Latest Blog Article: Europeans Release Updated Chronic Pelvic Pain Guidelines
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  1. #1
    Junior Member
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    Jan 2004
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    Arrow Does IC cause death?

    I am curious about whether or not IC causes death. If you know, could you please respond. Thankyou.

  2. #2
    Support Leader dyno's Avatar
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    (((Vi)))
    Welcome to the ICN network. To answer your question, No IC does not cause death. IC can be life altering and at times can be a real nuisance. I have had IC for 29 years now and was diagnosed when I was 16 years old. I have had a full, complete life. You have to watch your eating habits and until you can find a treatment that works for you, you many times look for the next bathroom.

    Read through the handbook on this site and you will get a lot of info. Ask whatever you need. We are all here for you.

    Jolene grouphug
    Jolene

    "Life is what happens when you are making other plans" John Lennon

    IC diet cheat sheet....http://www.ic-network.com/diet/dietcheatsheet.html

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    Jen's tips for great IC sex..http://www.ic-network.com/forum/showthread.php?t=22522&highlight=jens+tips[/url]




    Newbie Angel...I will be happy to answer any questions or just listen. Email me at joleneb2@yahoo.com

    "IC Angel Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you."

  3. #3
    ICN Member lalarainbow's Avatar
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    Jul 2003
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    Hi
    The way my URO. put it is "You won't die from this but you will have it for the rest of your life!" then he told me of treatments..I was dignosed last July but know I have had it for years.. Elmiron is helping me. I still get flares and I am still learning things about IC..
    All the best!
    ~~Pam~~
    God brought me to it, He will bring me through it!!!

    Diagnosed 2003
    by cysto/hydro
    Elmiron took almost a year- made me sick, caused diarrhea
    Pyridium -Made me sick
    Detrol and Ditropan- caused constipation
    Trying DMSO instill- had 5 out of 6
    Started Oxytrol Patch- no side affects so far --Jan 2011
    stopped using them after 3 months-- skin was getting irritated
    Cysto/hydro April 6ht 2011-- on expansion only hold one cup
    IBS/ IC
    High blood pressure meds and Crestor
    Sinequan

  4. #4
    Support Volunteers ICNJess's Avatar
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    Mar 2003
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    Northern WI
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    Hi Vi,

    To my knowledge, it may annoy you to death but clinically and physically it cannot kill you. I especially know about the annoyance part. lmao
    Mommy to 2 crazy, wonderful kids and wife to the most amazing man in the world!

  5. #5
    Junior Member
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    Jan 2004
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    Question

    Thanks guys. I have not been diagnosed, but am wondering if I have it. Just Curious.

  6. #6
    Registered User
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    Oct 2003
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    Omaha, Nebraska
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    252

    Post

    I hope you get an answer soon about whether or not you have IC, I believe that the sooner you get treatment, the better off you are. Good Luck
    carly

  7. #7
    Angel watching over us
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    Dec 2002
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    Medway, MA
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    Hi and welcome to the boards. Ic does not cause death. I have had it since 1985 and had a couple of remissons. Now I am in a mini remisson. Please see a uro who is knowedable in ic and knows the treatments. Please keep us posted.
    Hang in there , There is hope.
    There is hope. Prayer works.

    Love, Debbie

  8. #8
    Junior Member
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    Post

    I will keep you posted. Thanks for everything.

  9. #9
    Member
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    Oct 2002
    Location
    Poland
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    Post

    Hi-

    When my former doctor told me not to worry 'cause IC doesn't cause death I told him, "maybe not mine, but yours". You can guess that we didn't have a very good patient/doctor relationship.

    Christa

  10. #10
    ICN Member tigger_gal's Avatar
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    Christa,
    omg lmao lmao thats so funny and I can only bet most of us had thought it
    brat
    'The will of God will never take you where the Grace of God will not protect you.'

  11. #11
    Junior Member
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    Jan 2004
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    Exclamation

    I haven't even went to the Doctor's yet to be tested. I'm going to look into it tho'... I'd better do it soon. Do I go to my regular doctor to get contacts? or find a specialist?

  12. #12
    Forum Manager ICNDonna's Avatar
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    My suggestion would be to see your regular doctor and ask for a referral. I think it's good to have a primary care physician who is up to date on what's going on. This is especially true if you're taking any medications at all.

    Warm hugs,

    Donna
    Have you checked the ICN Shop?
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    Patient Help: http://www.ic-network.com/patientlinks.html

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    You'll find my story at: http://www.ic-network.com/conditions...tories/page/6/

    I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

    Anyone who says something is foolproof hasn't met a determined fool
    .....My Meggie.....

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