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  1. #1
    Registered User Queensweater's Avatar
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    Oct 2004
    Location
    St. John's, Newfoundland
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    48

    Question My friend might have IC

    Hi All. Not sure where to post this, but this seemed like the best place.

    I was just talking to my best friend, who currently lives in Florida, and her doctor thinks she might have IC because she has pretty bad frequency and occassional lower back pain. He's already tried her on levaquin and pyridium, and mentioned day surgery, which I assume would be a cystoscopy. But since she's not in too much pain, it's just more of an annoyance, she's going to wait until she moves back here in a few months before doing anything since Healthcare is so much cheaper here. She said she doesn't think she's affected by foods at all, so that's not an issue.

    I did give her this website and the IC handbook website, but can anyone suggest anything else?

    Heather

  2. #2
    ICN Member green_the_fish's Avatar
    Join Date
    Sep 2004
    Location
    the northeast
    Posts
    1,040
    Hmm, it could be endometriosis as well. Maybe you should suggest that she read up on that, as well as on Pelvic Floor Dysfunction.
    I hope your friend is okay!

    Medical Conditions: interstitial cystitis, bipolar disorder (type I), hypothryoidism, tachycardia (chronic)

    Other Occasional Health Problems: blepharitis and allergies

    Current IC Treatments: just avoidance of triggers

    Current BP I Treatments: Seroquel and lithium orotate

    Current Thyroid Treatments: Natural Sources Raw Thyroid

    Current Tachycardia Treatments: Metoprolol

    Past IC Treaments:


    Ortho Tri-Cyclen
    Hydroxyzine
    Elmiron
    Urocit-K
    pelvic floor therapy
    avoidance of flare-causing beverages


    cystoscopy with hydrodistention
    Detrol LA
    MSM Sulfur Dietary Supplement
    Prelief
    Neurontin
    Pyridium
    adherence to the traditional IC diet


    Elavil
    DMSO
    Ditropan XL
    Levbid
    & the herb dandelion, although the tea tasted good


  3. #3
    ICN Member Katrina's Avatar
    Join Date
    Aug 2001
    Location
    Green Bay WI
    Posts
    9,904
    That is good advise....endo and PFD can cause those symptoms. My biggest advise is trying the diet...if it helps it is more likely to be IC... Next take the PUF test
    http://www.sworcare.com/IC%20survey.htm It can determine likelihood to IC. After that if it seems likely to be IC:
    http://www.ic-network.com/forum/show...0935#post90935 Newbie kit from the oldies to the newbies

    http://www.ic-network.com/forum/showthread.php?t=7562 this link is a pain managment post.
    The second page has 4 attachments...the last one is a list of ideas for IC pain.....take a look if pain is problem for you.

    I hope your friend is ok.
    Faith, Hope, and Love,
    Katrina


    I believe God is using me. He uses me for God. Things I gain from all my suffering are meant to help others. I hope I can help you too. Email me or start a chat if you like my help or anything. I CARE!Illnesses: IC,IBS, IBD, GERD, PFD, Epilepsy, Endo, Allergies, RLM,Rapid heart beat, low blood pressure,Gastritis,Gall stones,Tendonitis,migraines, Shingles, Prolapsed pouch,ext. fatigue (current problem) I have seen periods of remission and I have seen them end and return. At this time remission is over and working on getting it back! My hope story http://www.ic-network.com/patientstories/katrina.html
    http://mandksales.net
    IC Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
    or find me on facebook http://www.facebook.com/kat671?ref=profile
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