04-07-2005, 01:35 PM #1
I am feeling better but I'm not cured.
My Uti/Kidney Infection must be clearing up. My back pain is gone and my bladder pain/burning has subsided but my frequency is still a major problem. I finally went back to work yesterday and struggled to get things done because I was still peeing every 30 minutes or so. Today was a little better until I started on my way home. I had to stop to pee 3 times the last time I felt like my bladder was going to explode but as usual very little urine came out. I am going to call my uro tomorrow and ask for some Ditropan to see if that will help the frequecny. It feel like I am begining to become a walking pharmacy with all the meds I am taking for my poor diseased bladder. My list of meds continues to grow and grow. I am taking Elmiron in the morning and Hydroxyzine at night along with Elavil before bed. Prelief before meals. I have been taking Pyridium Plus at least once a day and the occasional Vicoden when all else fails. I hate taking so much medicene. I sure wish I could function without having to do all this. It guess I will be battling this disease the rest of my life. I sure wish they could find a cure. I just want to get my life back.
Last edited by TexasHoney; 04-07-2005 at 02:12 PM.TexasHoney
Let's keep praying for a cure.
IC Symptoms began in early 2001
Divorced : Sept 2002 (Partly due to IC)
Diagnosed with IC in April 2004
Most recent injury - Rupurtured Left Achilles Tendon
Wed Jan 28 2009 (Ice Storm Accident)
2nd Achilles Tendon Surgery - May 28, 2009 after re-injury on May 17
Broken Left Ankle - July 2004 ( fell off ladder)
Broken Left Ankle (Again) - May 2005 (car accident)
Sprained Left Ankle - November 2006 ( fell off my aunts porch on Thanksgiving Day)
Elmiron, Percocet, Pyridium, Elavil
04-07-2005, 03:24 PM #2
Good luck finding your cure. Don't give up! Glad you are feeling somewhat better....it is unfortunate how much some of us have to take before we feel better.Faith, Hope, and Love,
I believe God is using me. He uses me for God. Things I gain from all my suffering are meant to help others. I hope I can help you too. Email me or start a chat if you like my help or anything. I CARE!Illnesses: IC,IBS, IBD, GERD, PFD, Epilepsy, Endo, Allergies, RLM,Rapid heart beat, low blood pressure,Gastritis,Gall stones,Tendonitis,migraines, Shingles, Prolapsed pouch,ext. fatigue (current problem) I have seen periods of remission and I have seen them end and return. At this time remission is over and working on getting it back! My hope story http://www.ic-network.com/patientstories/katrina.html
IC Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
or find me on facebook http://www.facebook.com/kat671?ref=profile
Be the Miracle! & Pay it Forward!
firstname.lastname@example.org please contact me...I am here to help!http://health.groups.yahoo.com/group/ICinWI/ if your from WI please contact me!
04-07-2005, 03:37 PM #3
I'm glad you are feeling a little better.
DonnaHave you checked the ICN Shop?
http://www.icnsales.com for US & Canada
http://www.icnshop.com for all others
Patient Help: http://www.ic-network.com/patientlinks.html
Diet list: http://www.ic-network.com/diet/2009icdietlist.pdf
You'll find my story at: http://www.ic-network.com/patientstories/donna.html
I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
Anyone who says something is foolproof hasn't met a determined fool
04-08-2005, 03:18 AM #4
I'm glad you are a little better at least, and I hope that you get the right mix of meds or that your symptoms improve somehow, to where you feel like you have your life back.
04-08-2005, 12:49 PM #5
I hope things work for you. My uro told me recently that sometimes we add in meds to get under control and then can eventually take some of them back off...so you never know. I hope you find the cocktail that works for you-
MelanieI am blessed to have an Indiana Pouch now....I am glad I did it even though it has been a long road to recovery!
IC since childhood, finally diagnosed at 31 yo
Low Back Pain s/p spinal fusion at 19
Hydrodistension 2001, 2005, 2011 w capsacian, 2011 with botox/ super pubic tube
Interstim trial and removel 2002,C-Section 2007 and 2010, Post Partum Depression, post partum hypertension, Idopathic hypothalmic amenorrhea
Radical Cystectomy with Indiana Pouch 2/3/12
Hysterectomy 2/3/12, Wicked UTI 3/12, another 5/12, another 6/12, Nephrostomy with poor L ureter flow on L side (OUCH)----scheduled for more surgery Aug 2012.
Iron 2 x a day, Vit D- 2,000 u 2 x a day- playing with dose, Vit B complex, Ambien 10 mg at night
Aspirin 81 mg a day, fluoxetine 60 mg a day
Docusate 2 2x a day, Mirilax daily (bad at taking, pay for it), Vit C 500 cc day
Methanamate-1 g daily, Ibuprofen 2 x day
Valium 10 mg suppository TBD?, Norco 10/325 as needed
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