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  1. 03-17-2005, 02:59 PM #1
    melanie626
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    Helping someone else....


    I didn't know where to put this but wanted to share...My pharmacist asked me how I liked my Elmiron one day. Turns out, she was just diagnosed with IC. Gave her the website and she checked it out and is now looking at how to manage her symptoms from the start and as a good tool for information.

    I think it was a success because this site is here, to help others like it helps me and it felt great to be able to share with someone.....

    Melanie
    I am blessed to have an Indiana Pouch now....I am glad I did it even though it has been a long road to recovery!
    IC since childhood, finally diagnosed at 31 yo
    PFD/Pelvic Pain,Allergies
    Low Back Pain s/p spinal fusion at 19
    Hydrodistension 2001, 2005, 2011 w capsacian, 2011 with botox/ super pubic tube
    Interstim trial and removel 2002,C-Section 2007 and 2010, Post Partum Depression, post partum hypertension, Idopathic hypothalmic amenorrhea
    Radical Cystectomy with Indiana Pouch 2/3/12
    Hysterectomy 2/3/12, Wicked UTI 3/12, another 5/12, another 6/12, Nephrostomy with poor L ureter flow on L side (OUCH)----scheduled for more surgery Aug 2012.
    Meds
    Iron 2 x a day, Vit D- 2,000 u 2 x a day- playing with dose, Vit B complex, Ambien 10 mg at night
    Aspirin 81 mg a day, fluoxetine 60 mg a day
    Docusate 2 2x a day, Mirilax daily (bad at taking, pay for it), Vit C 500 cc day
    Methanamate-1 g daily, Ibuprofen 2 x day
    Valium 10 mg suppository TBD?, Norco 10/325 as needed
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  2. 03-17-2005, 03:16 PM #2
    Dixiefireball
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    ICN Member Dixiefireball's Avatar
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    thank you for helping this person this webite has helped thousands of icers i'm so proud to be a member here.
    i hope it helps her too.
    sending you hugs and prayers
    Rhonda
    Medicine taken daily or as needed:
    1. Heaprin and Marcaine rescue installment 1 to 3x daily as needed.
    2. MS.Cotin 100mg 3x daily
    3. MSIR 30mg 1 or 2 every 4-6hrs as needed for breakthrew pain.
    4. Fentanyl 100 mg Change every 48hrs.
    5. Gentamicin 80mg install after each rescue treatment
    5 Leviquin 500mg self start as needed.
    6. Klonopin 1 or 2 daily as needed.
    7. Prosed/DS as 1 every 6hrs as needed.





    I have IC, but IC doesn't have me anymore!
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  3. 03-17-2005, 03:21 PM #3
    ICNDonna
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    I think it's great that you were able to help someone.

    Warm hugs,
    Donna
    Have you checked the ICN Shop?
    http://www.icnsales.com for US & Canada
    http://www.icnshop.com for all others

    Patient Help: http://www.ic-network.com/patientlinks.html

    Diet list: http://www.ic-network.com/diet/2009icdietlist.pdf

    You'll find my story at: http://www.ic-network.com/patientstories/donna.html

    I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

    Anyone who says something is foolproof hasn't met a determined fool
    .....My Meggie.....
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  4. 03-18-2005, 06:10 AM #4
    Amyinagony
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    :woohoo: I agree Melanie ....WAY TO GO!!! I bet that you were a godsend to her!! Hope she does find this site to be as helpful as I did.
    It IS the best one!!!!!
    My heartfelt thanks to everyone on this site.
    Hugs to all of you
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  5. 03-18-2005, 08:22 AM #5
    Katrina
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    ICN Member Katrina's Avatar
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    Being able to help others is one of my biggest blessings in life. Helping others is very powerful! Thank you for helping soemone else with IC! :woohoo:
    Praise the Lord!
    Faith, Hope, and Love,
    Katrina

    I believe God is using me. He uses me for God. Things I gain from all my suffering are meant to help others. I hope I can help you too. Email me or start a chat if you like my help or anything. I CARE!Illnesses: IC,IBS, IBD, GERD, PFD, Epilepsy, Endo, Allergies, RLM,Rapid heart beat, low blood pressure,Gastritis,Gall stones,Tendonitis,migraines, Shingles, Prolapsed pouch,ext. fatigue (current problem) I have seen periods of remission and I have seen them end and return. At this time remission is over and working on getting it back! My hope story http://www.ic-network.com/patientstories/katrina.html
    http://mandksales.net
    IC Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
    or find me on facebook http://www.facebook.com/kat671?ref=profile
    Be the Miracle! & Pay it Forward!
    carmelann@charter.net please contact me...I am here to help!http://health.groups.yahoo.com/group/ICinWI/ if your from WI please contact me!
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  6. 03-19-2005, 12:22 AM #6
    andcohen
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    It may have only felt like a small thing to you but I bet it meant the world to her. Well done, this site is a life saver to many of us.
    Andrea
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