him blow me off. It really ****** him off bad.
    Hope you have some luck and find some relief.

    Steve
    "If it ain't broke, it must not be at my house!"

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