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  1. #1
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    Getting into a pain management clinic??

    Ok here is my situation. I was diagnosed on Dec. 2nd. My uro. was goog in giving me pain meds right after Hydro he gave me 24 percosets 7.5 but when I called for 1 refill he got alittle huffy, but he did give it to me and said if I was in that much pain he would have to refer me to pain clinic. First, I have never had of getting huffy over you calling in for 1 refill after a surgery. Give me a break but I said fine to the pain management in the hopes that they will help me. I went to see the uro. today for my follow up after the hydro. I basically went in there with notes on all the treatments for IC. I researched everything on this website from the patient handbook...a wonderful resource bTW and I thank whoever did it!!!! So he wrote me a referrel for pain management that he promised and I the nice person that I am gave him a pass in saying, "I understand why you don't want to write the narcotics but can you give me a scipt to hold me over til I can get to the clinic." He did this but only gave me the 5 mg. strength. Anway, I called the pain clinic and I was shocked to hear the attitude. They wanted me to fax my referral, and my workup from the uro. with diagnosis and then they would get back to me to see if I am a candidate for their help or something like that. It reminded me of parents who go to those expensive pre-schools where they make you feel like they are doing you a HUGH favor by taking your business. I am supposed to hear within 24 hours if I am accepted
    Has anyone else had this experience? I mean usually you get a referral to a doc. you call up make sure they have your insurance and then make an appointment. I have never had to pass an admitance test before.
    Debbie

  2. #2
    IC Friend kelly McC's Avatar
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    Hi Debbie,
    I was referred to a pain clinic months ago and it worked much the same as you said.. I ended being able to see a pelvic pain specialist before the pain clinic and just stayed with him. I hope the process goes fast and they are able to help you..
    Happy holidays,
    Kelly
    To the world you might be one person but to one person you might be the world..
    I am a newbie Angel ~IC Angel Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

  3. #3
    Support Volunteers ICNJess's Avatar
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    My uro called the pain management clinic, and I was in. They had a little trouble with helping the IC pain, but finally found a combination that does help somewhat. Good luck.
    Mommy to 2 crazy, wonderful kids and wife to the most amazing man in the world!

  4. #4
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    Please let me know what that combination is. I would like some idea of what clinics will do to help. Of course yesterday I faxed the information they requested and she said that usually you are contacted in 24 hours but I called today just to confirm my fax was received and I got a message they were closed. I called before noon. She did mention the docs. weren't in next week but didn't say they would be closed today. I am thinking of calling another clinic but the first one I called didn't take my insurance. Because I am in the NY metro area we do have several to chose from that are local for me but I don't know if any others take my insurance. Again, I am loathe to pay 250 dollars a visit just because my uro is a big fat chicken and can't be bothered prescribing narcotics to me as needed. Now I am still kicking myself for being so nice and letting him off the hook. Then again I have read many horror stories here were uros. are much worse and ignore patients pain altogether. Of course everything is now on hold I guess with the holidays but I can't believe the clinic would be closed all of next week. Wouldn't the docs rotate vacations. How can they just close the whole week? I don't get it....like my pain takes a vacation for a week. I wish. I ate rice pudding yesteday which I thought would be safe but I guess it isn't safe for me. I find the hard part of this diet isn't the catagories but the additives which seem to be virtually in everything. I am just dabbling in the diet right now anyway because I figured I would get through the holiday and then be more serious about it.
    Debbie

  5. #5
    ICN Member mary124's Avatar
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    I heard alot of that from this board, but I didn't have any problems with getting an appointment. My Uro had to call my primary care doctor and explain to him who he wanted me to go see, and then my primary care doc made the referral for me. It has worked out well, got in within 2 weeks of the time I made my appt. I have to go to them every 2 months, the only thing I don't like is that on alternating months I have to go to their south location to do lab test, as they don't have the lab in their north office, they share office space with another doctor group. ( I work on the north side of Austin and live in Georgetown so its extra drive time for me when I have to go there)
    Last edited by mary124; 12-27-2004 at 04:50 AM.

  6. #6
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    AHHHHH! Ok so I send in all the info. they ask for with the prescription from the uro. stating that I need a pain eval. for IC and the med. records of my hydro and CAT scan. Now keep in mind this a a University hospital pain clinic. Their answer...we don't treat IC here. The uro. usually treats it and she proceeded to give me a liteney of treatments that I have already discussed and considered with my uro. She seemed to have an attitude that I haven't done instillations yet. LADY..sorry I am not ready to be fully tortured yet. The last time I had a catheter wide awake I walked around with an agonizing 12 hour attack through the night pacing the floors in pain. When I get like that I can't even sit down and be in pain. NO I don't want the try instillations at this time and certainly should have a right to make that decision and still be treated for my pain. I respect all out there that decide on this option. I am sure for some of you it is painful and you chose to endure it and for others it made not even be that bad so you do it. She went on and on about a comphensive approach with the diet etc etc. but leaving out part of that approach would be pain killers. Of course when I mentioned that I had done my research it was all discounted because I did it on the internet. She told me to go to a medical library and then that was it. It sounds to me that if they have seen IC patients they did every treatment first and she was judging me because I didn't. Well, I guess lucky for me I am in a metro area and there is some choice. I called the next one on the list which is a smaller hospital and the receptionist was friendly and just asked that I fax over my prescription as that is what they are looking for to avoid drug seeking. She said she should be able to get me in early January. I hope this works out though because the others don't take my insurance and I would have to pay out of pocket. In fact I believe maybe I wouldn't have had this problem if the first clinic took my insurance because that is where my uro suggested I go but then I found out they weren't on my plan.
    Debbie

  7. #7
    ICN Member CudaGirl71's Avatar
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    Hi Debbie,
    I also live in the NY metro area. Long story short, my uro started to prescribe percocet to me after I had gone to an "urgent care" facility. After about a year he no longer wanted to prescribe me pain meds and reffered me to a pain doc. This pain doc put me on nuerontin for a couple of weeks and all it did was make me sleep all day. He then put me on oxy and percocet. I went to him once a month and every month he would up the oxy. The last time I took the oxy I was on 80 mgs a day. One day my body basically shut down. I felt like I ran around my house a hundred times and my body just felt awful. I came off the oxy by myself (the doc didnt want me to come off the oxy) thru a detox center. I asked him if I can come back if coming off the oxy didnt help and he flat out said "NO". I didnt take any pain meds for 3 months after except for advil liqui-gels, 4 to 5 every 4 to 5 hours every day. I went to my PCP who was with me through the whole ordeal with the oxy and she gave me percocet and she wants me to find another pain doc. I've been to 2 since and the first one didnt treat my kind of condition and the 2nd didnt want to treat me with just pain meds and said that my PCP would be able to do that and that he would write a letter stating that she should and that he would back her up. That was on the 23rd of December and I havent heard anything yet. I'm going to call her soon for pain meds....thankfully she said she would help me until I found a pain doc. I read in your message that you had a few pain docs in your area. Would you tell me where you are and the docs that are available in that area? I have a few to go to but they are in either NYC or Morristown NJ, not that I wouldnt go but I would rather go to someone that would be reffered to me. Any help would be grateful!
    Thank You,
    CudaGirl

  8. #8
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    I called area hospitals in my county. Just call around to all your local hospitals and simply ask for their pain clinic direct number and then they will connect you. Since I haven't actually had an appointment yet I can't recommend anything specific. But I do plan to go the the IC support group meeting on Jan. 19th at Englewood Hosp. Englewood, NJ. Can you make that? I am hoping others in the area will have some veteran advice for me.
    Debbie

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